A significant set-back in our battle with cancer

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 8/20/2010 6:25 AM (GMT -6)   
My brothers, sisters, friends and supporters,

As I told you all recently, when asked by my MDA counselor who my support group was, I quickly responded that it was you folks here at HW. So once again I must turn to you guys to air it out a little. Thank you for being here and thank you for letting me share.

I have not had a recent PSA test and my next meeting with the Onco is not scheduled until Sept. 10th, so there is nothing really new on my front.

However, as most of you know, my wife Lynn is also in a battle with cancer. She has been dealing with Multiple Myeloma since Novemeber 2005. She has certainly had more than her fair share. As I have said before, be it right or wrong, I have tended to minimize my cancer and struggles because I can't help but compare my issues to those that she has endured. Toxic drugs, drug caused stroke, radiation, stem cell transplant, repeated hospital stays from a compromised immune system, and constant pain from bone damage throughout her body.

Well it seems that once more she most go back into the battle full force.

We met with her Onco yesterday to review the latest in a series of tests that she goes through on a regular basis. Her body is not responding well to the current maintenance drugs she has been taking. She has been taking via pill form Revlimid and Dexamethsone.

The doctor told her she is to quit taking those drugs and let her body cleanse. The drugs she has been taking have worked well to keep her numbers down and they have done so with relatively minor side effects and QoL issues.

Now she has to start taking different drugs. These drugs are not so kind. They are much stronger and as such bring what can be debilitating side effects with them.

He wants to try a six month regimen of three drugs. Melphalan, Velcade and Prednisone. This combination has been used successfully for quite a while in treating MM. But, this combination really plays hell with weakening the immune system, making her much more susceptible to infections, pneumonias and so on.

One of the drugs must be delivered twice a week, intravenously. Just the wear and tear of going to the hospital 2 days a week for 6 months can be tremendous on her.

So my friends it would appear that our plans for the great "Northeast" trip in the RV are going to be canceled. So too will be my attendance at the Second Annual GFMPH Weekend.

Additionally, once again circumstances may dictate that my decisions about the treatment of my PCa will be taken out of my control. I have been researching and digesting information about HT and alternatives and whether or not this is something I can really sign up for. I have some very strong feelings about the changes they would make in me as a person and who I am. Seems like these considerations will become secondary. I will have to do what is necessary to allow me to be here for Lynn and supply the energy as caregiver that she will need to get through this.

I already had a meeting scheduled today with a MDA Nutritionist to discuss the things I can do to get back some energy and feeling of well being. After the Onco visit yesterday, I also scheduled another meeting today with the MDA Mental Health Counselor. As you can imagine I have a few things I need to get off my chest and say out loud. I like this lady and she is one helluva good listener. She deals with folks like us regularly and will help me put all of this in perspective I hope.

I am not here trying to cry on your shoulders, but you folks have been such strong supporters for both Lynn and I, that I felt compelled to share with you and bring you up to date.

Be well my friends and bless you all. Every Day is Still a Bonus, but today the sun is not shining quite so bright, the air does not smell quite so sweet, and there are a few storm clouds on our personal horizon,

Sonny and Lynn
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -performed
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.
7/22/10 PSA test 1.3 - Begin radiation for MET on leg
8/9/10 - Met radiation completed

RCS
Veteran Member


Date Joined Dec 2009
Total Posts : 1247
   Posted 8/20/2010 6:35 AM (GMT -6)   
Sonny,
 
I am so sorry for what you are going through ... best wishes and good luck.
PSA 2007 - 2.8; 11/24/2008 - 7.6; PCa Dx 2/11/09; age at Dx 62; RLP 4/20/09

Biopsy - Invasive moderately differentiated prostatic andenocarconoma; G 3+3=6; PT2C; No evidence of Seminal Vesicle or Extraprostatic Involvement; Margins clear; Tumor identified in sections from prostatic apex. 70 gram prostate. Continent after removal of cath.

ED - Trimix works well; levitra @ 90%
PSA - 7/31/09 <0.06; 12/1/09 <0.06; 3/29/10 <0.06; 8/4/10 <0.06

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/20/2010 6:54 AM (GMT -6)   
Unbelievable what protocols and trials we face in fighting diseases/cancers and the toll it takes on family and friends and loved one(s). I would think it would be hard to remain less than a basket case with so much piled on ones plate, you appear to be strong in handling it all and bravo to you...that cannot be easily matched by all patients in similar circumstances.

Kind of at a loss of comforting words, try to maintain yourself as you struggle with both scenarios simultaneously.

(A group hug is in order) ))))~S~((((
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35 normal, ct and bone scans appearing clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off for 1 yr., controlled so well, resumed, using intermittently, pleased with results

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 8/20/2010 6:56 AM (GMT -6)   
Sonny, I read your posts and think "what an amazingly eloquent man he is." Your posts are poetry and paint such a beautiful picture of the special love that you and Lynn share.

On a more personal note, we are so very sorry to hear of Lynn's latest setback and the fact that she must submit to what sounds like an aggressive therapy. We can only hope and pray that these drugs will bring the results you are all hoping for without too many of the harsh side effects.

Words simply cannot convey the love and strength that we are sending to you and Lynn. And, of course, tons and tons of prayers on behalf of you and your dearest wife.

Hugs and Kisses from Sephie & John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!

gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 8/20/2010 7:46 AM (GMT -6)   
Sonny I just came from vacation and want to know what is going on. I feel so sorry for you and your wife,and at the same time happy becouse you have each other.I have you both rigth now in my prayer. that God be with you in this
dificut time.God bless you both.
DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 

Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 8/20/2010 8:24 AM (GMT -6)   
 
 
Sonny,
 
MJ and I are so sorry to hear of Lynn's latest set back, hopefully this new round of treatment will work and not be too hard on her with side effects.  You also need to do what is right for you so you can be with her in this fight.
 
Our thoughts and prayers are with you both.
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8 Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report 4+4 = 8 Lymph nodes on both sides negative
margins Negative Stage II (pt2a)
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
3/6/09 6 Month PSA 0.0
6/3/09 9 month PSA 0.1
7/14/09 PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck
11/16/09 PSA 0.3
12/14/09 PSA 0.4
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th.
Finished IMRT
First PSA after 3 mos. 1.5 not good news

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6981
   Posted 8/20/2010 9:31 AM (GMT -6)   
Sonny,

With all this those qualities of the "big brother" I saw in your first posts are still out there.
It seems that we don't get to control anything anymore. I wonder to myself how I would deal with all of what you have in front of you, or if I could.

My best to both you and Lynn. I will be keeping you in my thoughts and prayers.

Don't ever worry about leaning too hard. Us kids are here to do our part when we can.

John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4237
   Posted 8/20/2010 10:26 AM (GMT -6)   
Sonny,
Best of luck to both you and Lynn. never give up hope.

JohnT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 8/20/2010 11:04 AM (GMT -6)   
Sonny,
 
Sorry as well to hear the news.  I guess some thanks are in order to have an oncologist on the job who is on top of Lynn's situation, and not just following a maintenance regimen.
 
Aside from all that, us guys who are coping with our own situations, cannot imagine the stress and anguish you are being subjected to.  I am thankful you are seeing the counselor folks at MDA.
 
Have you considered checking into home health care for administration of the drugs ?  Sometimes insurance will pay to have a nurse come to your home and administer IV therapy.  It actually may be cheaper for them to do so.  I think that based on Lynn's situation, you may be able to qualify for that if the doctor prescribes it. 
 
Another solution is the installation of a PIC line, which they may do anyway, so that all that is required to do the IV is hang the bag, and attach the tubing to the PIC line.
 
God bless you Sonny.  I was looking forward to meeting you in New York.  I guess that will have to wait.

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 8/20/2010 11:20 AM (GMT -6)   
Hi Sonny and Lynn,
 
I'm so sorry to hear that things are not going as well as hoped for both you. It's a shame that bad things always seam to happen to the best kind of people. Sometimes I really wonder if there is any kind of justice in this universe. I'm deeply touched by your story and my thoughts and sympathies are with you. The love that you have for each other will help you through these trying times.
I'm hoping and wishing for the very best for both of you.
 
Mag

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 days - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09 <0.04; JAN 10 <0.04; Jul 10 <.04

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 8/20/2010 11:40 AM (GMT -6)   
Sonny and Lynn, I am so sorry for your turn of events health wise. Know that we are always here whenever you need a shoulder or a hand..
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 8/20/2010 3:56 PM (GMT -6)   
Sonny,
I'm so sorry about the news on Lynn. Sometimes we wonder why these things happen to wonderful people like you. I pray that the new drugs will work for her without too much side effects and that you will have the energy and resolve to deal with the whole thing. I'll be praying for you and Lynn.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7212
   Posted 8/20/2010 5:06 PM (GMT -6)   
Sonny:
 
This is terrible news. You and your wonderful wife are in my thoughts.
 
 
Mel
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. Next PSA late Sept.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/20/2010 5:34 PM (GMT -6)   
Sonny, nothing more I can add, but to add my name to all the sentiments of the brothers and sisters here at HW. I know this is a very negative turn of events, and that you must do what you have to do. When you are up to it, please give me a call.

My heart goes out to both of you. My wife was shocked equally when I told her the news of Lynn.

May you find peace in your heart.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 8/20/2010 7:06 PM (GMT -6)   
Sonny I have followed your journey and read the updates you have given about your wife. She most certainly is a fighter and has an excellent man to back her in her struggle. I sincerely hope the side effects of her current treatment ease and knock her Myeloma right on its backside and allow you both to get back to planning the next great trip.
My best wishes to you both,
Bill
Biopsy

4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007

Post-op

Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct '07 <0.1 undetectable
PSA Jan '08 <0.1 undetectable
PSA April '08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August '08 <0.001 undetectable (disregarded due to lab "misreporting"-----it is not possible for any lab to get a reading of less than .003)

Post-op pathology rechecked by new lab:

Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September '08 <0.01 (new lab)
PSA February 09 <0.01
PSA May '10 <0.01

www.yananow.net/Mentors/BillM2.htm

Never underestimate old people ............ you don't get to be old by being stupid.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 8/20/2010 7:35 PM (GMT -6)   
SONNY AND LYNN:
We are sorry to hear of the setback in Lynn's health and your quandary about your own health matters ...
you are in our thoughts and prayers
- will be having a special chat with our backyard chickadees to see if they can arrange the blue bird of happiness to visit you once again....
-sincere hugs
BRONSON & STEVE
Age: 54 -gay with spouse, Steve - live in Peteborough, Ontario, Canada
PSA: 10/06/2009 - 3.86
Biopsy: 10/16/2009- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/2009
Pathology: pT3a- gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
Post Surgery-PSA: April 8, 2010 - 0.05 -I am in the ZERO CLUB - hooorah!
Next PSA: October 8, 2010 -TBA

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4110
   Posted 8/20/2010 7:54 PM (GMT -6)   
Sonny and Lynn, Pat and I send all our love and strength in your direction. I know this is a very difficult time. Know that we love the 2 of you so very much and feel your pain.

Peace be with you both.

Your Brother in PC
Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
Only issue at this time is ED

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3734
   Posted 8/20/2010 8:48 PM (GMT -6)   
Sonny,
My heart goes out to you and Lynn. Life sure is strange.
If you ever need a diversion our place is always available.
Jeff (the leaking one)

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2229
   Posted 8/20/2010 9:01 PM (GMT -6)   
Sonny and Lynn,
Sorry to hear the latest news. Just walked in and thought I would check the forum and it is oftentimes the very first thing that I do. So we are like family, if you will, and most of us probably feel like we know you and Lynn quite well and would like to know you better and longer. So with that in mind you both are in my thoughts and prayers.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael

Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 286
   Posted 8/20/2010 9:18 PM (GMT -6)   
Collectively we'll do everything possible to boost your and Lynn's spirits and pray the harsh effects of the latest treatment are short-lived.

Our best to you and the others,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy, psa at 6th week salvage IMRT up to .4
Post SRT psa at 10 weeks (5/31/2010) down to .2

Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 8/20/2010 10:07 PM (GMT -6)   
Sonny
 
I am so sorry for this terrible news  I wish you both the best
 
Ray
 
Diagnosed 9/09 at age 54
PSA 6/09 1.3
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
Surgery 1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10
Post OP Pathology Report Gleason score upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
POST OP PSA 4/10,8/10 <0.1,
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night , 3 Months mostly dry 0-1 pad per day,6months 99% dry
ED - yes but seeing some improvements - levitra 10 mg 2x week ,Viagra 3 months 100 mg almost daily , 6 months two times week

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 8/21/2010 5:15 AM (GMT -6)   
My friends, thank you all for allowing me to visit the "Well of Never Ending Support" once again. Your kind words, prayers and encouragement bring comfort to Lynn and I.

We'll get through this I am sure. Doing chemo of any sort is always tough to take, even if the side effects are mild. I think Lynn and I were most annoyed at first because of the thought that we would have to cancel our much anticipated trip to see the north, feel a little cool air and experience the fall colors.

On an personal note, I am really bummed about not getting to participate in the GFMPH weekend. I was really looking forward to seeing Mr. Wizard's Lab, shooting stuff and blowing stuff up. Maybe next year, who the heck knows.

Be well all of you, as always you and your families continue to be in our prayers,

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -performed
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.
7/22/10 PSA test 1.3 - Begin radiation for MET on leg
8/9/10 - Met radiation completed

dsmc
Regular Member


Date Joined Jul 2008
Total Posts : 149
   Posted 8/21/2010 7:13 AM (GMT -6)   
Hi Sonny,

I am very sorry to hear the news about Lynn. I know this is but another bump in the road for ya'll.

After the summer we have had I know you were looking forward to some cool weather....bummer.
You 2 are in my prayers!

David
Age 55
Pre-op PSA 4.3
Surgery Feb. 17 2005
Post-op Path : Gleason 3+3=6
Right pelvic lymph nodes: negative for metastatic carcinoma
Left pelvic lymph nodes: negative for metastatic carcinoma
extent: right lobe 40% left lobe 10%
capsular penetration: Absent
Seminal vesicles and vasa differentia: Uninvolved
Prostate: 26 grams
Post-op PSA's <0.04 for 3 years
Feb. 08: 0.07, March 08: 0.08, June 08: 0.09 and Sept. 08: 0.1
IGRT scheduled.....November 17th....
FINISHED 01/14/09
05/14/09
1st PSA after SRT <0.04
12/03/09
2nd PSA after SRT <0.04
06/03/10
3rd PSA after SRT <0.04

deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 8/21/2010 8:46 AM (GMT -6)   
Not very much I can say that hasn't been said but we are here for you all the time. Our prayers are for you and lynn. We just live life one day at a time.
BUCKY
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  
6/17/10 saw rad.onc. having problems with hips and muscles {bone density test sch, 6/25/10 wait and see

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/21/2010 1:16 PM (GMT -6)   
Sonny, I too have been away for a couple of weeks and am distressed to hear that Lynn, and yourself, have yet another battle to face. Every day is a bonus for all of us, but I assure you the sun isn't so bright for me today and my air isn't as sweet knowing these storm clouds hang on your horizon.

I wish there was something meaningful and tangible I could provide and I know all here feel the same and also feel my frustration at being so impotent to do anything except send my heartfelt best wishes and assurances of my ongoing prayers.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  
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