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midi
Regular Member


Date Joined Apr 2010
Total Posts : 122
   Posted 8/26/2010 11:03 PM (GMT -6)   
I was in the Hospital the first week of June with quite a bit of pain and
diagnosed with T4M PCa. They put me on Casodex right away and most of the pain
went away.

I started Eligard 6 month injection on June 12th and then was taken off the
Casodex due to hernia surgery on June 29th. In June my PSA was 341.
 
It took a few weeks to get over that and I was doing fine, back to work and
bike riding.
 
By the end of July PSA was down to 37 & both the Uro & Unco Doctors said everything seemed to be working OK & that I did not need to be on the Casodex still as that could be used later if needed.

However, this past Aug 17th I somehow stretched the area around the hernia and was in real bad pain and had trouble walking just like before I went into the Hospital. Went to see the surgeon and he said take it easy for a few weeks that I probably just strained the area around the hernia repair.
I got to feeling better this week but something did not feel quite right so I went in to check my PSA level this week and unfortunately it has gone back up to 247!

I was experiencing a lot more pain last week but this week still have some
pain when sitting down - could re-injuring the hernia area cause a flare-up?

I see my Oncologist tomorrow in the meantime I am back on 50mg Casodex daily. He said I may need another Eligard injection. I heard sometimes the six month shot does not last that long.
 
I am really worried tonight that everything has come back - any suggestions to put my mind at ease?
 
For some silly reason I thought I was over this for awhile. cry

BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 8/27/2010 6:11 AM (GMT -6)   
Midi, sorry about the flare-up. You should have your testosterone checked perhaps the eligard just didn't get it down low enough to be effective against the PCa. The Psa of 37 is a significant drop, but still high. Adding casodex will hopefully reverse the PSA, but if testosterone does not get down low enough you may need to go to ADT3. Best of luck. BB
Dx with PC Dec 2008 at 56, PSA 3.4


Biopsy: T1c, Geason 7 (3+4) - 8 cores taken with 4 positive for PCa, 30% of all 4 cores.

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Jun 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31
psa May 10 .50

April 10 MRI and Bone Scan show lesion on lower spine, false positive.

Started HT 5/25/10 with 3 month shot of Trelstar. SRT scheduled for late July

psa July 10 <.01 HT at work

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/27/2010 7:08 AM (GMT -6)   
In my humble, John Doe opinion you should seek out top Onco-Doc(s), asap. Casodex can somethimes feed PCa in hrpca patient scenarios(I wouldn't know in your case, just fyi) might be useful herein too, wise docs figure that out quickly. That velocity happening is worrisome. Alot of tests should be done on you if they haven't been:
pyrilinks-D, PAP, cga, nse, cea, chemistry panel on kidney, liver, bone and electrolyte status and maybe the QCT bone density exam and such.

The kind of progression in psa you have right now, is very serious as to your bone issues and even possibly later organs. You might add some D3 vitamin (inexpensive) to your needs, maybe use 4000-8000 units per day, a test called OH25 can measure the results, very useful for blood, bones and overall health. (good range for PCa patient maybe 60-100 level) Under 30 is considered lacking D3 in your body. You may find yourself on somehting like Zometa, fosamax, aredia, actonel for bone protection, via onco doc(s) in the near future (maybe).

Look at this information: www.hrpca.org   (various proven drug treatments etc.)
If you want to talk, send me an email.  Hopefully John Doe's reply is not getting a subpeona.(LOL)

Post Edited (zufus) : 8/27/2010 6:16:13 AM (GMT-6)


midi
Regular Member


Date Joined Apr 2010
Total Posts : 122
   Posted 8/28/2010 2:25 AM (GMT -6)   
By ADT3 do you mean adding somthing else to the Casodex such as Finasteride?
 
I went to see the Onco-Doc today & he was going to consult with the Uro-Doc next week on possibly a change in treatment or possibly another Eligard shot. He did not order any additional tests at this time.
 
I think I might have had a flare-up caused by the hernia re-injury as I was fine up until then but the Doc thinks it was just a coincidence.
 
Is it possible for a PSA to flucuate quite a bit under Hormone Therapy?

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 8/28/2010 8:47 AM (GMT -6)   
Midi:
 
I don't see how a hernia repair would cause a flareup. I think it's just a coincidence, as your doctor claims.
 
Sorry to hear of this news.
 
Wish I could be more helpful.
 
Mel
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. Next PSA late Sept.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 8/28/2010 8:49 AM (GMT -6)   
Just one other thought:
 
Have you gone to a major center, such as Mayo?
 
It would seem they would have some of the best experts there (although some here on HW seem to disagree).
 
Mel
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. Next PSA late Sept.

midi
Regular Member


Date Joined Apr 2010
Total Posts : 122
   Posted 8/28/2010 6:55 PM (GMT -6)   
Thanks Mel.
 
I am in Tucson and there is a Mayo Clinic in Phoenix however they do not accept the insurance program I am on.
 
Zufus - what do you mean by hrpca patient scenarios?

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3887
   Posted 8/28/2010 11:00 PM (GMT -6)   
HRPC – hormone-refractory (or hormone-resistant) prostate cancer

If we had some more info, perhaps we could help more..How old are you? What kind of insurance do you have? With negotiation, nothing is impossible...

Post Edited (Fairwind) : 8/28/2010 10:06:54 PM (GMT-6)


midi
Regular Member


Date Joined Apr 2010
Total Posts : 122
   Posted 8/29/2010 3:13 AM (GMT -6)   
I am 55 on Arizona Medicaid otherwise known as AHCCCS. I called Cancer Center of America in Phoenix & do not accept this insurance either...I did I think I could be hormone resistant after 2 months when everything seemed to be going so well - Ithought it took at least 2 or more years at least...
White Male 55 otherwise healthy until this year :-(
 
January PSA: 17.4
March PSA: 36.8
 
Cipro: three weeks
Macrobid: one week
Levaquin: 10 days
 
Cystoscopy: April 19th 2010
 
 PCa Biopsy performed May 17th 2010 100% positive
 
Size: 54 grams
 
Gleason Score 4+5
 
Hospitalized May 30th - June 4th for severe pain/fever & infection.
 
Bone scan on May 31st showed its spread to pelvic area, ribs & sternum.
 
Stage: T4M+
 
Eligard six-month injection June 14th.
 
Off Casodex for now until advised otherwise.
 
 

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/29/2010 5:38 AM (GMT -6)   
You need likely need more than eligard or lupron(if not now, not long in the future is my s.w.a.g.) and any of those drugs called LHRH, with a very positive bone scan and rising fast psa is a big red flag for this, it is not like the average PCa that like you mentioned above that might respond to a mono therapy drug for a long time. 

Post Edited (zufus) : 8/30/2010 10:22:03 PM (GMT-6)


midi
Regular Member


Date Joined Apr 2010
Total Posts : 122
   Posted 8/29/2010 7:42 PM (GMT -6)   
So the Casodex might actually make it worse? I have been back on it for four days now but still can't tell if it's getting better or worse - should I get PSA re-tested soon?
White Male 55 otherwise healthy until this year :-(
 
January PSA: 17.4
March PSA: 36.8
 
Cipro: three weeks
Macrobid: one week
Levaquin: 10 days
 
Cystoscopy: April 19th 2010
 
 PCa Biopsy performed May 17th 2010 100% positive
 
Size: 54 grams
 
Gleason Score 4+5
 
Hospitalized May 30th - June 4th for severe pain/fever & infection.
 
Bone scan on May 31st showed its spread to pelvic area, ribs & sternum.
 
Stage: T4M+
 
Eligard six-month injection June 14th.
 
Off Casodex for now until advised otherwise.
 
 

medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1100
   Posted 8/29/2010 7:57 PM (GMT -6)   

Midi -  You really need to see an oncologist who specializes in prostate cancer.  Your disease appears to be quite serious.  Not to put too fine a point on it, but this could very easily kill you.  Would you be able to travel to Los Angeles or Las Vegas?   If so, people on this board can recommend an expert.  I realize money may be a serious issue here.  But honestly your life may depend on getting some good advice  -- so if you can possibly do so, it would likely be worthwhile. 

 

 

 

 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 8/29/2010 8:07 PM (GMT -6)   
Your question is "is it back ?" In reality it never left. You are in a controlling situation. I agree with the others that this quite a serious situation. You reallu should seek out the best help you can find.

Have you asked your insurance company if they will allow a visit to Mayo? Some plans have allowances for out of network services in extreme situations.

Good luck on your journey. It sounds as tho you may benefit from reading some of the books out there about PC, so that you understand the hormone therapy issues.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

midi
Regular Member


Date Joined Apr 2010
Total Posts : 122
   Posted 8/29/2010 10:57 PM (GMT -6)   
I will ask the insurance company tomorrow - thanks for the help - yes I am worried about the fatality of the situation but I am remaining hopeful that something can be done soon. This is who I am trying to see ASAP:

http://www.azcc.arizona.edu/profile/frederick-ahmann
White Male 55 otherwise healthy until this year :-(
 
January PSA: 17.4
March PSA: 36.8
 
Cipro: three weeks
Macrobid: one week
Levaquin: 10 days
 
Cystoscopy: April 19th 2010
 
 PCa Biopsy performed May 17th 2010 100% positive
 
Size: 54 grams
 
Gleason Score 4+5
 
Hospitalized May 30th - June 4th for severe pain/fever & infection.
 
Bone scan on May 31st showed its spread to pelvic area, ribs & sternum.
 
Stage: T4M+
 
Eligard six-month injection June 14th.
 
Off Casodex for now until advised otherwise.
 
 

An38
Veteran Member


Date Joined Mar 2010
Total Posts : 1152
   Posted 8/29/2010 11:27 PM (GMT -6)   
I know very little about the medications or the options you have midi but I am so sorry that it has flared up again.
Your signature shows what a tough time you have had this year and I hope that with the right oncologist things look up.

There are so many people here with so much experience that someone should be able to point you in the right direction.

An
Husband's age: 52. Sydney Australia.
Family history: Mat. grandfather died of PC at 72. Mat. uncle died of PC at 60. He has hereditary PC.
PSA: Aug07 - 2.5|Feb08 - 1.7|Oct09 - 3.67 (free PSA 27%)|Feb10 - 4.03 (free PSA 31%) |Jun10 - 2.69. DRE normal.
Biopsy 28Apr10: negative for a diagnosis of PC however 3 focal ASAPs “atypical, suspicious but not diagnostic” for PC. Review of biopsy by experienced pathologist, 1/12 core: 10% 3+3 (left transitional), 1/12 core: ASAP (left apex)

Nerve sparing RP, 20Aug10 with Dr Stricker. Post-op path: 3+4. Neg margins, seminal vesicles, extraprostatic extension. Multifocal, with involvement in the peripheral, apex, fibro-muscular and transitional zones.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/30/2010 5:42 AM (GMT -6)   
On the casodex or flutamides thing, yes in hrpca scenarios it can actually worsen PCa (wonderful right?), you should monitor your psa more often, ideally. You can read about this and the Primer on Prostate Cancer-Dr. Stephen Strum is useful in knowing such things.

Just so you know the system too, most docs and especially non-oncology types, will only recommend or use: Lupron, Zoladex (other LHRH similar), flutamides (casodex etc.), maybe or maybe not proscar or avodart (added). That is their saftey zone, their comfort zone, perhaps their bias and I wonder if almost agenda. The LHRH drugs are real profittable and easy to do and they assume little to no risk from possible lawsuits on anybody (thus their drug of choice). These drugs are useful but might have their time stamp on usefulness and often do, typical in PCa with drugs.

Specialist onco-docs use and prescribe all kinds of things, I have a list of like 40 drugs that are used in PCa as useful in one way or another, that may not be the whole enchilada either.
You literally have to be proactive and demand to get some of these drugs or you might not get them, depends upon whom your doc is and his expertise and comfort zone on his own patients. Thus you are fighting another uphill battle sometimes in PCa. Some docs like urologist Dr. D (let's say) believes in the theory you kind of literally have a date stamp upon you in PCa, makes no difference what you do at all, if you try all the drugs etc.(you are literally a sucker is his thoughts, he would have you on LHRH likely for life) He is overly objective and cautious to the max. and does not look at what is possible but only is it medical proven whereby you can hang your hat upon it. (he would pooh-pooh the 'proven therapies at www.hrpca.org  Mr. Conservative in treatments, maybe not as conservative at doing surgery).

The problem is the specialists PCa oncologists don't think the same way, have patients coming to them whom also claim more results, maybe better results and compared to patients whom didn't do such (overall comparison) we have examples of longer living patients. (maybe not always) . Some histories like Truman Seamans interesting Dx- psa 4212 and bad scenario...lived 10 yrs., not 2-3 which would have been more typical for lousy scenario like that, of course Dr. Sartor & Dr. Oh (onco-docs) used additional drugs of Keto and DES.  You gotta wonder how many years might I be able to get, whom judges the  'you cannot', you have no choices, no chances? Do all cancer patients of all types live with total doom? Some have beaten the odds or broke through, how and why and  is the evidence the medical society seldom looks at on  these individual cases (maybe they don't wish to know), plus no money in doing so.

Dr. Fred Lee's story is incredible with his PCa of 27 yrs., failed curative treatments 25 yrs. ago, had systemic PCa, still living at age 80 right now, and he took a drug thereafter that Dr. D. would say is useless and not that effective. His friend Dr. Bob B. (urologist) supports Dr. Lee and is his biography author, he must think little differently than Dr. D., I would assume. So who is your role model? What is a patient to do? Dr. D seems like a decent guy, but is contained in a box of objectivity and yet he has not treated patients with alot of the drugs that he says are not all that useful or great. As a patient with this date stamp upon you, you have choices and might even have to fight for them (great system we have). Prepare as much as you can for the fight or surrender to Dr. D's opinions, as his claim it makes no difference . You get to be your own judge as it is your life to mess with, not someone elses. I hope patients learn the system, too.  You don't see much or any about anectdotal patient cures in abstracts, or people whom broke through or defied these premises on therapies...they exist. Maybe someone here will pave some of that road.

Post Edited (zufus) : 8/30/2010 12:50:31 PM (GMT-6)


midi
Regular Member


Date Joined Apr 2010
Total Posts : 122
   Posted 8/31/2010 12:02 AM (GMT -6)   
Wow - good reponse Zufus - very informative - I go in for another PSA/TEST sample tomorrow - wish me luck!

Post Edited (midi) : 8/31/2010 12:28:49 AM (GMT-6)


midi
Regular Member


Date Joined Apr 2010
Total Posts : 122
   Posted 9/3/2010 5:00 AM (GMT -6)   
Zufus  - you were right - I think the Casodex is feeding it but I am still on it until I see the Onco next Tues however bad news about the latest lab results: Test still below 20 @18 but PSA doubled to 506 in a week! smhair   
I might go on Taxotere or hopefully find a clinical trial with something called MDV3100 or Abiratrone.
 
Someone said that the ADT3 therapy could still work if I give the Casodex & Proscar more time - my pain has gone down some and I am still quite mobile but of course very scared.
 
I don't see how I could've become HR after less than three months when I was responding so well to the treatment just a month ago - I thought it took at least two years or more.
 
What are my chances now?  rolleyes  
 
I thought I had this thing beat for awhile and was so happy - please let me live! cry

Post Edited (midi) : 9/3/2010 4:49:28 AM (GMT-6)


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 9/3/2010 7:39 AM (GMT -6)   
If you can get Abiratrone that may work, how long??? MDV3100 is also called Super casodex, I do not contend to know anything on it, if it is casodex like...then probably not useful in your situation. Look at DCVax in clinical trials it is like Provenge conceptually, the sellers claim it is better (of course), it might be we don't know yet. I smell approval on it within 2 yrs. or less, is my s.w.a.g. judgement.

Join the yahoogroups called www.hrpca.org (Howard Hansen moderator and what a warrior) they have seen your scenario and had some answers. Also contact www.paactuas.org (you can even phone Rick P. and discuss your scenario)

Leukine may work a while for you, patient claims no side effects using it right now with good results, you must have money or insurance for this deal.

Thalidomide in conjuction maybe with other PCa drugs might be effective in your scenario, sounds awful if you know about Thalidomide but it is a safe doseage level.

I want you to thrive if at all possible, you have to get mighty proactive in finding the right type of doc or choices. Contact Terry H. at www.yananow.net for his input, a very fairminded objective and patient advocate that is unbiased, his website has no corp. influence allowed. I know him from around 2002, one of the best advocates for all of us.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35 normal, ct and bone scans appearing clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off for 1 yr., controlled so well, resumed, using intermittently, pleased with results

midi
Regular Member


Date Joined Apr 2010
Total Posts : 122
   Posted 9/3/2010 3:16 PM (GMT -6)   
So should I stop taking the Casodex?

I thought it would've been working by now like before...
White Male 55 otherwise healthy until this year :-(
 
January PSA: 17.4
March PSA: 36.8
 
Cipro: three weeks
Macrobid: one week
Levaquin: 10 days
 
Cystoscopy: April 19th 2010
 
 PCa Biopsy performed May 17th 2010 100% positive
 
Size: 54 grams
 
Gleason Score 4+5
 
Hospitalized May 30th - June 4th for severe pain/fever & infection.
 
Bone scan on May 31st showed its spread to pelvic area, ribs & sternum.
 
Stage: T4M+
 
Eligard six-month injection June 14th.
 
Off Casodex for now until advised otherwise.
 
 

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 9/3/2010 7:32 PM (GMT -6)   
If you are on eligard (it is in you now I am supposing) if you want to test it out, drop the casodex and get a psa test somewhere within 5-7 days if possible and if your psa drops during this fast rising scenario, that is the definitive yes it is feeding hrpca. Docs have patients drop it once they identify it is the cause of the rising psa or maybe in patients with highly refractive situations just rely on LHRH drugs(is what mainstream does) or add something else to use. Specialist onco docs would have you switch to other drugs that can work on hrpca, read about some at  www.hrpca.org .  
This is not easily done as you likely need a different doc to get these drugs, like an onco or such.

Go to www.yananow.net  (experiences, Mentors) look at peoples journies in PCa. Trueman Seaman is an interesting PCa story Dx- psa over 4200 he lived 10 yrs. with some wise doctors assisting the protocols, you can read what was used and onco-docs mentioned. I am just a average layperson like others herein, can only point to things and suggest, hopefully that can be useful to you. I sent you an email too.

Post Edited (zufus) : 9/3/2010 6:40:15 PM (GMT-6)


midi
Regular Member


Date Joined Apr 2010
Total Posts : 122
   Posted 9/4/2010 3:33 AM (GMT -6)   
Thanks Zufus - if I stop taking the Casodex - do I still take the Proscar?
White Male 55 otherwise healthy until this year :-(
 
January PSA: 17.4
March PSA: 36.8
 
Cipro: three weeks
Macrobid: one week
Levaquin: 10 days
 
Cystoscopy: April 19th 2010
 
 PCa Biopsy performed May 17th 2010 100% positive
 
Size: 54 grams
 
Gleason Score 4+5
 
Hospitalized May 30th - June 4th for severe pain/fever & infection.
 
Bone scan on May 31st showed its spread to pelvic area, ribs & sternum.
 
Stage: T4M+
 
Eligard six-month injection June 14th.
 
Off Casodex for now until advised otherwise.
 
 

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 9/4/2010 4:30 PM (GMT -6)   
So in this ordeal you went on and off and back on casodex.  It is not so clear to me right now how long you were back on it and what kind of psa rises happened while on it in combo with ADT3.  You still could drop it and see if it effects psa quickly and knowing that  info you could either resume it or stay off of it.  If your rising scenario is just generally under using Eligard, that is a serious non-control issue and at some point likely soon the negatives of using it outweighs the positives of using it.  This why the onco-docs switch patients in these situations to alternative therapies, second line hormonal drugs, etc. Then or thereafter wilder drugs or chemo combos or clinical trials and such. Proscar is less of the worrisome discussion in this in my mind.
 
Ask your doc alot of questions asap.

Post Edited (zufus) : 9/4/2010 3:44:11 PM (GMT-6)


midi
Regular Member


Date Joined Apr 2010
Total Posts : 122
   Posted 9/4/2010 7:28 PM (GMT -6)   
Right - I just thought staying on the Proscar might be a good idea until I see my Onco this Tuesday the 7th, capice?
White Male 55 otherwise healthy until this year :-(
 
January PSA: 17.4
March PSA: 36.8
 
Cipro: three weeks
Macrobid: one week
Levaquin: 10 days
 
Cystoscopy: April 19th 2010
 
 PCa Biopsy performed May 17th 2010 100% positive
 
Size: 54 grams
 
Gleason Score 4+5
 
Hospitalized May 30th - June 4th for severe pain/fever & infection.
 
Bone scan on May 31st showed its spread to pelvic area, ribs & sternum.
 
Stage: T4M+
 
Eligard six-month injection June 14th.
 
Off Casodex for now until advised otherwise.
 
 

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 9/5/2010 8:00 PM (GMT -6)   
Midi just talked to you via phone and nice to hear from you. You will be seeing an oncologist very soon and surely asking alot of questions, I know already you are looking into second line therapies and alternative drug choices. You said your (recent) psa went up to like 500 range, this is very strange in this short term ADT3 drug useage, your hernia issues envolved in this, I just have never heard of that influencing psa and/or in such a dramatic fashion....anyone herein heard of such operations or repairs affecting psa level to any huge degree?(so don't think that is the issue) I hope others can help support you in this fight, maybe some of you like Sephie and others whom are great at care giving support can send you an email or post something (that is not my best forte). May not have a forte anyway.

I also sent you some contacts for further possible advice on things to look at or suggestions, those people including a few docs w/emails might help with some guidiance. There are other therapies to be tried on. You already know about zometa and fosamax and other things, so you are aware of alot on PCa issues. Try to hold your own in this waiting to see the doc situation.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35 normal, ct and bone scans appearing clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off for 1 yr., controlled so well, resumed, using intermittently, pleased with results
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