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compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 8/23/2010 5:31 PM (GMT -6)   
Isn't it amazing! Almost exactly a year ago, my world as I knew it started crumbling. My routine physical exam indicated a rising PSA. I won't go through my history (although some of it is in the abbreviated signature below -- I really wish they would allow more than 400 characters!).
 
Anyway, I then started seriously researching PC, especially after a pretty bad PCA-3 test result. I remember being nervous as he** and very scared (out of character for me). I was deeply shaken. I also remember getting a lot of responses kind of chiding me for doing so much research so early, well before my biopsy. But I knew that if I didn't, and I got a dx. of PC., I would not function well at all just when I needed a clear head. So, I studied a lot. I had my biopsy on 11/30 and got the dreaded call that nobody wants on 12/2. Those 3 wonderful words, "you have cancer," still haunt me.
 
Anyway, the point of my post is that I am now reading similar comments from a new group of newbies. I just want to wish you all good luck. Eventually, some degree of normalcy returns. For me, doing the early research was EXTREMELY helpful. When I got the dx., I had a definite plan in place. I was able to speak with a surgery and radiation experts and I also had questions to ask.
 
Again, good luck to all.
 
Mel
 
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. Next PSA late Sept.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/23/2010 6:23 PM (GMT -6)   
Mel,

Your advice to our newest friends is right on. The more you know in advance, the easier it is to deal with one's PC journey. This knowledge in advance can help abate some of the inner fears and worries too, so it can help in that way. What is sad to me, having been here close to 2 years, is that we keep getting an endless stream of new friends, that's one reason why I keep sticking around, and the fact that my own journey won't go away. Once you have been through the fire of getting the PC dx, the treatment choices, the treatment(s), the side effects, etc, its only then that you can partly understand the fullness of having PC.

I think it was Bro. Zufus that really coined the phrase here, Knowledge is Power, and it's so very true.

Hope you are still doing well yourself. In your early days here, with the level and quantity of your initial questions, I believe you helped a lot of people do some serious thinking about their choices and the consequences of their choices. That was of great value.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.
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