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Buzzdriver
New Member


Date Joined Oct 2009
Total Posts : 13
   Posted 8/29/2010 9:30 AM (GMT -6)   
mad  I'm looking for any suggestions on some skin trouble I'm having.  My incontinence problem comes and goes - with no predictable pattern.  The swings are maddening - I can go days without anything more than a little "spurt" if I try to hold it too long - to days when there is no control over the flow whatsoever - just a constant dribble.
 
On those constant leak days, I have been using an external condom product from Urodry that has an integral collection bag.  This is so much handier for work and other active endeavor as I don't have to worry about slinging a bag full of pads around.
 
Recently, I've been in the "constant dribble" mode, and wound up wearing the device more or less all day long (I always switch to a pad once I get home and "in" for the night - and I don't leak at night - ever) - and have wound up with VERY angry and occasionally bleeding skin around the base of the shaft - so I stopped wearing it - but now with the constant leakage, the skin on my scrotum and perineum is also getting angry red and very painful.
 
Anybody else having skin problems with their leaking and have any advice for dealing with this?  Right now, I'm doing everything I can to keep the area as dry as possible and using Neosporin on the affected area.
 
Thanks,
 
Buzz

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 8/29/2010 10:17 AM (GMT -6)   
Buzz:
 
Ouch. I know I once used one of those triple-antibiotic creams and things got worse. Turns out I was allergic to one of the ingredients (I forgot which one, but it might have been the neosporin). I think I ended up switching to just bacitracin and that resolved the issue.
 
Mel
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. Next PSA late Sept.

BillArb
Regular Member


Date Joined Jun 2010
Total Posts : 35
   Posted 8/29/2010 10:17 AM (GMT -6)   
Try Desenex. It's quite useful in taming diaper rash and other maladies on babies' soft skin.

Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 8/29/2010 10:26 AM (GMT -6)   
Zinc oxide is the best thing for damaged skin. Desitin makes a product. Also, vaseline is good at keeping things protected. It usually means that you need to go to pads and change them very frequently. Don't try to get your money's worth out of a pad. Once these rashes set in, they can be hard to get rid of. So, keep on it. Once it clears up, use baby powder all the time.
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 8/29/2010 10:38 AM (GMT -6)   
Speaking of powder, I have found Ammens Medicated Powder to be excellent (I think it has zinc oxide in it)
 
Mel

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 8/29/2010 11:43 AM (GMT -6)   
The nurses told be to avoid the cremes that are oil/petroleum based. I didn't need much, so did not do any research, but they were of the opinion that the water-based varieties were better for any long term use.
 
The creme I used for irritation (not infection) was a homeopathic version - Calendula Gel. I got mine at Drug Emporium, and have seen it in bigger store's natual remedy aisles.

Buzzdriver
New Member


Date Joined Oct 2009
Total Posts : 13
   Posted 8/29/2010 4:22 PM (GMT -6)   
Thanks to all of you who have posted so far - I haven't had this problem, and I've been damp since March of '09 - don't know what triggered this, but I'll head to the store and buy everything you guys mentioned!  It's going to be a bonanza for Walgreens!  They'll wonder why I'm waddling, though...
 
Thanks!
 
Buzz
Age 54 at DX.  Gleason 6, PSA 4.2, a .78 rise in one year. 
 
Had High Dose rate brachytherapy at California Endocurie Therapy Center in Oakland, CA in February of '06.  Very successful - PSA came down quickly and steadily to current .08.  No problems.
 
Developed flow restriction in summer of '08 - had bladder neck resection in March of '09 - immediately incontinent, immediately in severe and constant pain, ultimately left job because I could not function because of pain and incontinence.
 
Started hyperbaric oxygen therapy (HBOT) three weeks ago (October '09) - pain virtually gone, blood in urine down to "trace" levels, still pretty leaky.  HBOT has been a godsend with respect to reducing the pain! 
 
Began working with a physical therapist in December - had "trigger point" therapy on pelvic floor muscles.  This proved successful in getting better control of incontinence - now many days I could go all day on one pad - but usually would use two.
 
I use an "AlphaDry" system at work - it is an external condom style catheter with a reservoir which allows me to use the men's room "standing up."  The other benefit is not carrying a bag of pads to the office every day, and finding a quick and discreet way to do a change if and when needed.
 
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