Changes to the Signature option

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James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 8/28/2010 6:59 AM (GMT -6)   
From the owner, Peter:

"I changed the default on the post form so that signatures are unchecked for users by default (except for mods). They need to remember to check the box for their signature to appear. I did this to help reduce some of the clutter of extra long sigs in the forums. Maybe I should post about that in the announcements forum.

The Quick Reply box at the bottom of the threads still adds the signature by default for everyone."

Me: This change will help clear up some of the clutter and wasted usage that occurs when people post their sigs in every post. This way, the sig. can be manually checked to display in the first post or reply in each thread by the user, then they can not check it for the rest of the conversation in that one thread, thus saving the clutter and usage from hogging the available space and speed.
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN

daveshan
Regular Member


Date Joined Jan 2010
Total Posts : 363
   Posted 8/28/2010 8:46 AM (GMT -6)   
James,
I have a question, would it be a violation of the spirit of the guidelines to keep a text file of our full history and add it at the bottom of our first post in a thread. This would give the OP an idea of the path we have followed a bit more clearly than the current 400 character sig' allowed.

Thanks
Dave in Durango CO

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 8/28/2010 8:52 AM (GMT -6)   
I wish they would relax the 400-character limit. I had to cut some information that could be relevant.
 
Mel
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. Next PSA late Sept.

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 8/28/2010 9:29 AM (GMT -6)   
I mentioned this early on when I first joined HW. I can probably find the post somewhere.

A couple of days after my surgery and about a week after I discovered HW, I was at my low point both mentally and physically. I had been hiding my diagnosis from everyone and was losing control of my life.
In the middle of the night, I began to reading the no nonsense signatures of the guys and was deeply impressed with the other members' willingness to openly share their data and specs to perfect strangers in need. I actually started sobbing - maybe it was the drugs - and emptied out. Reading just the signatures helped me more than you can know. For example: "How long will my incontinence last?" Well, here's is a guy who was using 4 pads at 3 months, 3 pads a 5 months, 2 pads at 7 months... OK I guess I am not so bad.
Here's another example: I have total ED but here's a guy's raving about something called Trimix (isn't that an insecticide?) . He is willing to tell strangers about his ED and the fix. He's a bigger man than I. Slapping myself - Come on Jeff Man up!

I looked at other forums with their pithy sayings and flowery fonts in color and compared it with the no nonsense "PSA 23. Total ED , Incontinence 4 pads per day now 3 pads per day etc..." and was struck that this was useful information I could get my head around.

It sounds strange but some of the signatures resonated with me and penetrated deep into my body. I don't know if I would have felt that way if I just entered the site and did not know the street cred some of the guys here have. The long sigs helped

HW is a great site and still will be - even with short sigs, but sometimes the full monty is just what the patient needs.

I believe members could help a lot of they only posted their full signatures once in topic.

Thanks,
Jeff (the leaking one)
I won't post my sig to save space ;-)

Post Edited (Worried Guy) : 8/28/2010 8:32:34 AM (GMT-6)


An38
Veteran Member


Date Joined Mar 2010
Total Posts : 1152
   Posted 8/28/2010 10:09 AM (GMT -6)   
Hi James,

The signatures are what makes this site for me too. It makes my journey one of many unique journeys and makes you feel part of a group. They are a great teaching tool but also allow you to understand where someone is coming from without having to quiz them.

I think a 400 character limit would be a shame as it would limit this understanding. However limiting peoples signature by getting them to have to manually click the signature box is perfectly fine as hopefully people would only tick this on the first post in a thread.

An

Post Edited (An38) : 8/28/2010 9:47:04 AM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/28/2010 10:20 AM (GMT -6)   
All you have to do is make sure you check on your signature if you are starting a new thread, or during your first answer on another person's thread, there's no need to duplicate that info over and over again within the same thread.

There are at least 32 other "diseases" that are maintained as forumns here at HW. It's all about storage capacity on the host server(s) and bandwidth, and its still a business.

Long ago, we were asked to narrow the signatures to 10 lines, most complied, some didn't, and I have noticed that some signatures were almost becoming novellas.

In order to keep this a free site, in terms of not having to pay to be here, we just need all to do our part to help Peter preserve space, bandwidth and anything to keep his operating costs down.

If any one is sitting on some extra dough, this would be a great place to invest some funds.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/28/2010 10:38 AM (GMT -6)   
James, I really don't get this signature business and I totally agree with Jeff and Mel.

You said, "the clutter and usage from hogging the available space and speed."

I've never found 'clutter' to be a problem. Do others?

"Available space and speed?" This really seems ..... well, puzzling. Space? Somewhere the owner of this forum either has a server of his own, or, more likely, pays for space on a server. Either way, space in the amount needed for this prostate forum is not a major cost issue these days. Speed? Even on dial-up, which I used this summer at my mother's cottage, the forum loads in a flash.

The HealingWell forums are a business and the owner certainly has the right to run them as he wishes and to make a profit as best, and as soon, as he can. As a business person I can sympathize with his desire to cut costs. We know from a post he made several weeks ago that he's got his advertising revenue about to the point he's covering his costs. I'm sure he must be anxious to move solidly in the black. However, as a business person, I'm also aware that his ability to attract advertising revenue is directly tied to the hit count of HW forums as is his real pay off, selling the business to a Yahoo or MSN content provider.

If I was a board member of HW I'd be advising management to be very careful in cutting service, which in turn could lead to the forums being less attractive and lower hit counts. Right now I'd not be surprised if the HW franchise was worth several hundred thousand dollars. As a board member I'd be worried about risking eroding long term value for shorter term profits. Of course, if I was a board member I'd know the facts of this business and not just be making assumptions and my advice might be very different.

Bottom line --- and we are talking bottom line here, right? --- I hope the owner listens to the concerns of his customers and understands how much these signatures contribute to the value of this forum and backs off the 400 character restriction.

Whatever his decision I wish him well with this HW venture. I think he is creating a franchise that has high value and one which will have huge value as he builds on the base he has created.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/28/2010 10:54 AM (GMT -6)   
Sheldon,

You are a friend to me, I don't think I have ever disagreed with you before. I think your post is way out of line. This is Peter's site, his property, his business, and its free to us end-users. It's not up to us to tell him how to run his business or what his motives or future interests are.

We simply need to comply with the few requests he ever asks of his users.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/28/2010 10:58 AM (GMT -6)   
Sheldon,

You are a friend to me, I don't think I have ever disagreed with you before. I think your post is way out of line. This is Peter's site, his property, his business, and its free to us end-users. It's not up to us to tell him how to run his business or what his motives or future interests are.

We simply need to comply with the few requests he ever asks of his users.

Some signatures were getting way, way out of hand, far beyond the 10 lines we were allowed before. Common sense can show how to eliminate some of the repetition and clutter.

Not picking on you, but look at your own signature, where you use up 5 lines to say basically the same thing about your post sur PSA's.

Be just as useful to say: All post surgery PSA ,.02 (or something like that. The exact dates of each test aren't needed)

Don't take this personally, I don't mean it that way, just trying to make a point.

HW does a great service to its 82K plus registered users, all we need to do is our little bit to help.

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

daveshan
Regular Member


Date Joined Jan 2010
Total Posts : 363
   Posted 8/28/2010 11:21 AM (GMT -6)   
This is why I asked about making the extended version of our information part of the post this is not to get around the limit, it saves the server storage space by keeping the sig's at 400 characters and still allows us to post up the full story of our journey.

Realistically if you add a "my story so far is" right above the block of text it really is part of the post.

The nice thing about doing it this way is it will only appear once, which is what Peter did with his latest change.


EDIT, really meant to quote Jeff on this as he explains the benefits of a full sig' better than anyone so far, if it only helps one guy a month it's worth the extra work to cut and paste IMO.

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/28/2010 2:02 PM (GMT -6)   
Hi David,

You say, "You are a friend to me, I don't think I have ever disagreed with you before. I think your post is way out of line. This is Peter's site, his property, his business, and its free to us end-users. It's not up to us to tell him how to run his business or what his motives or future interests are.

We simply need to comply with the few requests he ever asks of his users."

As I read what you've written you believe we are indebted to the owner of this site. I believe the owner is indebted to us, his customers, for creating content which has the potential to make him a very wealthy man. I don't think it out of line at all for a customer to voice an opinion, make suggestions, tell a service provider what they want. The service provider has the option to listen, or not, as they see their best interests to be. We, the customers, have the option of going to other forum groups. Free enterprise and all that.

Frankly, rather than being out of line, I see my above post as a sincere gift to the owner. As you can see from Mel's post, An's post, and in particular Jeff's poignant post, the ability to read full signatures is one of the key, perhaps critical, services the owner is providing. If this site no longer serves the needs of its customers in the unique way it has, someone else will come along and fill the gap. The signature issue may, or may not, be a tipping point. I for one think it not a tipping point, but very important. In the end the owner has to decide, but not to give him honest feedback would be a great disservice.

As for my signature, you're right, it could be shorter and I could combine those 0.02s in one line. But, when I look at other signatures one of the things I'm interested in is the dates of PSA readings, how far apart they have been, as well as the number. I suspect others, at least some others, are also interested.

I'm also not a fan of having signature information appear once in a thread, or be available elsewhere. Often when I read a post I look down at the signature. For old friends it reminds me of their situation, for new members it brings me up to speed.

There is a book called "A Complaint Is A Gift." I've no idea if it's any good or not, but it has a great title. My thoughts on signatures are not a complaint really, more of an opinion. But they are intended as a gift to the owner. I hope he sees them as such, and not as you do --- out of line.

May we still be friends?

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 448
   Posted 8/28/2010 2:50 PM (GMT -6)   
One way to keep a history of info that is longer than allowed in a signature is to put it a Google document and keep that stored online. You can then use the share link of the google doc in your signature for the "extended" information.

I use that method on a variety of forums (and various subject matter) where signatures are much more limited. You can control the google doc to only be seeen by persons that have the "link"... not from a search...
I now have my Healing Well signature < 400 chars and a link to my original signature below... I used tinyurl to make the 180 character google doc url to less than 30 characters.

pasayten
3/2007 - Dx 59 y/o - 12 point biopsy - Left 0/6 Right 1/6 Gleason 3+3 T1c
4/2007 - DaVinci RRP performed - pathology Gleason 6 T2c Nx Mx
PSA 7/07 0.01, 6//08 0.02, 12//08 0.03, 10/09 0.13
11/09 Consult BCR and recommendation for SRT
1/2010 IMRT SRT started 32 sessions at 2 gys for 64 gys total.
6/2010 - 3 mth PSA after SRT = 0.02
Extended Signature

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 8/28/2010 3:05 PM (GMT -6)   
David:
 
You and I agree far more often than we disagree. However, you do seem to misconstrue suggestions for criticisms. You sometimes get unduly upset when doctors are "criticized" and the owner of the site is "criticized." In fact, "criticized" is far too strong a word.
 
I merely made a suggestion that it would be nice if our signatures could be longer. The 400 character limitation really does eliminate some useful information. I know the signatures were invaluable to me early on. Once I knew I was a G 4+3 with certain characteristics, I certainly did peruse the signatures to find people in a similar situation.
 
Writing a link, as was suggested, would not be helpful. I would not want to peruse the messages and have to click on a link each time.
 
I do like the idea that we should perhaps try and limit our signature to one per thread.
 
I really would be SHOCKED if such a suggestion/request would result in our site being shut down.
 
Mel

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/28/2010 4:47 PM (GMT -6)   
Mel, I am not unduly upset, as you say, about any of this. Simply posting my take on it.

Speaking onlly for myself, I am thankful and grateful to Peter, to have the vision and resources to have such a sounding board and infinite source of care, info, and support for us.

If he wanted me to do all my posts from right to left, instead of left to right, I would do it without question.

Perhaps its growing up in a military family, then being in the military myself, unless logic or safety interferes, I tend to obey in situations.

Peter asks so little of us, and our moderators give us so much lattitude, what's the point of fighting or griping about a simple change?

You read too much into my "Intent"

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/28/2010 4:47 PM (GMT -6)   
Mel, I am not unduly upset, as you say, about any of this. Simply posting my take on it.

Speaking onlly for myself, I am thankful and grateful to Peter, to have the vision and resources to have such a sounding board and infinite source of care, info, and support for us.

If he wanted me to do all my posts from right to left, instead of left to right, I would do it without question.

Perhaps its growing up in a military family, then being in the military myself, unless logic or safety interferes, I tend to obey in situations.

Peter asks so little of us, and our moderators give us so much lattitude, what's the point of fighting or griping about a simple change?

You read too much into my "Intent"

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 8/28/2010 5:43 PM (GMT -6)   
David:
 
I am not reading too much into your intent. I am reading what you wrote. In fact, you just now used the words "fighting" or "griping."
 
There's a difference between that and "suggesting."
 
I think many of the folks have expressed valid concerns.
 
Mel

keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 8/28/2010 6:06 PM (GMT -6)   
I think Peter has a great board here. And it is his board and he let's use it for free. This place has it's rules that we are supposed to follow and if we don't we kicked off or whatever. I think we should be greatful for everyone involved with this board. And if we don't like the rules then we don't have to be here!
 
Neal

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 8/28/2010 6:35 PM (GMT -6)   
I'll get back for a full reply later, but want to clear up one misconception. HW is a free to us, one man operation, a public service- not for profit service. Peter has struggled for years, spending his own money to keep this free forum running. He operates a break even method. If he makes money (profit) on this with advertising, he spends every dime of that profit money in improvements. This is definetly not a for profit business for him. It is a one man public service site, non profit, with no one keeping any money that is above the cost of operating. So, let's stop pursuing the idea that this is Peters profitable busniess and that changes he makes it to improve the bottom line and keep himself in the black. He has his day job and this is his life's passion. This site isn't just us, it contains 31 other health forums, all heavily used and all soaking up server space. The signature problem is across the board, not just us few people here in PCa. Both here and elsewhere, users are posting literally 'short stories' running paragraph after paragraph and this is being added to the bottom of every post they make. It really is ridiculous the amount of server space that is taken up by signatures, ones that start out with a couple lines, and without editing or anything, more just adds to the bottom as people progress in their illness and recovery, across the entire 32 forums.

So, for those who are misunderstanding the purpose of HW and who are complaining about the signature limits, try to remember that we are using someones elses free service, a not for profit one man operation free service, at that, and that we really don't need to post in our signatures every little thing that happened to us since we first began our journey.
edits, abbreviations, and shorthanded wording can do wonders in helping to get the main gist of the info across without telling the world repeatedly every little detail of your journey. Look at the stats at the bottom of the main page are the number of registered users, and then triple that amount to get an idea of how many people use this site in a day or week, or whatever. The big problem is that all these enormous signatures, repeated in each post, are stored in the archives, which is taking up more and more of the available storage space on the server. As the site grows, so does the archives, now well over a million posts, all available for anyone who needs to go back and find important info. More later when I have more time.

Post Edited (James C.) : 8/28/2010 6:04:56 PM (GMT-6)


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 8/28/2010 6:46 PM (GMT -6)   
I remember it being said at some point that this board is not so much a business as it is Peter's organized effort to make a forum available. I've seen many other forums and boards vanish overnight because the owner / participants ran out of money to donate.

Disk space may not "cost much" in comparison to years ago, but when I have to put out $100 for a drive, it is still $100 that I take out of my Cialis or Depends or pizza or tv/cable or extra-sensitive PSA test allowance. Over the past year, especially, there are a lot of extra hits on my static income, at exactly the time I need this forum, and have less to "buy" into it.

I agree with Neal and David. We are guests, not paying members. We can have no expectations to free space or free speech.

I'll be terribly disillusioned if this site should ever become monetized as a business sucking on the needs of sick people. Look at Johns Hopkins. Sign up for a newsletter, then spend time every day deleting all the email garbage they send to sell you articles. Let's not go down that road, please.
 
(It looks like James & I were writing a post at the same time. His reply confirms my idea of what the basics of the board are.)

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 8/28/2010 6:48 PM (GMT -6)   
This is member James, not Moderator James speaking:

To those who are looking at this as a business site developed to make money for the owner, I hope you understand that Peter's site isn't run as a business, but as a public service. It never has been or will be a for profit business. This site is continually improving as any above costs dollars are reinvested into expanding and improvements, not as a profit to go in Peter's pocket. Unless he is just flat lying to us, he keeps no profits from this site, but strives to continually grow his labor of love to provide a place unique in the internet world, where real world sufferers can gather and share, support and help others while gaining a sense of belonging for themselves. To place a dollars and businessman's slant on it does him a disservice.

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/28/2010 6:57 PM (GMT -6)   
Hello James C. et al,
 
I will take a page from your book and write more later  ----  but I've had a quick read of your two posts and I wanted to acknowledge them and thank you for the back ground.  Most interesting, and helpful.
 
Sheldon AKA Sleepless

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 8/28/2010 7:22 PM (GMT -6)   
uh-oh, (cue Jaws theme) that don't sound good.... devil smilewinkgrin

pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 448
   Posted 8/28/2010 7:28 PM (GMT -6)   
James C... Did you see my note about signatures with a link to an extended signature? I just changed my main signature to 400 chars and put in a link to a google doc extended signature. I can also go back and add a lot more info to my extended signature now...

pasayten
3/2007 - Dx 59 y/o - 12 point biopsy - Left 0/6 Right 1/6 Gleason 3+3 T1c
4/2007 - DaVinci RRP performed - Gleason 6 T2c Nx Mx
PSA 7/07 0.01, 6/08 0.02, 12/08 0.03, 10/09 0.13
11/09 Consult BCR and recommendation for SRT
1/2010 IMRT SRT started 32 sessions at 2 gys for 64 gys total.
6/2010 3 mth PSA post SRT = 0.02 :-)
My Extended Signature

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 8/28/2010 7:39 PM (GMT -6)   
pasayden, that's a good way to do it. Maybe a little to techie for some, but we could always offer help, right? lol

Another way is to go back to one that has sorta dropped by the wayside here, but was very active when I first came here- The Journey post. Back then, a member would start their own thread of their Journey thus far in PCa matters, and add to it as things evolved by going back and using the edit feature to keep it current.. This had the effect of keeping a running narrative of their Journey, and went well beyond a signature. Lots of people saved their Journey post in their Favorites or Bookmarks file and updated it, with a repost when things changed. They also kept a clickable link in their signature so folks could go there to read the latest. Your method, or this method may be the direction that those who wish to keep a long history of their stats and experience could use. Here's a link to mine, not updated for a while, so you can see what I am talking about.

www.healingwell.com/community/default.aspx?f=35&m=934895

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 8/28/2010 8:49 PM (GMT -6)   
This may sound crazy, but is it necessary to archive our sigs on every post. If the thread linked to our current sig, we would only have to store one sig. I realize that at the time of the post our sig may have been different, but as long we we know that, our current sig is really the most important one.

Are there stats on how many searches are done for old treads ? For me personally, I don't much care about posts that were done several years ago. Maybe we could save a lot of space by reducing amount of history, or store that in a different database that doesn't require it to be accessible in real time, or something like that.

I do understand storage requirements, and we have had some sigs get a little out of hand. I do also thank Peter for this site, and it is his. However, he has demontrated that he is a reasonable man as well. Maybe we could reach a little compromise here that would help him and allow some to feel as tho they can keep some part of what they feel is so great about HW. I think a sig button that would allow us to look up a sig on any post would be a good way to allow us to have adequate sigs, and save storage at the same time.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01
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