Locked Brachytherapy Thread

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Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4274
   Posted 8/17/2010 12:19 PM (GMT -6)   

This morning I noticed that the recent brachytherapy thread had been locked and regals’s posts had been removed.

 

While I certainly do not subscribe to regal’s characterization of prostate surgery as “butchery” and found his comments rude, I fail to understand why his posts were excised and the thread locked.  It is undoubtedly offensive to surgery patients on this forum to have their chosen procedure described in such terms but it also may be helpful to new members to understand the passion that regal felt about this option.  He was not obscene, his post was not directed at a specific forum member and he did not ridicule anyone in particular.

 

I have seen far more egregious violations of the forum rules without moderator censorship.  One anti-religious poster has been allowed to describe people of religion as “freaks” and to ridicule their beliefs.  And there are frequent ED discussions that may go over the line for a forum whose rules describe it as “family friendly”.  I am not suggesting that these posts should have been censored nor do I think regal’s should have been.

 

As a radiation patient I’m sure I would be offended if my treatment choice was described in derogatory terms such as “butchery”.  However, to be honest, I am equally offended when a moderator takes a backhanded slap at my choice by making the misleading and patently untrue statement, “…that we still lack critical unbiased controlled trial corroboration on the efficacy and side effects of brachytherapy.” 

 

I guess my point is that, as a free speech advocate, I think we should be slow to judge and even slower to censor.

 

Just one guy’s take,

 

Tudpock (Jim)


Age 62, Gleason 3 + 4 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 4/10/10.  6 month PSA 1.4 and now 1 year PSA at 1.0.  My docs are "delighted"!

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 8/17/2010 12:40 PM (GMT -6)   

And my take even though I missed all the action.

There's no such thing as freedom of speech on a privately owned web site.

This is particularly true when there are rules we have to agree to as part of the membership.


Age 55 - 5'11" 215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6
06/25/08 - Da Vinci robotic laparoscopy
05/14/09 - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.

Sancarlos
Regular Member


Date Joined Feb 2010
Total Posts : 242
   Posted 8/17/2010 12:49 PM (GMT -6)   
Tudpock18 said...
]As a radiation patient I’m sure I would be offended if my treatment choice was described in derogatory terms such as “butchery”.<span style="mso-spacerun: yes"> However, to be honest, I am equally offended when a moderator takes a backhanded slap at my choice by making the misleading and patently untrue statement, “…<span style="FONT-FAMILY: 'Verdana', 'sans-serif'; COLOR: black; FONT-SIZE: 9pt">that <span style="COLOR: black">we still lack critical unbiased controlled trial corroboration on the efficacy and side effects of brachytherapy.”<span style="mso-spacerun: yes">



I agree completely with your remarks. A well moderated forum should , 1) have unbiased moderation, and 2) enjoy a minimum of censorship, deleting only messages that are either vulgar, highly offensive in general, libelous, or directed toward an individual.


Sancarlos
Age 66
PC diagnosed 7/2009
Stage: T2c
Gleason: 9 (4 + 5), 6 of 6 cores positive
Bone, CAT and MIR scans negative

Treatment: brachytherapy (103 palladium), 100 gy, 11.15.2010 + hormone therapy (Lupron) + IMRT on Novalis (February-March, 2010), 45 gy.
Casodex added 8/9/2010.

PSA at time of diagnosis: 11.9
PSA 10/2009, 5.0
PSA 12/2009, 0.56
PSA 5/2010, 0.15
PSA, 8/9/2010, 0.066

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/17/2010 1:03 PM (GMT -6)   
I am not certain why the thread was locked as I saw no reason to report the exchange to our Admin and when I saw it locked I was a bit surprised though I may have missed additional information. LOL We have had far less eloquent exchanges at HW that never required an action for things to cool down.

Jim, I see some guys protesting this, but pretty much anybody can request an intervention in a thread which could result in a thread being locked ~ not just the moderators. And there can be many reasons to lock a thread so please consider allowing for more than just a contentious exchange to be the possible reason.

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Admin
Forum Administrator


Date Joined Jan 2003
Total Posts : 9810
   Posted 8/17/2010 1:16 PM (GMT -6)   
I locked the thread, it was reported by a member, not a moderator. From what I saw it was going nowhere productive and I thought the comments by regal were uncalled for so I removed the rude replies and locked it. It had nothing to do with the butchery comment but by the followup replies which were rude and inappropriate.

Peter
Peter Waite
HealingWell.com
www.healingwell.com

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/17/2010 1:40 PM (GMT -6)   
The thread in question has been unlocked for which I am delighted. It is ultimately unfair to the person who started the thread to limit the access to the information they requested and I am thankful Peter agreed to re-open the discussion.

Let's carry on guys...

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

erbob
Regular Member


Date Joined Jan 2010
Total Posts : 281
   Posted 8/17/2010 3:19 PM (GMT -6)   
As Tony said, "The thread in question has been unlocked for which I am delighted. It is ultimately unfair to the person who started the thread to limit the access to the information they requested".

My thoughts exactly. Even though I have already chosen and just recently received Brachytherapy, I still like to learn/know all I can about it such as various side effects etc that may be anticipated with this particular procedure, just like the thread originator is attempting to do...
Thanks for unlocking that thread.
Bob, located in Southern Colorado

Age 73 Retired Railroader.
Dx Jan 2010, Volume 51.345
Gleason 3+4=7, second opinion 4+3=7 (Don't know which to believe)
PSA
2.6 4/96.......... 3.7 4/07
1.9 5/97.......... 3.2 1/08
2.3 4/98.......... 6.1 4/09
2.2 10/99......... 5.3 5/09
2.4 8/00......... 5.3 8/09
2.3 6/01......... 6.9 10/09
2.9 2/03......... 7.3 12/09
3.6 4/04......... 6.1 1/10
3.0 5/05......... 5.0 3/10
4.7 4/06......... 0.7 5/10 (Lupron/Bicalutamide)
Volume study at CPCC (Westmont, IL) Feb 15, 2010 = 55.7cc
On Feb 15, 2010 put on 90 days of Bicalutamide
Got LHRH Lupron shot on Feb 29,2010
Another Volume study May 24, 2010 = in mid-40cc
BRACHYTHERAPY received May 26, 2010
Received 80 I-125 (Iodine seeds)
Activity per seed (mCi) 0.373
Total activity implanted (mCi)29.80
Measured exposure @ 3 feet (mR/hr) 0.06
Received the Brachytherapy at the Chicago Prostate Cancer Center from Dr. Brian Moran
Walked in the facilty and just a few hours later walked right out.
No after effects other than just a little sore from the needle sticks but NOT serious
enough to take ANY meds for pain.
PSA to be taken in three months (Aug 2010).

wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 8/17/2010 3:20 PM (GMT -6)   
I had read the thread and understand why it was yanked. We should all be careful about pushing or in this case scare, someone to a decision. We should offer our experiences, explain if they are confused but be clear what is good for one goose might not be good for another.

I think the vast majority of the people on this forum go our of their way to make sure a person knows a decision on treatment type is a very personal decision.

I give the moderator a yeah

I wonder sometimes if I made the right decision but only time will tell.
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.

JoeFL
Regular Member


Date Joined Oct 2009
Total Posts : 420
   Posted 8/17/2010 3:37 PM (GMT -6)   
Thanks for unlocking and thanks to Tud for raising the question. The flow of information should not be blocked because some poster makes an ill advised comment that lands outside the "normal" range of the bell curve. As long as the dialog doesn't get profane or personal, I can deal with opinions that I might not articulate the same way. 

Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4274
   Posted 8/17/2010 6:49 PM (GMT -6)   

Peter, thanks for your consideration.  Your willingness to listen to members is part of what makes this such a great site!

Steve, I think you missed the point of my original post or perhaps I didn't express it clearly.  I am certainly not suggesting that we not follow forum rules...that should be self evident.  It is Peter's party and he makes the rules, period.  However, other threads have continued with far more abrasiveness and rancor and have been left to find their way.  I simply thought that should have been the case with this one and...at the end of the day...I'm pleased that Peter and Tony agreed.

Tudpock (Jim)


Age 62, Gleason 3 + 4 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 4/10/10.  6 month PSA 1.4 and now 1 year PSA at 1.0.  My docs are "delighted"!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/17/2010 7:00 PM (GMT -6)   
In all, it was a good day at HW
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39

Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 8/17/2010 7:03 PM (GMT -6)   
This is not the first time censorship has raised its ugly head here. It was another period awhile ago I was banned and my original user name erased from HW history. Being politically correct does more harm than good IMHO. I applaud whoever unlocked the thread.

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/17/2010 9:17 PM (GMT -6)   
Thank you, Ziggy.
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 8/17/2010 11:31 PM (GMT -6)   
I too am an advocate of free speech. Nevertheless, sometimes some comments are over the top and a worthless contribution. However some of the input of a particular member re. surgery were quite beyond the pale. They were of no value to the brachytherapy discussion. To describe surgery as "butchery" is not only erroneous, but may well deter someone from seeking further information on that treatment option. It simply is not necessary to denigrate one option in order to boost your argument in support of another. On another note, I have been on this forum for quite a while but I have never seen a post which described believers as "freaks" (was I asleep?). Use of such a term actually undermines the position that a forum such as this is not the appropriate place to proclaim your particular deity.
Bill

Post Edited (BillyBeans) : 8/17/2010 10:35:40 PM (GMT-6)


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 8/18/2010 6:20 AM (GMT -6)   

Jim – sorry about my take no prisoners attitude. I can now see that my attempt to support the site came out harsher then I intended.  


Age 55 - 5'11" 215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6
06/25/08 - Da Vinci robotic laparoscopy
05/14/09 - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.

Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4274
   Posted 8/18/2010 9:44 AM (GMT -6)   

Steve, thanks...I understand.  I think most of us feell protective of "our" site.

BillyBeans, I appreciate your postion but respectfully disagree as I believe "no value" and "worthless" are in the eye of the beholder.  While regal's descripion of prostate surgery as butchery is not a term that you or I might use it did accurately portray his passionate OPINION of the procedure.  Despite the inflamatory nature of the word I'm not sure his use of it was any more harmful to a new members than those posters who urge new members to "get it out" or a recent poster who asked as AS patient "...what are you waiting for...metastasis?"

And, though you may have missed the anti-religous poster who referred to believers as "freaks", it did happen and was not the first time that poster ridiculed people of religion.  But, while my OPINION of that poster is that he is intolerant, I don't believe his viewpoints are "worthless" nor do I think his posts should be pulled or the thread locked because of a little controversy.

Tudpock (Jim)


Age 62, Gleason 3 + 4 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 4/10/10.  6 month PSA 1.4 and now 1 year PSA at 1.0.  My docs are "delighted"!
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