Still in the Zero club after two years

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coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 9/1/2010 8:45 PM (GMT -6)   
I don't post much but I still check in daily . Just received my two year post op PSA. 0.00. I'm blessed to have renewed my membership in the Zero club. turn
Age 51 @ DX
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
Mild ED for about 10 months. Levitra worked well for me. No ED at one year.
PSA 0.00 at 24 months post op

Post Edited (coxjajb) : 9/1/2010 8:53:55 PM (GMT-6)


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 9/1/2010 8:48 PM (GMT -6)   
hoorah for you coxjajb !! - here's to a lifetime of zero's !!!!
hugs
BRONSON
Age: 54 -gay with spouse, Steve - live in Peteborough, Ontario, Canada
PSA: 10/06/2009 - 3.86
Biopsy: 10/16/2009- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/2009
Pathology: pT3a- gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
Post Surgery-PSA: April 8, 2010 - 0.05 -I am in the ZERO CLUB - hooorah!
Next PSA: Sept 23, 2010 -TBA

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/1/2010 8:53 PM (GMT -6)   
That is truly wonderful news to read tonight, congratulations and many more to come I hope
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 9/2/2010 12:41 AM (GMT -6)   
Hopefully I am same same, just a couple of months behind ya..........Congrats.....Kev

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 9/2/2010 3:15 AM (GMT -6)   
Congrats.

anxiety out the roof
Regular Member


Date Joined Aug 2010
Total Posts : 111
   Posted 9/2/2010 4:36 AM (GMT -6)   
GREAT NEWS- for those of us just beginning our journey;we need to hear more of these success stories

NEIrish
Regular Member


Date Joined Aug 2010
Total Posts : 245
   Posted 9/2/2010 7:09 AM (GMT -6)   

Only time when it's sooo sweet to be called a real Zero.  You're such a zero, coxjajb.:-)  Hope you always remain one!  And great stats a year before too - hope for all of us, as Anxiety says, who are newer travelers on the road.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 9/2/2010 7:11 AM (GMT -6)   
Your our poster man with those zeros. Horrah and let them keep on coming in.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael

SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 9/2/2010 7:13 AM (GMT -6)   
Awesome News !!! As we all aspire to be zero's for the rest of our time here!!!!!

Celebrate, and enjoy the great news!!!!!!
Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4). Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008, Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
6 Post OP PSA's from 9/2008 to 6/2010: <0.1
 
 
 

TinFoilHat
Regular Member


Date Joined Sep 2010
Total Posts : 51
   Posted 9/2/2010 10:27 AM (GMT -6)   
I'm a loooooong ways away, but I hope I can join at some point.

mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 9/2/2010 2:46 PM (GMT -6)   
Great news! I hope to be in the same boat at 2 years. Yahoo, good for you!

Mike
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving. ED oral meds didn't do much initially. TRIMIX was working very well. Initial dose of 0.1 mL too much. Had priapism at 0.075 mL that ended up in a humiliating ER visit. Doses recently after 50% dilution by Uro about 0.025 mL or less. Don't use Trimix anymore...I'm too sensitive to it, even at very low doses and the Alprostadil is pretty consistent in causing erection pain...had a few episodes of 3+ hour wood with pain.
-Levitra now starting to work at low doses of 5 mG to 10 mG. Sometimes the side effects like stuffy nose aren't fun...sometimes OK.
-Was supposed to see ED doc last week, but due to his schedule, will now be late August. Will discuss bimix with him.
 

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 9/2/2010 2:54 PM (GMT -6)   
Yea thats exactly what I want to hear at the 2 year mark in Oct. Thanks for posting.

Cajun jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
Only issue at this time is ED

LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 9/2/2010 3:08 PM (GMT -6)   
Ain't life wonderful...just can't beat gettin a zero can you. Congrats man...and may you have a lifetime of them.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009     .06
                   6 month Apr 2009     .06
                   9 month Jul  2009     .08
                 12 month Oct 2009     .09 
                 18 month April 2010   .19

livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 9/2/2010 3:36 PM (GMT -6)   
Best news I have heard today, I think I will go celebrate for you.

peace and joy
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
I was on Lupron, Casodex, and Avodart for two years with my last shot March 2009. I am currently (7-22-2010) not on any medication.
My Oncology hospital is The Cancer Treatment Center of America in Zion IL
PSA July of 2007 was 16.4
PSA May of 2008 was.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13
PSA April 16th of 2010 is .16
PSA July 22nd of 2010 is .71
Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%

Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 285
   Posted 9/2/2010 4:19 PM (GMT -6)   
Super! I hope over time all of us will report the same although a few of us have been routed differently for a bit. We are pleased for you!

Our best to you and the rest of the gang,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op clear margins, no extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, SRT 01/19/10 started 39 sessions 70.2gy, psa 6 weeks into salvage IMRT up to .4
Post SRT psa at 10 weeks (5/31/2010) down to .2, @20 weeks (8/20/10) .1 (getting close)

DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 732
   Posted 9/2/2010 8:18 PM (GMT -6)   
Good to hear from you, and good for you!
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09, 07/30/09, Oct 2009, Nov 09, Feb 10, June 10 still undetectable (<0.01)!
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