I don't believe anyone really thought you would base a major medical decision based on an insurance agent. There are lots of us here, that had no symptoms prior to PC. I had been having DRE and PSA done since age 50 because I was suppose to by my GP. I have never had a positive DRE, never had any prostate trouble, no swellings, no urinary stream issues, not even a single UTI in my life, and no history of known PC in any part of my family. Like my uro says, someone has to be first, and more likely, there were cases, its jsut that the male relatives died of something else other than PC. Very common situation.
Yes, its hard to understand where ultra rare medical situations come from. I am a 3 time survivor of Porocarcinoma, an extremely ultra rare but malignant cancer. I had it twice in my scalp, and once in my lymph nodes in the neck. There is still so little known about
this cancer. It took a total of 5 operations and 35 rounds of really horrific neck/throat radiation 10 plus years ago to rid me of it. I wasn't even considered cured until I hit the 10 year mark not long ago. At the time, I was one of only 38 known cases in US Medical History, and less then 300 cases in the world. Since I have had it, they have reduced the number of cases, because of better diagnosis. Now, with me having it in the scalp, I was one of only six known cases in the entire world. Go figure that one out. My medical oncologisit had a woman patient with the same cancer but on her thigh, with two patients, at the time he was the world's expert on this cancer. No common connections could be found between this woman and I . Unfortunatley, she died of hers a few years ago. There will probably never be an answer for how that ultra rare of rare found its way into my body.
At the time, there was no known cure, no chemo formula, so wide margin surgery, including extensive plastic surgery on my head, and massives amounts of "old"school radiation were used in hopes of slowing it down or killing it. In my case, it seemed to have worked. Now, like all the other men here, I have been in for a tough ride with my prostate cancer. Its a mean cancer and often doesnt play by any rules or logic.
Good luck to you and your husband as you continue to sort things out. Sounds like you are doing all the right things in the process.
David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39
Post Edited (Purgatory) : 8/17/2010 11:16:15 AM (GMT-6)