I think somewhere in this spirited discussion that it is logical to ask the QOL question. Maybe it is a stupid, selfish uneducated way of thinking, but darn, I have been forced to give up sex and maybe a tad on the contine3nce issue with an occasional drip in my pants,
I have been on a low carb diet plan which would make the animal protien naysayers wince, but I have been able to drop 35 pounds, drop my cholesterol, and enjoy a sense of feeling good.
As a Gleason 9, maybe I am on a little different journey. The odds aren't with me in many ways. My chances for BCR are pretty strong.
There is what I would call anecdotal evidence on diet and PC. It is a really hard trial to conduct with a bunch of 50 yr old plus men who have had cancer, have had varied eating habits and environmental exposures, and drink water and breathe air in different communities. Even if we could put them in a bubble for a year, it is tough to filter out all of the variables.
I salute those who are able to change their diet and life styles to such a radical extent. As a 2 month exercise, I am interested in Johns little experiment. But we have seen men's PSA vary by 1 or 2 points here with no changes. A change of .01 or .02 would be hard to say that it was a direct result of diet change.
I guess I am foolish enough to say that I am not willing maybe even not able to give up the one thing that I enjoy, and that is my quasi-normal eating habits, which I have come to enjoy. It really is a QOL point with me. If I am destined to ultimately die with this darn disease, I am least going enjoy my remaining years living as close to normal life as I can.
Sex may niot be what it was, but it is good, continence may not be what it was, but it is good, and eating is still very good. The PC can take away a few things, but darn it, not all of it.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic 4/14/09 Nerves spared, but carved up a little.
0/23 lymph nodes involved pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free 6 week PSA <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED. Trimix injection
No pads, 1/1/10, 9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01