11 Months on the SP Catheter

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/1/2010 11:09 AM (GMT -6)   
Today marks the end of the 11th full month I have been on these suprapubic catheters.  That's a run of 335 continuous days on the cath.  If you add that to the 101 days prior to the SP, then I have been on catheters now a total of 436 days, well over a year.  9 of them have been foley's through the penis, and 12 of them have been the SP type.  Included in the 335 days of SP's, I spent a total of 39 days with 2 catheters in place at the same time, both a foley and an SP.
 
Based on the average number of spasms I have in a day, would estimate I have experienced over 5,000 bladder spasms.  Could not tell you how many ditropan pills I have consumed  (2-4 per day) and the amount of prescription pain meds I have been through during this time.
 
I never would have believed that stats like this were even possible.  Of course, the SRT made all these matters much worse, and is still the root cause of the most painful elements of my journey.
 
Tommorow, it will be 3 weeks to this next major surgery, I am nervous about it, as I will wake up with another major change in lifestyle.  I can only hope I am doing  the right thing, and that I won't be plagued with complications again.
 
David in SC

SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 9/1/2010 12:12 PM (GMT -6)   
David, having had just a small amount of similar problems to you, I can't imagine what you have gone through.  For those that haven't had a bladder spasm, it would be hard to imagine the pain.  Hopefully the next surgery will be the one that fixes everything.  I have to say one thing about catheters, at least you can sleep through the night without getting up to pee.  Since my SRT, I have had urgency problems and have to get up every one to 2 hours. It sure would be nice to get a full nights sleep.  Anyway, hang in there and recover quickly from your new surgery.  Squid.

SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 9/1/2010 12:14 PM (GMT -6)   
Good Luck David with your surgery tomorrow, you are due for some good news!!!!!!!
Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4). Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008, Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
6 Post OP PSA's from 9/2008 to 6/2010: <0.1
 
 
 

lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 9/1/2010 1:27 PM (GMT -6)   
Well wishes on this new phase!
 
Larry

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/1/2010 1:57 PM (GMT -6)   
Thanks, squid, shu, and larry.

Yesterday, was a rare, low pain and problem day, I was being lulled into thinking, "this isn't so bad". Today, its been a "hurting" since I woke up kind of day, extreme bladder neck and bowel pains, lots of pain in lower back and right hip. It amazes me what even the difference of a day can make.

My mother is needing some computer help at her house 8 miles away, I am laying here debating whether I want to go through the effort to put on a leg bag and go over there. For whatever reason, the leg bag time always increases my level of catheter pain.

This has all got to end at some point.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 9/1/2010 3:24 PM (GMT -6)   
David:
 
Good luck. Three weeks to go. I have to believe your QOL will increase greatly!
 
Mel

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/1/2010 5:08 PM (GMT -6)   
I sincerely hope so Mel, though all surgery has risks, and I know my surgeon, or any other surgeon, can not guarantee results or side effects in advance.

Did go help mom, but was in so much pain, ended up bringing her "net" book home, and my youngest son had her virus problem fixed for free in the first 5 mins.

Now I am on meds again, hoping to shake this terrible pain
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

TryingToStayCalm
Regular Member


Date Joined Aug 2010
Total Posts : 53
   Posted 9/1/2010 9:59 PM (GMT -6)   
David, my thoughts and prayers go out to you and hopes that the pain subsides. I cannot imagine the frustration and angst you must feel having to deal with it all. I am amazed at how open and giving you are to all the folks here as you share your experiences with us all. Thank you and know that if I could help you breathe just a little easier I would.
Judy
Husband DX on 6/30. Age 56. PSA 5.8 and 1 month later 7.9. Biopsy showed 6 out of 12 Cores Adenocarcinoma. 5 = 50% - 90%, 1 = 10%. Perineural invasion present. Gleason 7 (3+4). RRP scheduled with Dr. David Samadi Mt Sinai. NYC. 8/26.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/2/2010 12:12 AM (GMT -6)   
Judy,

In all honesty, attempting to help others, helps me too, in that it takes the focus off my own woes. While all of our journeys have different twists and angles, some better than others, of course, we still are fighting the same Beast. It's best when we share and learn from each other. The combined knowledge via experience base here is the best I've seen in a support group, and the degree of brotherhood/sisterhood here is outstanding 99% of the time. Since we all have our own weaknesses and shortcomings, perfection can't exist here, or anywhere else of course.

While, like others, I give here, I have also taken away my fair share of help and support along the path.

I especially like the wives and daughters that frequent here, often on the behalf of their men folk. Some men aren't good at communicating their emotional feelings in these situations, but I assure you, and the other fine ladies here, that your help and assistence is surely appreciated, even when the right words don't come out right.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 9/2/2010 7:42 AM (GMT -6)   
David - as always - you have our support on the path (or paths) you take keeping the PCa at bay and improving your quality of life - we are all a bit pessimistic at times and you have every right to be... here's to a minimal scarring - minimal pain and maximum positive outcome - hoorah for David !

hugs
BRONSON
Age: 54 -gay with spouse, Steve - live in Peteborough, Ontario, Canada
PSA: 10/06/2009 - 3.86
Biopsy: 10/16/2009- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/2009
Pathology: pT3a- gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
Post Surgery-PSA: April 8, 2010 - 0.05 -I am in the ZERO CLUB - hooorah!
Next PSA: Sept 23, 2010 -TBA

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/2/2010 10:22 AM (GMT -6)   
I have to believe that Bronson, there's a part of me that wants to cancel this next step, but then all I have to do is think of the intense pain I went through just two weeks ago when the tube had to be changed out. I can't keep going through that level of raw pain, over and over again.

I just need to stay focused on why I am about to do this next surgery, and think of what I may be like after recovery. At least have a shot at a somewhat normal physical life, and do enjoy doing a few things that I like to do.

There is an event here everyyear held at the BMW plant in Spartanburg. Its called Euro Fest, and its become the largest all foreign car show on the East Coast. This year is #15, I have been to all of the previous 14 shows, never missed one.

I was telling my oldest son, that due to recovery from this next surgery, I may not be well enough to go due to all the walking, as there is usually 400-600 cars on show. He made me feel good, and said if we have to rent a wheel chair for the day, he will take me and push me, so that I don't have to break my perfect attendence record. Thats a good boy
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1406
   Posted 9/2/2010 1:52 PM (GMT -6)   

David, I really do hope you can go to Euro fest.  I like your son's idea and hope to hear a good report from you!

Just seeing the pain that Ron went through makes me understand even more (but at a different level) the pain you must be having.  If you didn't give this new surgery a try, you wouldn't know if it would ever work or not.  I hope all measures are taken to relieve that pain, and bring about a more "normal" life.  Enough is enough.

Peace,

Aimzee


Husband Ron, age 63
Had Progesterone shots for 6 months. January PSA was .05.
4/1/10 PSA 5.5 Prostate size = 50 cc.
On Cipro (antibiotic) for 16 days
Biopsy on 4/20/10 12 samples... Adenocarcinoma: 3 positive on right side,
one core left base (5% ` 0.5 mm) - two cores of left lateral mid
(20% ~ 2mm, 10%, 10% ~ 1mm) - No Perineural Invasion
Gleason 6 (3+3)
Bone Scan/CT Negative
The surgery has been postponed twice.
August 18, 2010 - da Vinci Prostatectomy

(I do the posting for both of us.)

mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 9/2/2010 3:41 PM (GMT -6)   
David, you have more experience with catheters than anyone else here I'm aware of. I know your next procedure will result in some permanent changes but, I believe your QoL will be better. I'm sure you've done your homework.

I support your decision and faced with the same situation, I'd probably do the same. You have a supportive family at home and lots of people here rooting for you...

I only had a relatively short time on my single catheter and was lucky that, once it came out, I was continent with no problems.

Many thanks for always posting your experiences. Good or bad, they add a lot of experience and knowledge value.

Mike

PS: Will the hospital accept a large shipment of chocolates to your room?
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving. ED oral meds didn't do much initially. TRIMIX was working very well. Initial dose of 0.1 mL too much. Had priapism at 0.075 mL that ended up in a humiliating ER visit. Doses recently after 50% dilution by Uro about 0.025 mL or less. Don't use Trimix anymore...I'm too sensitive to it, even at very low doses and the Alprostadil is pretty consistent in causing erection pain...had a few episodes of 3+ hour wood with pain.
-Levitra now starting to work at low doses of 5 mG to 10 mG. Sometimes the side effects like stuffy nose aren't fun...sometimes OK.
-Was supposed to see ED doc last week, but due to his schedule, will now be late August. Will discuss bimix with him.
 

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/2/2010 4:13 PM (GMT -6)   
Aim, thank you. Enduring pain for a few hours or days, is one thing, but there hasnt been a single day since October 1, 2009, that I haven't spent the majority of each day dealing with light, moderate, and even severe pain. Hasn't been a single day that I haven't needed to be on prescription pain meds before the day ends. I hold off as long as I can, and then once I am pushed to the edge, I relent, and take the stronger stuff. I can't even imagine, not hurting deeply for a single day, that alone would be a gift at this point. The thought of being in perpetual pain, drives me forward, even to this next surgery. It won't be a piece of cake, and the recovery may be difficult at first, but I am lining up all the help I can locally to help me through it. My best to your husband.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/2/2010 4:17 PM (GMT -6)   
Mike, you have been a great ally and friend. You know my situation pretty well, even away from HW, and I have always appreciated your kindness and friendship.

This op is a bit of a leap of faith, an educated attempt to break out of the "purgatory" of being stuck in a limbo of constant pain and limitations. Its time to move on and try this, I can't mentally handle even another month of going through this, despite lasting it 11 months so far. Not sure how many others here would have lasted even this long without going nuts or the deep end. My surgeon is highly experienced doing this, my GP gave him high marks too, and thinks this is my best hope. That's all I can ask for, is a chance to break this misery, and I am willing to gamble on this after much research and deliberations.

Yeah, some good chocolate will be required on the recovery side. Best not to send to hospital, as I will be on a feeding tube for 3-4 days to begin.

Stay in touch, my friend

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 9/2/2010 4:44 PM (GMT -6)   
Then it looks like you made the right decision for yourself. And you have my full support.

You're right. Most, certainly myself, may have gone in the peanut jar long ago. I respect your attitude and outlook. I think Worried Guy is planning something you might hear, even at the hospital.

I hear there's an IV version of some good chocolate out now...I'll let you know...

I will stay in touch.

Mike
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving. ED oral meds didn't do much initially. TRIMIX was working very well. Initial dose of 0.1 mL too much. Had priapism at 0.075 mL that ended up in a humiliating ER visit. Doses recently after 50% dilution by Uro about 0.025 mL or less. Don't use Trimix anymore...I'm too sensitive to it, even at very low doses and the Alprostadil is pretty consistent in causing erection pain...had a few episodes of 3+ hour wood with pain.
-Levitra now starting to work at low doses of 5 mG to 10 mG. Sometimes the side effects like stuffy nose aren't fun...sometimes OK.
-Was supposed to see ED doc last week, but due to his schedule, will now be late August. Will discuss bimix with him.
 

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/2/2010 5:15 PM (GMT -6)   
Cool, godiva in IV drip form might be the ticket. Are you still going to get to go to Jeff's Hoot-en-anny? I hope you can, it can't be that faOr for you, if you have the available time. That's a great part of the country, and I will surely miss the fellowship of being with so many brothers at one time. When Jeff tells me to look out the window from the hospital, I will do so, I can always pretend its the Northern Lights, lol.

Or if you could convince Jetguy, to come pick me up at the Downtown Greenville Airport in his Gulfstream, perhaps I could come on a gurney, only be about a 2 hour flight or less.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 9/2/2010 5:59 PM (GMT -6)   
David, you're in my thoughts and prayers. I'm confident in your decision to move forward with the upcoming surgery. Please remind me of the scheduled date. Keep your chin up brother.

mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 9/2/2010 5:59 PM (GMT -6)   
Jetguy....Time to step up...LOL.

I'm sure Worried Guy (Jeff) will do really good and be most creative! I will attempt to help in all manners technologically possible.

You'll have a lot of people wishing you well in your surgery:)
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving. ED oral meds didn't do much initially. TRIMIX was working very well. Initial dose of 0.1 mL too much. Had priapism at 0.075 mL that ended up in a humiliating ER visit. Doses recently after 50% dilution by Uro about 0.025 mL or less. Don't use Trimix anymore...I'm too sensitive to it, even at very low doses and the Alprostadil is pretty consistent in causing erection pain...had a few episodes of 3+ hour wood with pain.
-Levitra now starting to work at low doses of 5 mG to 10 mG. Sometimes the side effects like stuffy nose aren't fun...sometimes OK.
-Was supposed to see ED doc last week, but due to his schedule, will now be late August. Will discuss bimix with him.
 

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 9/2/2010 6:02 PM (GMT -6)   
Hey David -- can you have a laptop in the hospital?
 
Mel

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/2/2010 6:32 PM (GMT -6)   
yes, i can. but have never taken one before with all my ops.

the first few days, i will have so many stents and tubes and stuff down my nose/throat/neck and on morphine, wont be thinking much about computers to be honest.

i will probably wait till i am back home in the recovery mode before coming back on line. for my distracters, they can have a "non-purgatory" break, lol.

a couple of guys here have my phone number, and i will get my wife to relay a message or two once i am on the other side
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

NEIrish
Regular Member


Date Joined Aug 2010
Total Posts : 245
   Posted 9/2/2010 6:44 PM (GMT -6)   
This sounds brutal. Absolutely brutal. I cannot imagine the misery. It makes the thoughtful, knowledgeable, deeply caring posts you provide all the more wonderful. We (husband and I) want you to be WELL. If one can send healing energy through keystrokes, believe it when I say that our keys are humming here. All blessings to you and those you love that live in Purgatory with you, David. We'll be thinking of you on the 22nd.
Husband 60yrs., no symptms: PSA 10/04 2.73, 12/06 3.64, 5/09 3.9, 10/09 4.6, 1/10 5.0w/ free PSA 24
6 core biop 4/1/10 path rept: rt mid: adnocarc. G=3+3, 5% of core; R apx v. susp. minute ca, R base bnign w/ mod. atrophy, L side atrphy only; 2nd opnion JH confrmd
MRI - 15mm nodule
BiLatRP surg 7/6/10, path: T2c, nodes, sem.ves, extra caps. neg., adenoc both sides G=3+3 cntinent, Viagr-8/27 ED

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/2/2010 8:21 PM (GMT -6)   
cox and mikey, a big thanks to you guys.

NEIrish, thanks to you and your husband in advance. I like the Irish part of your name. With my last name, and my wife's maiden name, we arent too removed from being Irish. My mother is British, but both my Grandfathers were from Belfast. I use to head the only branch of "Irish Northern Aid" in the whole state of South Carolina for several years before the Good Friday Agreement was signed.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 670
   Posted 9/2/2010 8:32 PM (GMT -6)   
I'm pulling for you, David. I know I would want an end and resolution to the troubles you have been having, if it were me. My prayers for a successful surgery and speedy recovery (and no catheters!).
Jeff
Gleason, 3+4; PSA, 7.9
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
pT2c, prostate 60.2g, margins: negative; perineural invasion: present; lymphatic invasion: present; 3 lymph nodes removed, clear; seminal vesicle invasion: absent; Gleason 4 comprises 5-10% of carcinoma
PSA consistently <0.1 since surgery until Oct 09: 0.1; retested Oct 09, <0.1,
Jan 10, 0.2
retest Feb 1 confirmed 0.2
CT scan, bone scan Feb 10 both clear
PSA after, 2010: March, 0.17; April, 0.17; May, 0.24; June, 0.31; July, 0.29; Aug, 0.41
Started salvage IGRT on August 4, plan 72Gy total, 40 doses

DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 818
   Posted 9/2/2010 9:15 PM (GMT -6)   
David,

If there are other events you don't want to miss, but are not up for, you could do what the NASA ARC center director did while recovering from surgery: he hired an "avatar" robot droid:

http://www.nasawatch.com/archives/2010/08/center-director-1.html

Sort of looks like a Segway with no person attached.


DJ
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