Poll from Terry Herbert

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/26/2010 8:49 AM (GMT -6)   
Terry Herbert is taking a poll at Yananow.net. He posted this at our UsTOO Las Vegas Facebook website:

Terry Herbert: I'm working with Dr Chodak on a project aimed at highlighting the communicaiton between medical people and men diagnosed with prostate cancer. I've set up a MiniPoll at http://www.yananow.net/MiniPoll3.htm so please go along and complete it, it will take six clicks once you'fre there - less than 30 seconds I reckon

www.yananow.net/MiniPoll3.htm

Please visit the site and help the poor little Australian (who has no idea what football really is) guy out :-)

Tony

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/26/2010 9:28 AM (GMT -6)   
I did it, didnt take long
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/26/2010 10:58 AM (GMT -6)   
I think Dr. Chodak might be a role model for what a very good uro-doc or surgeon should be, since he poses righteous questions and would likely inform patients accordingly in his practice. My old uro-doc would need to go to Dr. C's school of informed urology, although he was well thought of and had plenty of patients and seemed very wise. He was far from expert level, as I later ascertained, liked him a bit, but after awhile had to fire him, had 3 strikes rule that he complied with, and glad I moved on. Good insurance has exceeded my expectations in dealing with whole thing.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35 normal, ct and bone scans appearing clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off for 1 yr., controlled so well, resumed, using intermittently, pleased with results

Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 8/26/2010 3:36 PM (GMT -6)   
Done it !
Age 52yrs
6 out of 8 cores positive 3 X 60% / 3 X 10%
PSA 4 Gleason Score 3+4=7 Stage T1c
Robotic Surgery 24/12/08
Upgrade Gleason Score 4+3=7 Gleason Differential 60%/40%
Stage T2c Three small foci total volume <10%
Neg Margins and Nodes
Nil - Extraprostatic Extentions
Dry less than 1 week. ED- okay with Meds.
PSA at 18mths no change remains 0.03
"Everyday in Every Way, I get better"

Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 374
   Posted 8/26/2010 3:58 PM (GMT -6)   
Done!

Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1
18 month PSA--<0.1

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 8/26/2010 7:36 PM (GMT -6)   
Done!
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
Only issue at this time is ED

Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 8/26/2010 9:22 PM (GMT -6)   
Ditto.
Bob

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/28/2010 9:49 AM (GMT -6)   
Bump...
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 8/28/2010 1:59 PM (GMT -6)   
Even I answered this survey...and I did so from my own perspective rather than from John's.

Thanks for posting this...the results look very interesting.

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 8/28/2010 2:02 PM (GMT -6)   
I did under Paul1959's posting earlier today. Sadly, no surprises.
J

bcc
Regular Member


Date Joined Oct 2009
Total Posts : 46
   Posted 8/29/2010 4:48 AM (GMT -6)   
i just completed the survey but i think it would have been more interesting if we had put our country down as i am sure the services will differ widely
PSA Aug 07 was 3, Mid 08, 3.5, mid 09, 7.27

First biopsy july 09 - t2a on left . 11 samples taken from 6 blocks. 4 blocks show positive for adenocarcinoma. 1 block 10%, 3 blocks 5%, overall gleason 3 plus 4. No perineural invasion seen. Seminal vesicles clear.

End Oct 2009, bone scan all clear, MRI shows 6mm lesion on bottom left and rest of gland diffused image. Late Nov 2009, a template biopsy of 32 from 20 sites adenocarcinoma, gleason 3 plus 4 at 10 sites; unfortunately spread over both left and right.had planned hifu treatment but spread of cancer reduced possible benefits.robotic radical undertaken by prof r kirby at the london clinic 16/2/10 in hospital 3 days .cath out 25/2/10.pathlab report -margins clear,gleason now 4/3 .tumor weight 62g tumor vol 1.7. stage now pt3a as carcinom invaded left posterior aspect 2mm .dry at night from when cath out, one or two pads a day depends on drink i think ..post op psa due 1/4/10.april fools day .

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 8/29/2010 12:51 PM (GMT -6)   
Done yesterday, so this will be a bump as well.
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