National Cancer Institute/NIH.

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erbob
Regular Member


Date Joined Jan 2010
Total Posts : 281
   Posted 8/24/2010 4:35 PM (GMT -6)   
As Casey59 indicated in the Best Treatment Centers thread, "The NCI/NIH are not treatment centers; the list of "best" centers are for treatment". I guess I kinda forgot that fact, but I have "been there - done that".
I participated in the NCI/NIH sarcoma study 29 years ago when they were still studying the effects of surgery, radiation with the combination chemotherapy of Adriamycin (Doxorubcin also known as "red devil") and Cytoxan (cyclophosohamide) together to fight some nasty sarcomas. The good folks at the NCI apparently have provided me with a 29 year survival SO FAR and even though I am that 29 year survivor, I still think of it almost daily and now have this blasted PC to think about EVERY single day.
Bob, located in Southern Colorado

Age 73 Retired Railroader.
Dx Jan 2010, Volume 51.345
Gleason 3+4=7, second opinion 4+3=7 (Don't know which to believe)
PSA
2.6 4/96.......... 3.7 4/07
1.9 5/97.......... 3.2 1/08
2.3 4/98.......... 6.1 4/09
2.2 10/99......... 5.3 5/09
2.4 8/00......... 5.3 8/09
2.3 6/01......... 6.9 10/09
2.9 2/03......... 7.3 12/09
3.6 4/04......... 6.1 1/10
3.0 5/05......... 5.0 3/10
4.7 4/06......... 0.7 5/10 (Lupron/Bicalutamide)
Volume study at CPCC (Westmont, IL) Feb 15, 2010 = 55.7cc
On Feb 15, 2010 put on 90 days of Bicalutamide
Got LHRH Lupron shot on Feb 29,2010
Another Volume study May 24, 2010 = in mid-40cc
BRACHYTHERAPY received May 26, 2010
Received 80 I-125 (Iodine seeds)
Activity per seed (mCi) 0.373
Total activity implanted (mCi)29.80
Measured exposure @ 3 feet (mR/hr) 0.06
Received the Brachytherapy at the Chicago Prostate Cancer Center from Dr. Brian Moran
Walked in the facilty and just a few hours later walked right out.
No after effects other than just a little sore from the needle sticks but NOT serious
enough to take ANY meds for pain.
PSA to be taken in three months (Aug 2010).

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 8/24/2010 10:55 PM (GMT -6)   
Hi, Bob and thanks for the interesting story.
Wishing and hoping for a good outcome with the procedure. Please stay in touch and keep us updated. I'm sure it would greatly benefit the newly diagnosed guys.
 
Mag

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 days - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09 <0.04; JAN 10 <0.04; Jul 10 <.04
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