Heard back from the doctor

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Bob & Wife
Regular Member


Date Joined Apr 2008
Total Posts : 100
   Posted 8/14/2010 10:14 AM (GMT -6)   
Heard from my doctor this morning about my psa going (.14 to .19 6 weeks) up again even after having surgery and radiation. He said to come back in 6 weeks to have psa drawn again. The doctor said sometimes the psa may go up after radiation and then drop back down and stay down. I am a little bit apprehensive because this is exactly what happen to my psa after my surgery. The level stayed down and then jumped up and continued to go up until .32 and we started radiation. I have been told your psa may not go down right away after radiation but then it will stabilize but I am two years post radiation this month. Has anyone else been told this or had the same issues? So we will be waiting for six more weeks so see what happens. The waiting is the hardest, if you have a plan on how do attack this ugly thing at least you feel like you are doing something. Thanks Bob
Age at diagnosis 58
PSA 1.7 Nodule felt. Biopsy 4+4 T2
1-30-06 Surgery nodes & margins clear, some prostrate cells found on bladder neck. 4+3 after surgery
12-07 PSA jump .14 (11 Months)
12-07 Nodule felt biopsy negative
PSA .16
PSA .17
4-3-08 PSA .32
4-15-08 Nodule size increased
5-8-08 PSA still .32
5-30-08 Biopsy of nodule positive. Next step consultation with oncology 6-5-08 for further scans & test
8-14-08 Completed Tomotherapy
12-18-08 Post Radiation PSA .05
3-27-09 3rd Post Radiation PSA .06
7-17-09 4th Post Radiation PSA .05
12-09 Post PSA.06
3-19 psa .18
3-25 psa .08
6-1-10 psa .14 Next PSA 8-1-10

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 8/15/2010 4:31 AM (GMT -6)   
We'll be waiting and wishing you good luck.
Age 55 - 5'11" 215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6
06/25/08 - Da Vinci robotic laparoscopy
05/14/09 - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.

livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/15/2010 7:34 AM (GMT -6)   
I recall my radiation and the subsequent PSA test, it took mine probably three months to reach the desired level. If you are saying that your PSA is rising two years after radiation I do not think waiting longer will make it go down.
I so agree with waiting six more weeks to see exactly what the PSA is going to do and get a somewhat accurate doubling time. If it stays in the .1 range I doubt the doctor will recommend any treatment protocol at this time. I have to ask are you physically active as in exercise and eating a good diet? I have found for myself that this sure helps keep the anxiety down and the body strong.
Keep us posted as to how you are doing.

peace to you
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
I was on Lupron, Casodex, and Avodart for two years with my last shot March 2009. I am currently (7-22-2010) not on any medication.
My Oncology hospital is The Cancer Treatment Center of America in Zion IL
PSA July of 2007 was 16.4
PSA May of 2008 was.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13
PSA April 16th of 2010 is .16
PSA July 22nd of 2010 is .71
Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%

Bob & Wife
Regular Member


Date Joined Apr 2008
Total Posts : 100
   Posted 8/22/2010 12:27 PM (GMT -6)   
Thanks to all, my wife and I took a week off and went fishing and it seemed to help the anxiety while we wait six more weeks. Dale you asked if I exercise etc. I am physically fit and eat healthy foods with just a little extra weight. So we will just have to wait and see what the next psa level brings. Bob
Age at diagnosis 58
PSA 1.7 Nodule felt. Biopsy 4+4 T2
1-30-06 Surgery nodes & margins clear, some prostrate cells found on bladder neck. 4+3 after surgery
12-07 PSA jump .14 (11 Months)
12-07 Nodule felt biopsy negative
PSA .16
PSA .17
4-3-08 PSA .32
4-15-08 Nodule size increased
5-8-08 PSA still .32
5-30-08 Biopsy of nodule positive. Next step consultation with oncology 6-5-08 for further scans & test
8-14-08 Completed Tomotherapy
12-18-08 Post Radiation PSA .05
3-27-09 3rd Post Radiation PSA .06
7-17-09 4th Post Radiation PSA .05
12-09 Post PSA.06
3-19 psa .18
3-25 psa .08
6-1-10 psa .14 Next PSA 8-1-10

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/22/2010 6:22 PM (GMT -6)   
Bob, it is a scientific, medically proved fact that if you took my wife and I fishing with you and your wife your stress level would be even less about PCa. Matter of fact, a week dealing with me and you'll look forward to going back to when all you had to worry about was PCa.

The dear wife of these past 43 glorious years and my dubiously charming self are available for fishing on short notice and our list of preferred wines, rum, sheets (thread count, color, ironing technique etc.) and condiments are conveniently gathered for your hosting pleasure in a roughly 17 page Word document. See how thoughtful we are!

Sheldon AKA Sleepless

P.S. In the healthy food department full fat ice cream and bar-b-qued steaks work for me.
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 8/22/2010 6:56 PM (GMT -6)   
Sheldon keeps his registry at Bass Pro Shop and Ben and Jerry's. Glad that you and your wife had a chance to get away Bob. Keep us posted and enjoy life.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/22/2010 9:35 PM (GMT -6)   
This post from Bob got me so excited about fishing that I went down to the boat house (I write from our cottage on Lake of The Woods in far western Ontario) and checked out my fishing gear and the wee boat I take fishing. I may just get some minnows tomorrow and head out. It is GFMPH, right?

And, Michael, Ben and Jerry's is a cathedral to believers such as myself, but I don't chase bass. I prefer to fish for walleyes and northerns (Jack fish) and muskies --- although I've never caught a muskie, but we have one that lives around our boat house which does make me think when I go skinny dipping off the dock. Ouch!

Finally, Michael, I endorse your excellent advice to Bob: keep us posted and enjoy life!

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

Bob & Wife
Regular Member


Date Joined Apr 2008
Total Posts : 100
   Posted 8/23/2010 7:47 PM (GMT -6)   
You all are truly a great group of caring people, thank you. As for fishing we caught 3 chinook salmon ( 25lb, 28lb 30 lb) and one silver and when we weren't catching fish we were enjoying the time together. Thanks again Bob
Age at diagnosis 58
PSA 1.7 Nodule felt. Biopsy 4+4 T2
1-30-06 Surgery nodes & margins clear, some prostrate cells found on bladder neck. 4+3 after surgery
12-07 PSA jump .14 (11 Months)
12-07 Nodule felt biopsy negative
PSA .16
PSA .17
4-3-08 PSA .32
4-15-08 Nodule size increased
5-8-08 PSA still .32
5-30-08 Biopsy of nodule positive. Next step consultation with oncology 6-5-08 for further scans & test
8-14-08 Completed Tomotherapy
12-18-08 Post Radiation PSA .05
3-27-09 3rd Post Radiation PSA .06
7-17-09 4th Post Radiation PSA .05
12-09 Post PSA.06
3-19 psa .18
3-25 psa .08
6-1-10 psa .14 Next PSA 8-1-10
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