I feel for you brother, as your situation is similar to mine. Due to strictures, I am on my 21st catheter. The type of operation you are describing was suggested to me, by a leading uro reconstructive surgeon at Duke, but I have been turned down by the amount of radiation damage I have in my bladder and bladder neck. Also, I was told that with that op, I would have been 100% perm. incontient as the result of having it. That didn't appeal to me, as I was 100% dry prior to Salvage Radiation and suffered no ED.
I have had 6 corrective surgeries for the scarring in the bladder neck, some with laser, some without, none of them last. I was just opened up again by surgery on July 2nd, and when my surgeon checked two weeks ago, he was estimating I was already at least 50% closed up again in that short of time.
I am scheduled to have the ileal conduit urinary diversion surgery in a little over 3 weeks, as they feel my bladder and bladder neck are too damaged to repair. It will mean that I will have a stoma and have to pee into a bag for the rest of my life. Sounds bad, but should beat being on endless catheters and all the pain and suffering that have gone with them.
I wish you the best too, I had two emergency dialations done along the way, no way to describe the raw and utter pain to someone without the same experience.
If you have any questions, want to compare notes, etc, please feel free to contact me. I can honestly say, I understand where you are at.
David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.