New member here, no PCa...yet..

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wnt2fly2001
New Member


Date Joined Aug 2010
Total Posts : 3
   Posted 8/23/2010 9:02 AM (GMT -6)   
Hi guys, I wanted to introduce myself and get some input from some of you if possible on laser TURPs.   I'm a 41 year old male, do not have prostate cancer...yet ( I say yet because my grandfather and father have both had it, father made a full recovery, grandfather passed away in 1996).   I couldn't find a "urology" forum on here so felt this was probably an appropriate place to post.
 
I have apparently been suffering from many years of chronic urinary retention due to a tight bladder neck.  In late July he found I was retaining around 1300ml urine after voiding and sent me home with a catheter to let my bladder rest a week or so and then followup with urodynamics testing and cystoscopy.  After 4 days I was able to get in for the urodynamics and pretty much had normal bladder sensation when around 200ml were in, but was unable to void anything.  The test did show I was having bladder contractions with a few uncoordinated spasms.
 
   When the urologist did the cystoscopy a couple weeks ago he said the inside of my bladder looked like it belonged in an 80 year old man with a prostate the size of an apple.   He recommended doing a TURP and/or bladder neck incision and felt like things could improve from that. 
 
Long story short, I had the laser turp last Tuesday, he did try the bladder neck incision first, but didn't get enough of an opening, so he did remove a lot of the prostate tissue also. Went home with a very large (to me anyway) catheter, and went back last Friday for a voiding test and the nurse was able to get 200ml in there before I started needing to go.  Didn't have a strong flow, but was able to eliminate around 110 ml of that.  Doc was fine with that and sent me home cath free !  First time in a month, it felt soooo goood !!!!!  
 
Friday night into Saturday morning, things started locking up again, felt like I had to pee every 5 minutes and was getting really uncomfortable.  Went to the ER, had another cath inserted and drained 650ml.   I have a followup scheduled with my urologist tomorrow.  
 
I've been reading a lot on the internet about post- op swelling, etc, especially with laser turps.  Seems my urologist (as has been my experience with a lot of doctors) doesn't really inform patients what to expect.  I'm hoping this little episode with retention the other night is due to swelling and isn't going to be a life long thing.   I really don't enjoy the idea of self-cathing several times a day, but at this point am willing to try so I can get my life back and get rid of this darn tube and leg bag!  I'm so used to being active, running or biking almost daily and haven't been able to do any of that for the past month.  It's actually getting me depressed...
 
Anyway, as another poster has just posted, I'm glad, but sorry, that I found you guys. PCa definitely stinks and I wish no one had to go thru what my father and grandfather had to endure.
 
Darrell

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/23/2010 9:22 AM (GMT -6)   
Apparently Flomax was never suggested or a real useage idea? When I was diagnosed with total urinary blockage in an emergency room, after the catheter fun and filling more than one larger bag there. Got sent home with a Rx for Flomax...lucky in my case worked great and cut off the hose to the catheter after like 7 or 9 days instead of recommend uro-docs 14 day and then office visit thereafter, whereby he noticed I had removed it. Never looked back on that, looking forward was much worse but not for urination, loaded with PCa big time. I don't have answers for you, maybe someone herein does whom has traveled that road. You might also post this at www.yananow.net (forum) and there are guys whom have done Turps and such therein, Terry H. may know plenty on this.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35 normal, ct and bone scans appearing clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off for 1 yr., controlled so well, resumed, using intermittently, pleased with results

wnt2fly2001
New Member


Date Joined Aug 2010
Total Posts : 3
   Posted 8/23/2010 10:55 AM (GMT -6)   
Thanks for the link to the yananow site zufus. My doc did try me on uroxatral which worked wonders, however the side effects were too bad and I quit taking it. Really got tired of the dry sinus headache everyday, rapid hearbeat in the mornings and breathlessness with the slightest exertion. Rapaflo did nothing, we never tried Flomax since he said it's basically the same as Uroxatral and has the same side effects. I was also taking saw palmetto which was helping some, but the uro became concerned when I was retaining so much and pretty much said something had to be done asap.

Darrell

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/23/2010 1:46 PM (GMT -6)   
Weird side effects you got, atleast you tried them, I am uncertain if the doc is correct in saying Flomax is the same as uroxatral. I have seen docs say alot of things to patients that turned out to be misnomers or even incorrect, this might be right herein, I don't know. I had no side effects on Flomax and about worshipped its results, but drugs can be different for different users.  Have you tried google searching for info already?
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35 normal, ct and bone scans appearing clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off for 1 yr., controlled so well, resumed, using intermittently, pleased with results

Post Edited (zufus) : 8/23/2010 12:53:47 PM (GMT-6)


fertree
Regular Member


Date Joined Jun 2010
Total Posts : 118
   Posted 8/23/2010 6:38 PM (GMT -6)   
I was given Hytrin when my problems started, although they weren't as severe as yours. That was 20 years ago, before Flomax was around. It worked well for me. When Flomax was in vogue they switched me to that, but it did no good at all, and back to Hytrin I went, although the uro was sure Flomax was the be all end all. After the RP, when a bladder stricture developed and the flow was down to a drip I went back on Hytrin while waiting for the surgery. The uro said it wouldn't help, but once again it made a real difference. You might try that.
PSA 2.1 on Avodart
Biopsy: 1 of 12 cores positive >5%, Gleason 8
open RP: 05/10/2010 Dr. Gary Steinhoff, Victoria BC
Pathology: pT2c Gleason 3 (80%) 4(20%)=7, no lymph invasion, no extraprostatic extension, negative margins, tumor 5% of tissue.
Nerve bundles removed (based on original Gleason 8)
Incontenence: 6+pads for 9 weeks, dropped to 3 pads in 1 day.
First PSA >.01
Urethral Stricture requiring additional surgery Aug 20 (darn! If I'd known I was 80% Gleason 3 I could have gone for the robot, saved the nerve bundles and bypassed the stricture issue! In my next life, I'm having that biopsy sample checked twice!)

wnt2fly2001
New Member


Date Joined Aug 2010
Total Posts : 3
   Posted 8/23/2010 10:00 PM (GMT -6)   
@zufus: Yep I've become the "google king" for the past couple days reading about post turp complications, etc. Seems the procedure works well immediately for some people and then there are some still having complications 4 weeks or more afterwards. One site even suggested swelling could be a problem for 7 to 10 days afterwards and a catheter would need to be worn. I'm thinking (and hoping) he just had me remove the catheter too soon.

@fertree: Thanks for the Hytrin suggestion, I'll ask tomorrow when I go back for another follow-up. Hopefully I won't need anything like that as the turp will have done its job.

Over the past month I've came to the conclusion that prostate problems can certainly put one on an emotional rollercoaster...

Darrell
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