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LuvMyDAD
Regular Member


Date Joined Dec 2009
Total Posts : 315
   Posted 8/13/2010 7:04 PM (GMT -6)   
Hi guys I hope your summer is going well. As for me, everything was pretty uneventful after my dad's radiation up until two weeks ago. He has been experiencing some hip pain and he won't go for an MRI. (He hasn't seen a doctor but we are pushing him to at least get it checked out.) I am really concerned, I am actually really scared. I don't even want to think of what it could be.
I mean, could it be with a psa of .55 after surgery and both CT and Bone scans were negative?
Also, I did read online that some people do experience bone and hip pain following pelvic radiation. I guess my ultimate question is has anyone had pelvic radiation and experienced hip or bone pain as a side effect? Just wanted to hear your feedback. Thanks guys.
Lynne
Father diagnosed Nov. 9, 2009
Open radical prostatectomy Dec. 21, 2009, post op pathology report T3a, Gleason 7
5 week post op psa .55
Combination therapy, hormone and IMRT. 40 sessions 72gy.
Hoping and praying for a cured dad.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6978
   Posted 8/13/2010 9:14 PM (GMT -6)   
Lynne,
I am 8 weeks out from a 39 session IGRT, and have some discomfort in my left hip. The GP says it is likely associated to the fact my walking dropped off a lot because of the hot weather, and that it is an area that was in the "line of fire". They will consider bone density tests in October just in case, since there is some evidence that radiation can contribute to a longer term osteoporosis, but that should be years off.
Has he had the post-rad PSA yet? Mine was at 6 weeks after the last session.

LuvMyDAD
Regular Member


Date Joined Dec 2009
Total Posts : 315
   Posted 8/14/2010 7:47 AM (GMT -6)   
Hey 142 thanks for your reply.
No they havent taken a PSA yet because he is on hormones and that will artificially lower the PSA. To get a completely accurate reading they decided that by October (his last shot was in June) that the hormones should wear off to see whether the radiation worked or not.
We are waiting on that.
I really hope its from the radiation and nothing else. He really doesn't want to do anymore scans, I really dont blame him.
Father diagnosed Nov. 9, 2009
Open radical prostatectomy Dec. 21, 2009, post op pathology report T3a, Gleason 7
5 week post op psa .55
Combination therapy, hormone and IMRT. 40 sessions 72gy.
Hoping and praying for a cured dad.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 8/14/2010 9:26 AM (GMT -6)   
Luv,

At my age, which isn't real old in my mind, I find various pains from day to day. Knees, hips, back, etc. Hard youth, car accidents, arthritis, etc.

As soon as I get a new one, I immediately ask the same question, Is it a met, or some othe PC related malady ?

Most of the time it goes away, or an Ibuprofen takes it away. I just need to relax. Even it if it is a PC related thing, not much I can do about it.

Good luck, and keep watching after Dad. Just try not to worry so much.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 8/15/2010 2:12 PM (GMT -6)   
Luv,

In addition to radiation origin, the pain could be related to HT treatment. Joint pain is a known side effect. I am on HT treatment and have joint pain frequently. Not in the hip, but knees and shoulder.

I do think that being on HT and just after the radiation, it is very unlikely that the pain is PCa related. However, your dad should get PSA and T tests every three months, before his Lupron (or other) shot. This way you know the HT is working and the PSA is not growing.

Greg
Father died from poorly differentiated PCa @ 78 - normal PSA and DRE
5 biopsies over 4 years negative while PSA going from 3.8 to 28
Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8
Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere + Avastin)
PSA prior to treatment 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60
RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins
PSA undetectable for 8 months, then 2/6/2009 0.10, 4/26/2009 0.17, 5/22/2009 0.20, 6/11/2009 0.27
ADT (ongoing, duration TBD): Lupron started 6/22/2009
Salvage IMRT to prostate bed and pelvis - 72gy over 40 treatments finished 10/21/2009
PSA 6/25/2009 0.1, T=516, 7/23/2009 <0.05, T<10, 10/21/2009 <0.05, T<10

deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 8/15/2010 4:04 PM (GMT -6)   
Lvu .my husband had 39 treatments of SRT full pelvic ended in Dec.09 also had Casdox and 2 shots of lupron at the same time and about Jan. started to have hip pain they were real stiff he said I think a lot had to do with the SRT because he never had it before the SRT and HT treatment his Psa was .55 when he started and his med.onc said that it could have metatase at that point . but all scans showed neg. but you knows the scans don't always show up . so I wish your dad all the best and hope it's just the SRT .the drs. will probably do a bone density test next to see if there is an bone lost .My husband had one in june haven't heard yet we go back in Sept.10
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  
6/17/10 saw rad.onc. having problems with hips and muscles {bone density test sch, 6/25/10 wait and see

LuvMyDAD
Regular Member


Date Joined Dec 2009
Total Posts : 315
   Posted 8/15/2010 4:21 PM (GMT -6)   
Hi Deer Hunter,
Thanks for your reply. Wanted to ask you, following your husbands radiation has his PSAs dropped to zero? Also, my sister just told me that the pain is not really in the hip area its in the back area, isn't that right in the radiation zone? I dont know why I think thats better news. I really dont know what to think but I am so stressed out.
I really dont understand how a .55 can cause pain? I really dont know what to think.
Father diagnosed Nov. 9, 2009
Open radical prostatectomy Dec. 21, 2009, post op pathology report T3a, Gleason 7
5 week post op psa .55
Combination therapy, hormone and IMRT. 40 sessions 72gy.
Hoping and praying for a cured dad.

deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 8/15/2010 5:57 PM (GMT -6)   
Luv, since his SRT his psa has been <,0,05>the dr, hasn't done an ultra senitive PSA yet but I think the drop was due to the combination of casdex and lupron because HT will drop the psa. After his surgery his psa took only 8 mths to start back up and it climbed every 3mths.He said his pain is in his lower middle back too and all across to the hips it's hard to get up just like they were stiff and he was in good physical condition until then other than being tired a lot. The SRT made that worst too.Did your dad have any dark spots or places that looked like a mild burn on his back around the hip s or pelvic area that he mentioned or noticed?
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  
6/17/10 saw rad.onc. having problems with hips and muscles {bone density test sch, 6/25/10 wait and see

LuvMyDAD
Regular Member


Date Joined Dec 2009
Total Posts : 315
   Posted 8/15/2010 6:32 PM (GMT -6)   
No he hasnt noticed any dark spots anywhere on his body. See the thing is he is not truthful with me (I think because I am too emotional) everytime I ask him something, he tells me he feels wonderful.
But I did notice that when he gets up he feels stiff and a little in pain. Like you said, its hard to get up. Its very recent and he told me its getting better. I really am hoping its from the SRT, he did bone and ct scans only 6 months ago and they were all negative. I just am having a hard time believing it could be mets with a .55. I know his hormone shot is starting to wear off, you think it could be from that?
Father diagnosed Nov. 9, 2009
Open radical prostatectomy Dec. 21, 2009, post op pathology report T3a, Gleason 7
5 week post op psa .55
Combination therapy, hormone and IMRT. 40 sessions 72gy.
Hoping and praying for a cured dad.

deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 8/15/2010 6:51 PM (GMT -6)   
Luv. when did you say his last hormone shot was? it takes a long time for hormones to wear off my husbands just now starting to be over hot flashes and all the other stuff that goes along with HT my husband had bone and ct scans before this srt buy as you can see from his thread he's had alot of scans over the last 4 yrs.I think his {your dad] problem now is probably from the effects of SRT and hopefully want last long. But I'm sure his dr will order a bone density test if it persist, did your dad have any positive margins after the surgery on [his path report?Why did they do a PSA so soon after surgery?usually they wait 3 mths, What was his psa before DX?
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  
6/17/10 saw rad.onc. having problems with hips and muscles {bone density test sch, 6/25/10 wait and see

LuvMyDAD
Regular Member


Date Joined Dec 2009
Total Posts : 315
   Posted 8/15/2010 7:17 PM (GMT -6)   
Hey Deer Hunter,
First of all I really appreciate you answering all my questions. It's so comforting to talk to someone about this. Okay, my dad's PSA before surgery was a 4.1. He did not have positive margins but on the path report it said that the cancer was very close to the margin but "did not touch it." They drew his PSA after 5 weeks because his urologist (which is his best friend who performed the surgery) told him to seek adjuvant therapy as early as possible because of his path report which was T3a gleason 7 (4+3) with tertiary 5.
So within a month we got him an appointment at Sloan to set up for IMRT. Rad Onc at Sloan put him on combo therapy. His last shot was in mid June. He completed his IMRT the first week of June. I think about now is when it begins to wear off right? Im not sure but I remember the doctor telling us that. They are going to check his PSA in October to see whether the IMRT worked. (Fingers crossed).
But this pain, it's really stressing me out. I just keeping running things through my mind. 1) urologist said right after surgery that he was positive the cancer was contained because everything was soft. 2)His path report said otherwise--it was out. 3)Then I see people who have bladder neck invovlment who achieve zeros after surgery and wonder why my father didn't. I know cancer is so unpredictable but it just doesnt seem logical with a low PSA going in.
I know I am obsessing over this, but do you think its mets or just a bad reaction to the rad?
Father diagnosed Nov. 9, 2009
Open radical prostatectomy Dec. 21, 2009, post op pathology report T3a, Gleason 7
5 week post op psa .55
Combination therapy, hormone and IMRT. 40 sessions 72gy.
Hoping and praying for a cured dad.

deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 8/15/2010 7:57 PM (GMT -6)   
Lvu,if his margins were clear then why did the path report say that his cancer was not contained? also it takes a while for PSA to go down after surgery the bodyhas to have time to adsorb it is [my laymens ] term , Dr's have a better way of explaining it.I'm sure if they had waited 3 mths it probably would have been down to near zero, my husbands was 8.1 when dx and I asked uro, dr when we saw him if he was going to check it again and he said no it was a waste of time at that point, when his path report came back 3 days after surgery the uro dr. said he would half to be watched very carefully for psa to return. LVU, be thankful your dad's friend was his surgeon and know he is watching your dad very close and I really think his problem is just from radation,if it is from bone lost then there are somethings they can give him to help with that to. I also know that it helps to talk to someone else who is riding this train with someone they love!!!!!!!!!!!! If I can help more let me know, I've read alot and asked a lot of question to. we have been married 44 yrs and this PC thing really was a shock!!!!!!!!!!
I
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  
6/17/10 saw rad.onc. having problems with hips and muscles {bone density test sch, 6/25/10 wait and see

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6978
   Posted 8/15/2010 8:44 PM (GMT -6)   
Luv,
There seems to be a lot of confusion in the notes above,

1) The surgeon can only speculate just after the surgery, unless there is something very wrong (i.e. they biopsy the lymph nodes during surgery, and find them involved). The path report is the first indication of what they really found. My surgeon said everything went well. He told the family that, and that the path report would tell us more.

2) T3a indicates that a tumor extends through the prostate capsule in one lobe (i.e. not contained). You also need the Nx Mx values (N is lymph nodes, M is distant metastasis, and the second character of each tells what was seen in the path exam).

3) You can be T3a and have negative margins if they took a large-enough swath of tissue around the capsule.

Unless a bone scan shows a "hot spot", and even then I have several due to multiple broken bones over time - there is not much to say about bone mets - they may be there, and not large enough to see (or treat), or simply not there. Until proven otherwise, discuss pain with the doctor, and expect it to be generic aches and pains.

Also, if they put him on Cialis for circulation therapy, that can cause quite a bit of lower back pain. I had to stop taking it during my IGRT, as it was too painful to remain still during the sessions. This was not the hip joint/bone, but spine and lower left back.
I also have pain due to previous surgeries, which was aggravated by all the things around the surgery and "rehab".

deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 8/15/2010 9:27 PM (GMT -6)   
Lvu ,and 142 I did not mean to say that his cancer was contained because he had clear margins I also know that a T3a means that the cancer escaped the capsule also that NX MX means that cancer cannot be determined in lymph nodes or if cancer has metatasied or not , I 'm only speaking from what my husband has been thru. As I said the pain maybe just a temporary thing or from some bone lost from SRT and HT together as my husband"s Rad.onc. said there is sometimes that bone lost happens with HT. Thats why they do bone density test to determine. I read somewhere that a bone density should be done before HT begins so they can be compaired after HT. DEERHUNTER WIFE Good luck LUV I'll listen if you need me to
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  
6/17/10 saw rad.onc. having problems with hips and muscles {bone density test sch, 6/25/10 wait and see

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6978
   Posted 8/15/2010 10:10 PM (GMT -6)   
Deer Hunter wife ,

Wasn't a comment on your last note, just the whole thread.

- yes, HT has added impact on bones when done together with radiation. I elected to not have HT, so any pain I have would be pure radiation, or something else. I'm hoping for something else, except mets, but by default we all think that at the first ache or pain.

My observations on the T3a and margins was because of Luv's comment on what the doctor said just after surgery vs. the path report. I am very surprised the surgeon was so optimistic in his comments. I was told before surgery that there could be no evaluation unless it was very bad, so I did not expect anything beyond did he accidentally get to save the nerves (he did not) and whether I needed blood or not (I did not). Just my opinion that the surgeon went too far in comments before having the path report in hand.

Also, I was thinking that Luv needs to know the Nx Mx numbers from the path report. They normally don't tell much, but they are a valid part.

I think that the early "everything is great" set Luv & family up for a let down, and that understanding that, things are not bad until there is consistent evidence that they are.

Post Edited (142) : 8/16/2010 7:14:20 AM (GMT-6)


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 8/16/2010 5:39 AM (GMT -6)   
142. sorry if I sounded a little upset didn't mean to .You are right the path report tells the tale. My husbands surgeon would only tell me , he got what he went to get and we would half to wait and see and that he dug deep into my husband right side as far as he could go!!!! But he did call everyday for 2 wks and check up on him I thought that was good!!!!!!!!the path report came back in 3 or 4 days and he called . Surgery on Mon. called us on Fri. he came home from hosiptal on Thursday. Lvu and her family also need to know their{ dad} has been _thru a lot since Dec. and it takes time to heal just from the surgey alone,and then to do radation and HT combo is a lot in less than a year. We all here at Healingwell know the worry that comes with PC and are one of the best sites for listing and information it's good to know what others are going thru and now they are handling things.
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  
6/17/10 saw rad.onc. having problems with hips and muscles {bone density test sch, 6/25/10 wait and see

LuvMyDAD
Regular Member


Date Joined Dec 2009
Total Posts : 315
   Posted 8/16/2010 10:33 AM (GMT -6)   
Thanks Deer Hunter and 142 for your support and feedback.
It's just so hard because I feel so helpless. I really hope the rad takes care of it and this ordeal will just be history. He has been through so much I just want him to have a breather and just relax and now thIS PAIN creeps up. It just never ends but you know it can be so much worse so I should just look at the cup half full and be thankful I guess.
Deer Hunter, is your husband on 2 yrs of hormones? Just wondering because my dad only did 6 months and I know some people are on 2 yrs combo therapy. When I asked the doctor he said 2 yrs of hormones are for patients in the high risk group and my dad is intermediate but it seems as though people with mroe of a favorable prognosis are getting 2 yrs. Just a thought
Father diagnosed Nov. 9, 2009
Open radical prostatectomy Dec. 21, 2009, post op pathology report T3a, Gleason 7
5 week post op psa .55
Combination therapy, hormone and IMRT. 40 sessions 72gy.
Hoping and praying for a cured dad.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6978
   Posted 8/16/2010 10:43 AM (GMT -6)   
Luv,
When they did the run-through on the different treatments, they included a two year HT plan together with IGRT as a primary option.
The six month was tied with IGRT as a secondary treatment if the PSA was rising after surgery.

My PSA did not rise, so the IGRT was done without the HT. IGRT was done as soon as practical because of positive margins.

deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 8/16/2010 12:18 PM (GMT -6)   
Luv my husband was in a clinical trial at Emory in Atlanta .Our first uro. wanted him to start SRT 8 mths after his surgery but he was scared and didn't fill comfortable with the rad onc where we live. So our first uro. suggested a second opinion so we went to Emory and that's where we are now .but the uro.there keep telling him HT treatment and radation treatments were ruff and didn't what to do that even tho his PSA keep climbing we saw him for 1 yr we had decided to change uro.when his PSA came back .50 and he said we needed a med.onc. Med onc immediatly !!!!!!!!! sent him to a rad onc that day they checked his PSA 1 wk later it was .55 Med onc upset that uro had not done something and keep letting his PSA go up PSA at the time we started seeing uro was .08 it climbed to .50 in a yr, So he was asked about Doing the trial and he was picked for arm 2 of the trial.If you read his post you'llsee that they couldn't find where the cancer went it never showed it still in the prostate bed. but that was the only place they could start.since that is where it began.He was on casdex for 4 mths i mth before Rad. and 2 shots of Lupron during RAD. [full pelvic Rad] He has been off casdex since Dec.09 So thats why we stillaren't sure if RAD or HT worked PSA for now is low, Also I do remember the surgeon and the first Rad,onc telling me My husband didn"T have the normal PC that it was highly aggressive.And also the uro,at Emory when we first saw him said my husband was in for the fight for his life!!!! That has always stucky in my head what the 3 of them said!!1
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  
6/17/10 saw rad.onc. having problems with hips and muscles {bone density test sch, 6/25/10 wait and see
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