Dr. Strum is no longer in the house.

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/12/2010 7:55 PM (GMT -6)   
I tried getting to him for one of our members here but Stephen Strum is hanging it up. He has stated that he is not taking any new cases and posted this on the Prostate Cancer Research Institute P2P network this week:

Excerpt from his last post on P2P.

Please Note: this is going to be my last posting to P2P. I have
decided this for a few reasons.

1. There is not that much activity on P2P and not having to worry
about the occasional posting will decrease my stress level.
2. There is major problems with doctors around the world doing
anything outside their own sphere of experience. Even inviting them to
call or email me has rarely been helpful. I end up educating patients
who become frustrated with what they cannot get from their own local
physician. Collaboration & collegiality in the world of medicine is
thus rapidly becoming a thing of the past, assuming it was once more
common than it is today.
3. Eye strain from any additional work on the computer needs to be
avoided by me in light of recent retinal problems.
4. about 20 other reasons that relate to my using my "free" time
differently.

So, with this last post on 8/10/10 I wish everyone the best. No need
for any emails please.

Stephen B. Strum, MD, FACP
Board Certified: Internal Medicine, Medical Oncology
Specialist in Prostate Cancer since 1983
Member: ASCO, AUA, ASTRO
International Strategic Cancer Alliance (ISCA) Member


---------------------------

Dr. Strum's contribution to prostate cancer research is much appreciated.

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/13/2010 7:20 AM (GMT -6)   
You can imagine his burn out factor, books, P2P, patients and probably people literallly pounding on his door(s) at night. I hope in retirement he comes out with another book at some point based upon all his cases and accumulated information...which is deep.
 
Thanks for posting this Tony...I especially like the words of wisdom found in #2 above. This is why an informed patient needs to be somewhat of their own advocate, I am super glad I have been reading his stuff for years....lit a fire under my posterior.

I while back I responded to his PCa research fund/donation bike ride thing overseas, and posted back in the group email thing....'can we clone you Dr. the world needs more like you'...his response back was....'I wish you could so I could go fishing, sailing' (and all those things he loves but hasn't be able to do, because patients need his help so badly).

That was a clue for the burn out factor and long journey. More and more of these PCa icons will be retiring and leaving the scene (Dr. Lee, Dr. Myers & Dr. Barken at some point), I hope a new crop of reinforcements are available and thank goodness we have some good ones that are younger and accessible right now.
Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 8/13/2010 6:25:16 AM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/13/2010 10:20 AM (GMT -6)   
The good doctor is but a mere mortal too, and he deserves a chance to live a life of his own outside of PC and the endless stream of PC, sounds like he has already devoted the best years of his life sharing and helping others. I understand the burn-out aspect of a decision like that.
Age: 58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin

Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16

Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, next test 11/10
Latest: 7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped 9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 ,Cath #11 - 21 days, Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3257
   Posted 8/13/2010 10:34 AM (GMT -6)   
After my onco appt last night I actually talked to him on the phone. He was sorry for my condition and wished me well but would not talk to me otherwise. I am very disappopinted but I do understand.
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3257
   Posted 8/13/2010 10:37 AM (GMT -6)   
Tony. My physical / mailing address nnnnnnnnnnnnnnnnn

Post Edited By Moderator (James C.) : 8/13/2010 11:47:46 AM (GMT-6)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/13/2010 10:49 AM (GMT -6)   
Thanks Todd,
I'll put it in the mail ASAP...You can go ahead and take the address down...

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/13/2010 12:18 PM (GMT -6)   
Gee, I wouldn't leave that address up there, that's asking for it
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7/7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy, on Catheter #20

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3257
   Posted 8/13/2010 2:23 PM (GMT -6)   
Thanks James. Sorry bout that. Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3257
   Posted 8/13/2010 2:26 PM (GMT -6)   
I guess I should have read the rules. I try not to do things wrong so I didnt bother reading them cuz lets face it. I'm a prwetty nice guy. lol
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/13/2010 3:27 PM (GMT -6)   
Todd that must have been devastating to have a doc with no uplift ideas no concepts of where to go. This is why people go see those outside the box onco-docs and find more answers, ask Howard H. how he feels at year 17 now and other examples. I would hire Dr. Volgelzang and I believe you will find yourself on a new drug protocol...and let me predict right now...yes...you will get results. I am willing to wager if someone else is a naysayer for this on your case. Best to you pal and you can love your wife in many ways. Hey you can always fire a doc and move on too, because we might have choices. I fired a few along the way, thanks to Dr. Strums book I felt very good about moving on and finding options.

Todd since you had your address posted prior(Purg told you above-LOL) I sent you something and you will recognize it is from me only, after you open it. Surprize! I think Tony is hooking you up...and looks good from here. :-)
Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 8/13/2010 2:32:36 PM (GMT-6)

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