ahiinc asks: Anyone have info on current or soon to be run clinical trials, genral info about them?

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James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 9/7/2010 2:36 PM (GMT -6)   
In another thread, ahiinc asks:

Since I was informed my best chance for survival was Clinical Trials I have been trying to learn as much as possible. I've not seen much in the way of postings and I am still looking for a source for info. I definetly feel like I am out of the loop relative to this subject and I feel I am alone in my quest to find info on Clinical Trials. In my search on the Forum I have been unable to find a thread specific to Clinical Trials. Any help would be appreicated.
SteveC


I'm moving this over and giving it it's own thread to help generate some more responses, in case anyone is not looking at the couple years old thread this came from. James C.

Aprilsunny
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 9/7/2010 3:56 PM (GMT -6)   
clinicaltrials.gov/ -gives background info, and allows you to search by condition/location. Not sure if this is what you are looking for.

Wishing you all the best!
Brief History (Husband)

Age - 60

4th of 5 brothers. Brother 3 died at 65 of PCa, brother 2 is five-year survivor of PCa, (brother 1 died at 61 of heart attack). So far brother 5 is okay.

PSA - October 2009 - 6.4
Biopsy - November 17, 2009 - Gleason 4+3=7 DRE Normal Stage T1C
open RP - January 14, 2010
Catheter removed Feb. 1, 2010 - Minimal incontinence
Oral pathology report - contained in prostate, no EPE, no seminal vesicle involvement, no positive margins N0MX Gleason 7 "No further treatment necessary", says surgeon. Time will tell.
First post-op PSA - early March

tarhoosier
Regular Member


Date Joined Mar 2010
Total Posts : 495
   Posted 9/8/2010 11:00 AM (GMT -6)   
Medivation, the company with MDV3100 has a press release on their site regarding a pre-chemo trial; phase III. This trial is not posted at clinicaltrials.gov, though a patient in England says yesterday he was offered this trial in the near future by his research oncologist. Investigators would know more than the public and the trials listing site is updated from the company. Medivation plays things close to the vest so it does not surprise me they will move ahead soon with a trial and send out information at the last minute. It will likely be subscribed quickly.
(prostate-cancer.org.uk, then Diagnosis, search for philClarke)

ahiinc
Regular Member


Date Joined Aug 2010
Total Posts : 23
   Posted 9/20/2010 9:18 AM (GMT -6)   
I was hoping to find someone who has been given the same direction as me.  One side of me says this is just a last ditch effort with products that are not yet good enough for the market but it's better than just rolling over.  The other side of me says, These pharmecutical  R & D's have been looking for a cure for years.  Perhaps these are the best medicines and most advanced proceedures and I am lucky (should I qualify and get an actual treatment) to have the oppertunity to be treated by these drugs/treatments.  I really don't know what to think.  I've not given up hope but am very discuraged by my own lack of understanding.  This is as much an emotional cry for help as it is an educatinal cry...
SteveC
 
2005 prostate removed 35 PSI 4.5 + 4.5 = 9 Gleason
2005 to current Hormone TReatment
Recurrent cancer and 3.5" tumor found 4/2010
4/2010 to 8/2010 Chemo
8/2010 to 9/16/2010 Radiation Treatmnet
 
 

Aprilsunny
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 9/20/2010 10:49 AM (GMT -6)   
Hi, Steve,

From a previous post, I know you are recently bereaved. If you don't already belong to a support group, have you looked into any local PCa groups that might be available to you? Some of the people on this forum have reported help in dealing with the depression that can go along with diagnosis and treatment with medication. Did you ever get a new oncologist? You don't seem to be getting much direction from your current drs.

Re: cliinical trials, here is another link more specifically for prostate cancer trials. I have read posts here and on other forums of men having success with these trials, so there is always hope. Abiraterone acetate for hormone-resistant Pca has shown a lot of promise in clinical trials, so much so that it is supposed to be made available to patients who meet certain criteria, beginning in October. There is also a discussion above relating to another trial that sounds as if it having some success, too.

So please stay encouraged that there are still avenues available to you. Wishing you the best of luck!

Best regards, Aprilsunny
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