New Surgery Date Set

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/18/2010 4:36 PM (GMT -6)   
Got a lot of dr's appts ahead of me.  My uro/surgeons scheduler called me today.  My next major surgery is set for 10:00 AM on Thursday, September 23rd at St. Francis Hospital in Greenville.  It will be his only surgery of that day.
 
I have to have bloodwook done for my GP on Aug 24, and then a full physical by my GP on Aug 31
I have to have a special consultation with my Uro/Surgeon on Sept 17
I have Pre-op at the Hospital later that day on Sep 17
Then surgery on Sept 23.
 
Kind of a few hoops and whistles to get through between now and then.
 
It's kind of good and kind of scary at the same time, I feel about how I did a month before my open RP.  Problem is, I know far more about what is going on with my PC this time around, and why I am in this situation now.
On top of this, my ex-boss and the District Attorney's Office in G-ville still might need me to testify as an Expert for the Prosecution in a much delayed embezzlement trial of a former employee of my ex-boss.  Told him today, they need to make it before my next surgery, as I may be out of pocket to testify for many weeks after the surgery.
 
I appreciate any thoughts and strength from my brothers and sisters here in the weeks ahead.  I don't have a problem with the prayer word on my behalf.  No offense intended toward my non-believing friends or those of other faiths.  I just need all the help I can going through with this next ordeal, and it will be a lifestyle changer at best, and no-replay button if I choose wrong or if things get complicated.
 
What concerns me a little is what poor physical shape I am at right now.  I was at my peak of health when I underwent my open RP in November of 2008.  Little by little, I have gone down hill in a bucket since then.  So I know it will be hard when I get to the other side of this one.
 
My uro/surgeon is going to make arrangements
for me to enter the Oncology Rehab Program at the same hospital.  I intend to make good use of that, as I have to somehow fight to become strong again. Right now, I am like a loaf of fresh white bread on a shelf.
 
Thanks in advance, as far as my PSA possibly being on the rise after SRT, nothing I can really do about that now, even my dr said we have to wait for November's reading, and hope that it leveled off or goes down slightly.  If it goes up at all, then I will be in the same valley as our dear Brother Sonny.  That's why I have watching these HT threads closely.  Although it is still my firm intention not to go down that path, I am still with the luxury of not having to choose that course of action.  Meanwhile, I intend to "study" it to death like Sonny is doing.
 
David in SC
 
 
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Post Edited (Purgatory) : 8/18/2010 4:51:19 PM (GMT-6)


RayPat
Regular Member


Date Joined Apr 2010
Total Posts : 104
   Posted 8/18/2010 4:46 PM (GMT -6)   
David, you will be in my prayers daily.
I'm sure even those who may be offended will be wishing only the best for you.
Age 63

01/26/10 ...PSA 9....Referred to urologist
02/26/10 ...Met with urologist ...DRE normal but wanted to do biopsy
03/26/10 ...Biopsy done. 14 samples...3 positive on right side...all 11% Gleason 3+3
Urologist said stage T-1c.
Advised treatment. Said either surgery or radiation should work well.
4/26/10 Met with radiologist. Decided on Brachytherapy.
5/20/10 volume study done all looks good for Brachytherapy.
6/22/10 Brachytherapy done.
6/29/10 Not as quick a recovery as expected. Catheter in for a week. :>(

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/18/2010 4:51 PM (GMT -6)   
Thank you Ray
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 8/18/2010 4:56 PM (GMT -6)   
David, hang in there. Will be thinking of you and hoping that this surgery will finally give you some relief. It sure looks like the right thing to do on paper. Squid.
*Age 63, PSA July 2009 .66; Biopsy: 2 of 12 cores positive, Gleason 3 + 5
*open Surgery 10/22/09
*Post Surgery Biopsy Gleason 4 + 3; 2 positive margins
*03/11/10 - Bladder neck surgery for stricture
*PSA - 30 day/.07, 90 day/.15, 180 day/.21
*07/27/10 - IGRT done - 39 zaps, 70 gys

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 8/18/2010 5:30 PM (GMT -6)   
David, glad to hear that things are firmly in place. As to the prayers, you absolutely have ours...in fact, you've had them for quite a while now.

Sending gobs of hugs and kisses from The Empire State.

Sephie & John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/18/2010 5:36 PM (GMT -6)   
Thanks, Subic, even my open RP looked good on paper and so did my SRT, but as they say, It happens, lol.

Thanks Sephie, to both you and John. If my beloved Red Soxs can't be the top dog this season, at least dont let those silly Rays take it from the Yankees. If I weren't a Sox fan, I would be a Yankees fan. That's the best you can get out of me,lol. And thanks of course, for the prayers.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

cooper360
Regular Member


Date Joined Jul 2010
Total Posts : 161
   Posted 8/18/2010 5:45 PM (GMT -6)   
Hope all goes well for you! I'll keep you in my thoughts & prayers!

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5834
   Posted 8/18/2010 6:10 PM (GMT -6)   
You will be very happy at the results of this surgery and will adjust nicely to this lifestyle change of yours, I'm a betten! Just tough out the recovery, try not to fret about the cancer, psa and all that junk. Then get back in shape, it will take time, baby steps. Do physically what you can do. When you can, work on cardiovascular fitness, exercise bike, walking, make it a part of this new life style which WILL get you to where you want to be. DO NOT let your all the junk work on your mind and stop you from creating a new and healthy life style. I can't emphasize that enough!!!! Do not let set backs set YOU back my friend. My prayers are with you and I believe they are already starting to pay off. Aloha!!
age 67 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of Washington Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
9% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 3+4 with tertiary 5, 2-3 foci, extensive PNI, That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
Dec 14,2009 psa 0.0 May 10 2010, psa 0.0

" Hypocrisy is vice's homage to Virtue " Francois de la Rochefoucauld, source courtesy of Tatt2

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 8/18/2010 6:25 PM (GMT -6)   
David,
I wish you all the luck, you sure need it. I'll pray for you every night. Van you do any exercising prior to the surgery?
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/18/2010 6:47 PM (GMT -6)   
thank you cooper and logo, sounds good

edc - not really, too much pain associated with my present condition, dr advises at this point to be on the recovery side of this op, and once the cath is totally eliminated, then work into the oncology rehab program. its really nice at this particular hospital, did it 10 years ago, interestingly, the woman that headed the program is still there and remembers me. its on the 10th floor of the hospital, and includes a nicely done indoor track that is 1/13th of a mile long, so obviously 13 laps to the mile. When I was there, t hey had the best of the best of equiment and gear. also met a lot of nice cancer patients when i did this before. but, i have to get past this point, and get to my new "other side" first. i am hoping to be a new and better person by this year's holiday season starts up. thats my goal.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 8/18/2010 6:50 PM (GMT -6)   
Dave may this be the beginning of the end.

Hey I got my original name back. aka Realziggy Thanks Jim

Post Edited (realziggy) : 8/18/2010 6:59:40 PM (GMT-6)


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 8/18/2010 6:59 PM (GMT -6)   
David,
You have my heartfelt best hopes and wishes for an outcome that will restore you to your former glory and I for one, will take much pleasure in reading about your future escapades.
Bill

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 8/18/2010 7:15 PM (GMT -6)   
David,
I am just happy to see a plan of action that just might bring some much needed relief. Shoot, we can send a truck load of prayers your way if that is what it takes. You name it, you get it. The fitness will return if this is the answer, so you might struggle awhile but when progress sets in the fitness will return as well. I guess no lunch for us until October, but that is okay my friend.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael

qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 8/18/2010 8:32 PM (GMT -6)   
David

I am sorry to hear you need do a major surgery but hope this one will give you a much better outcome. Many many prayers from us!

Jennifer

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/18/2010 8:37 PM (GMT -6)   
thank you realziggy, michael, jennifer, and billy beans
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 8/18/2010 9:15 PM (GMT -6)   
Hi David,
 
I'm sorry that things haven't worked out better for to this point. I'm wising you all the best on your forthcoming surgery which will hopefully bring your situation to a resolve that is acceptably to you.
All the best old friend. I'll be thinking of you on the 23th Sept.
 
Mag

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 days - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09 <0.04; JAN 10 <0.04; Jul 10 <.04

Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 8/18/2010 10:02 PM (GMT -6)   
Hi David,
I'm glad you have your surgery date set. I bet by Thanksgiving (after healing, any PT, and basically getting used to the new device), you'll feel so much better, and much better than you have since your RP surgery.

Hoping the best for you!

Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 8/18/2010 10:05 PM (GMT -6)   
Oh, forgot to say, David if you want to study HT, buy the book by Myers, "Beating prostate cancer". I highly recommend it.
 
 Not only does the book discuss various HT treatment, but it also discusses diet and PC.

Post Edited (Squirm) : 8/18/2010 10:13:00 PM (GMT-6)


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 8/18/2010 11:51 PM (GMT -6)   
Hi David,

I'm sorry that there is one more major surgery, but here's hoping that it is MAJOR GOOD for you! yeah

You deserve the best care from now on. I'm glad it's the doctor's only surgery that day. I like hearing the focus will be on you and only your well-being.

Your chosen surgical procedure seems to have excellent results, according to the medical literature.

Prayers and good wishes are flowing out for your welfare, my friend.

Kind regards,

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
3/'10 <0.04; Latest PSA 6/'10 <0.01

Franchot
Regular Member


Date Joined Jun 2009
Total Posts : 130
   Posted 8/19/2010 1:37 AM (GMT -6)   
David,

Good luck, my friend. Although I don't post very often, I always read your posts and marvel at your resilience through all you've been through. Wishing you AND your surgeon much success on your day of surgery.

dogbot
Regular Member


Date Joined Aug 2009
Total Posts : 147
   Posted 8/19/2010 1:54 AM (GMT -6)   
David, I really hope that you now have a solution to your ongoing problem, and I send my very best wishes to you for the future.
 
All the best from England.
Diagnosed February 2009. Gleason 6, Psa 7.2, 12 core biopsy, and then Mri scan, which showed organ specific.
DaVinci at Addenbrookes, Cambridge, England 18th May 2009.  Nerves removed one side.
Catheter in for 8 days, no pain, no post op problems apart from an infection, cleared with antibiotics.
Some aching around the penis, which still occurs.
6 week psa 0.1, post op pathology all good, confirming pre op tests. Ed a problem, no treatment as yet.
Light ladies pad during the day, just to control a slight dampness and a Tena for  men pad at night for occassional leakage.
Awaiting 3 month consultation at the moment.
Sept 09 - still awaiting consultation. 99% dry during the day, tena pad at night just in case.
Sept 18th 09. PSA less than 0.1
Sept 29th follow up consultation at Addenbrookes. Staff happy with progress.
Nov 11th update. One small stress dribble in the last 2 months. Still some muscle stiffness in pelvic area.
March 20th psa less than 0.1 Very occassional stress dribble. No pads for several months.
 

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 8/19/2010 5:07 AM (GMT -6)   
David -
so glad to hear this new part of your journey is gelling and taking shape
.... some time ago we spoke about visualisation of the situation as part of healing - focusing on the positive results of the surgery and your recovery - in other words - healing with positive thoughts.... this may or may not part of your Oncology rehab - VERY pleased to hear about that ...

- with reading between the lines of your original post, the end of the rope/ the stuffing must be finally knocked out of you ... to accept "the prayer word on your behalf" ...
... in a metaphorical tone, David.. this extended family of yours at HW are like angels on earth holding you up with their love and support so you can continue on this journey.....

-best wishes
hugs
BRONSON
Age: 54 -gay with spouse, Steve - live in Peteborough, Ontario, Canada
PSA: 10/06/2009 - 3.86
Biopsy: 10/16/2009- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/2009
Pathology: pT3a- gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
Post Surgery-PSA: April 8, 2010 - 0.05 -I am in the ZERO CLUB - hooorah!
Next PSA: October 8, 2010 -TBA

rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 8/19/2010 5:19 AM (GMT -6)   
It is good you have a plan and the surgery scheduled. You know best what to do and I hope the suffering will be over soon. Iknow it is going to be tough but hopefully there is life at the end of the tunnel.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue

t-dog
Regular Member


Date Joined Dec 2009
Total Posts : 154
   Posted 8/19/2010 7:22 AM (GMT -6)   
Right on David, i read up on this deal after you first mentioned it and really sounds like the best thing for you to get your life back on track. All the best brother, Tim
Dx at 50 in 12/09 Merry Christmas its cancer....
3 of 12 positive, right side only, psa at dx 2.6 free%14
gleason 3+3=6
routine physical, no symptoms
Da Vinci performed Feb 2k10 by Dr Marc Milsten [hes got mad skills]
99% continent from cath out, mr happy fully functional at 2 weeks out!
path showed same gleeson with no other blips other than one slight margin, organ confined 20% right, 5%left, 34grams
Hernia repair Mar 2k10, hernia was side effect of the surgery
30 day psa 0.03- 90 day psa 0.01

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/19/2010 9:50 AM (GMT -6)   
magabo, thanks my friend, for the kind words

barry, thanks too, its a well used and proven method over the past 70 years

thanks to, to fran and dogbot, appreciate it

bronson - i have been a man of faith for half my life, i try hard to stay within the acceptable bounds of religion and the rules here. i grew up in a family and atmsosphere of pure athiesm, the first half of my life, i was one too, then i found faith, became a baptist for over 20 years, and then to my entire family's surprise (not in a good way), became a convert to the Roman Catholic Church, of which I still am. I even have over 2 years of theological training in my background, including a working knowledge of greek, hebrew, and latin. but i respect the rules here, as this is Peter's place.

thanks to, to tdog and rob as well
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.
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