First PSA Test Post MET Radiation - and the UGLY continues

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 9/8/2010 4:50 PM (GMT -6)   
I have an appointment with my Onco on Friday to discuss things and the future. This will be my first meeting with him since the completion of my MET radiation on August 9, 2009.

In preparation for the meeting I had blood drawn yesterday for a PSA test. Got a call a little while ago with the results, 2.2.

Not the news I was hoping for, then again I don't have any idea what the norm is for Post MET Radiation results. I was kinda hoping that the MET was the cause of my continuing to have a detectable PSA reading. Then again it could take a while. Who the hell knows with this crazy arse disease.

All I do know is that my PSA prior to MET radiation on July 22 was 1.3 and 6 and a half weeks later it is 2.2.

I am quite sure that HT will be a big part of the discussion on Friday and the jury is still out on how I will react. I think I have stated recently that I really don't want to do anything until January 1, 2011.

The doc will have to give me some really good life affecting reasons for me to not take the break I plan for the rest of the year. It is my intent to travel with my wife (starting a week from Sunday) and enjoy the holidays without thinking about PCa.

I am going to take a complete break from it until Jan 1. No more research, no more tests, and sadly no daily monitoring of HW. I am sure you guys will understand why. Just don't want to think about it at all.

I am not burying my head in the sand about it, I am choosing to take a break from it. I have done everything I can and with great due diligence and research. Had the surgery, had the IMRT, taken the tests, had the MET radiation and more tests. Nothing seems to be going in my favor at this point, so I just want the break from it altogether for a little while.

I will of course post the results and outcomes from my meeting with the Onco on Friday for posterity and the education of those that follow in our carpy little path of things called PCa.

Best to all of you, and Yes "EVERY DAY IS STILL A BONUS",

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 9/8/2010 5:09 PM (GMT -6)   
Sonny, sorry to hear the news about your rising PSA. I understand your desire to take time off from PC and enjoy life without thinking about it. I also understand your reluctance to start taking HT before or during the trip. I'm sure your doctor will discuss the pros and cons of your decision. I wish you the best.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/8/2010 5:10 PM (GMT -6)   
Sonny, you are a dear friend and a brother to me. I can honestly say, I understand completely, and support your decision(s) here without question. Still looking forward to seeing you and Lynn on your northbound route. Bless you brother, I am never more than a phone call away.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 9/8/2010 5:38 PM (GMT -6)   
Sonny:
 
So sorry to read what sounds like bad news, but maybe it's not. As you said, one needs to know what kind of PSA number to expect. You know, I still read of folks with PSA numbers that are huge (double digits or more), so maybe things are not bleak at all.
 
Please relay what you find out.
 
Funny, but having read so many posts here and elsewhere, PC seems to be the disease where you say "I am definitely NOT going to do this or that," but then you get backed in a corner. I hope the PSA is NOT that bad and the doctor says go ahead, take a break, and live/enjoy life.
 
Again, if your travels take you to Michigan, please visit or we can meet you somewhere.
 
I hope your wife is doing okay with the new regimen.
 
Best wishes,
 
Mel
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. Next PSA late Sept.

Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4276
   Posted 9/8/2010 5:44 PM (GMT -6)   
Sonny, sorry your results are not better and I certainly hope things work out for you.  In case you are interested, the new Blum-
Scholz book, "Invasion of the Prostate Snatchers" has quite a lot about HT...different drugs....different effects, etc.
 
 
Tudpock (Jim)
Age 62, Gleason 3 + 4 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 4/10/10.  6 month PSA 1.4 and now 1 year PSA at 1.0.  My docs are "delighted"!

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3893
   Posted 9/8/2010 6:02 PM (GMT -6)   
Sonny, brother, I have been reading a lot and I came across this.. While heavy duty HT is in your future, you could start off with light duty (Avodart, Proscar) until next year..These drugs have few side effects but they have been shown to greatly slow down the progression of advanced disease, give you a little time without symptoms to enjoy life a little and keep that PSA doubling time as long as possible..Ask your Oncologist what he thinks..
Age 68.
PSA at age 55: 3.5, DRE negative. Advice, "Keep an eye on it".
PSA at age 58: 4.5
PSA at age 61: 5.2
PSA at age 64: 7.5, DRE "Abnormal"
PSA at age 65: 8.5, DRE " normal", biopsy, 12 core, negative...
PSA age 66 9.0 DRE "normal", 2ed biopsy, negative, BPH, Proscar
PSA at age 67 4.5 DRE "normal"
PSA at age 68 7.0 third biopsy positive, 4 out of 12, G6,7, 9
RRP performed Sept 3 2010

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 9/8/2010 6:38 PM (GMT -6)   
Sonny, You know I support your decision. I will miss your post oh HW. We are brothers and as a brother I stand by your side. I am so looking forward to seeing you at the GFMPH weekend. It will be great to be together again.

Give Lynn my love.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
Only issue at this time is ED

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 9/8/2010 6:40 PM (GMT -6)   
Sonny - sorry to hear the news about the PSA level - as with all procedures we hope (expect) things to be more positive after the fact.

Very pleased and supportive of your focus on Quality of Life Assurance and actively demonstrating your motto "EVERY DAY IS STILL A BONUS".

-there are so many if -then logarithm and shoulda-woulda-coulda second guessing in life - enjoy your bonus

-hope you and your wife have a great trip ( the trees are changing colour soon up here in Canada - the newspapers / weather network even have favourite routes listed - and the percentage of colour)

-hugs to you both
BRONSON
Age: 54 -gay with spouse, Steve - live in Peteborough, Ontario, Canada
PSA: 10/06/2009 - 3.86
Biopsy: 10/16/2009- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/2009
Pathology: pT3a- gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
Post Surgery-PSA: April 8, 2010 - 0.05 -I am in the ZERO CLUB - hooorah!
Next PSA: Sept 23, 2010 -TBA

reachout
Veteran Member


Date Joined May 2009
Total Posts : 739
   Posted 9/8/2010 6:44 PM (GMT -6)   
So sorry to hear that, Sonny. Seems like only yesterday when we were both going though surgery. I wish your results would have been as good as mine, but who knows with this crazy disease, as you say. For all I know a year from now we may be in reversed situations. God bless you, and yes, take time off and enjoy life.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 9/8/2010 7:38 PM (GMT -6)   
Nothing I can add that hasn't already been said. I will keep you both in my thoughts and prayers. Enjoy your Quarter off, see ya in the Winter Quarter...

Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 9/8/2010 7:51 PM (GMT -6)   
I'm with Reachout's sentiments. We had surgery at the same time, and I've been following your story since. It's been a tough road for you and I am totally pissed off that you have to go through all of this. Take the time you need to enjoy life and come back rested and ready for the next round in this fight. God bless you.

john

ps If your travels take you anyplace near Rhode Island, look me up and I'll give you the 5 cent tour.
Age: 62
Pre-op PSA: 4.1
Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks ---> .04
at three month intervals -> .03; .02 .05 (darn it!)
ED: Improvement is very slow but there are positive signs. Doc has NOT put me on ED drugs yet but I am starting to anyhow.

Surgery: Dr. Jim Hu. Brigham & Women's Hospital, Boston

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 9/8/2010 8:00 PM (GMT -6)   
Sonny,
 
It is your life, and your shoes.  You have to live it, and walk in them.
 
God bless, hope to see you in New York.
 
Goodlife

rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 9/8/2010 8:09 PM (GMT -6)   
Sorry to hear your latest news. I hope you can take off and enjoy your travels. I believe it was you that posted that you had to re-train your dog from getting up so early after your first round of radiation. It seemed like it was yesterday but I know it was some time ago. I hope you get the break you deserve.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 9/8/2010 8:35 PM (GMT -6)   
Sonny,
Completely understand your desire to take a break from all of this, and that is healthy. I'm holding out for the good news part of your journey and hope that it is around the corner. As always we hold you and Lynn in our thoughts and prayers. Enjoy the beast or if the Dr changes your mind, the trip will get done sometime.
Michael

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 9/8/2010 9:12 PM (GMT -6)   
darn! mad
Have a great holiday away from this cursed disease. Sure hope 2011 will be better for you than this year.
All the best to you Sonny.
 
Mag.

Born 1936
PSA 7.9, Gleason Score 3+4=7, 2 of 8 positive
open RP Nov 06, T3a, Gleasons 3+4=7, Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1, Salvage RT completed (33 days-66Gy) 19 Dec 08
PSA: in Jan 09 =.05, all tests to date <.04

Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 670
   Posted 9/8/2010 10:25 PM (GMT -6)   
Sonny, we'll all be here when you decide to come back. Thanks for posting, your experience is helpful to us. I wish you all the best, and that the break until the new year (or whenever it is) will be very therapeutic.
Jeff
Gleason, 3+4; PSA, 7.9
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
pT2c, prostate 60.2g, margins: negative; perineural invasion: present; lymphatic invasion: present; 3 lymph nodes removed, clear; seminal vesicle invasion: absent; Gleason 4 comprises 5-10% of carcinoma
PSA consistently <0.1 since surgery until Oct 09: 0.1; retested Oct 09, <0.1,
Jan 10, 0.2
retest Feb 1 confirmed 0.2
CT scan, bone scan Feb 10 both clear
PSA after, 2010: March, 0.17; April, 0.17; May, 0.24; June, 0.31; July, 0.29; Aug, 0.41
Started salvage IGRT on August 4, plan 72Gy total, 40 doses

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 9/9/2010 10:12 AM (GMT -6)   
Thank you all for your kind words of never-ending support.

Tomorrow when I meet with the doc I will keep an open mind to what he has to say, but I am really hoping for his blessing in taking the time off that I need so badly.

Thank you also for the info that you have shared with me about alternatives and other HT philosophies. Tud, I have already purchased the book. Downloaded to my wife's Kindle a while back. It was certainly faster and much cheaper than waiting for print copy.

So all is well here. The sun is shining and I am on my way to pick up the RV from a service appointment. I plan to spend the rest of the day laying out the trip and scheduling the stops and RV resorts for the trip.

Don't know how this lays out for my fellow brothers in the area, but so far here is my route;

Orlando to Easley, SC- plan to stop by and see David (Purg)

Easley to WV- over night rest stop, about 500 miles is all I want to do in a day.

WV to Niagara Falls- Lynn and I will spend a few days at the falls and surrounding area.

Niagara Falls to Hilton NY- stopping for 3 days to participate in the GFMPH weekend.

Hilton to Vermont and New Hampshire- don't have the stops on the way yet, but I do know that we will be spending a couple of days in the White Mountains region.

On to Bar Harbor Maine- visit to Acadia National Park and the seaside and great eating.

Down to Boston- gotta go there while I am in the area. Baseball may be done by the time we get there, but we plan to take a tour of Fenway at the least.

Heading down towards Williamsburg VA - just seems like a cool place to go.

A stop at Myrtle Beach for a few days.

Maybe Savannah- Lynn has family there.

Back home by Halloween Weekend- We have primo spots reserved with friends for the Florida-Georgia Game Weekend. Billed as the world's largest outdoor cocktail party.

November 1st- reservations for the next shuttle launch.

Back to the house- Thanksgiving will be soon and then the rest of the holidays. January 1st will be here before I know it and then jump back on the PCa Bandwagon and Journey.

If any of you live in the path of the Beast (RV) let me know, maybe we can work out a meet and greet. It would add a special touch to the trip.


Sonny

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3893
   Posted 9/9/2010 11:04 AM (GMT -6)   
If you are into the Civil War at all Sonny, Fredricksburg and Spotsylvania Va. are very interesting and powerful places...100,000 men gone in 30 days..The thunder still echoes..At the Spotsylvania Battlefield, I think you can park your camper in the forest right amongst Lees trenches, which held, and turned the Federal troops back to Fredricksburg..

A warning, traffic is a nightmare along that I-95 corridor...I hope you have a Great Trip!! Ask your Doc about the Proscar and Avodart....Might be worth a try..

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 9/9/2010 11:26 AM (GMT -6)   
Fairwind,

Thanks for the info, I'll plug it into my searches for the trip. I plan to talk to the doc about all the alternatives, thanks for the heads up.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3743
   Posted 9/9/2010 12:02 PM (GMT -6)   
Sonny,
We are looking forward to seeing both of you in 3 weeks.

I'll leave the light on for you - (and the High Energy UVC beams turned off!)

I heard that driving an RV to a weekend with friends is GFMPH.

Jeff

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 9/9/2010 12:08 PM (GMT -6)   
Jeff, admittedly I am not a science guy, but my calendar says that I will be at your house 2 weeks from tomorrow.

If you think it is three (3) weeks, you just lost one in your preparation time. LOL

Really looking forward to the gathering and meeting everyone. Lynn is also very much looking forward to it. You guys have showered her with soooo much support and prayers over the last year, I think she is as excited as I am to see you in person and say thanks.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2

Irish Colleen
New Member


Date Joined Sep 2010
Total Posts : 1
   Posted 9/10/2010 9:51 AM (GMT -6)   
We (hubby and I) are fairly new to the whole life with Prostrate Cancer. The Man (aged 62 as of Feb) was diagnosed April 14th 2010 with a PSA of 2340. Two years ago it was less than 1. Twelve biopsies performed with the results being 11 of them 4+5 and 1 being 43. All were at least 80% cancerous. Metastatic bone cancer wide spread to spine, skull, hips, pelvis, ribs, scapula and femurs. Liver enzymes were over 530 so metastatic to liver cancer also.

Doc was really adamant that his only choice of treatment choice would be Hormone Therapy. Got his first injection on May 7th, also take Bicalumite and Flomax daily. Went through the first month like zombies and had no idea what to expect next. What a difference the HT made. He has gained back all the weight he lost (25 pounds), is feeling great, has a healthy appetite and is a going concern... still needs a nap every day but what the heck..who doesn't like a nap.

His first psa test after 3 months came in at 6.8! That is down 2,331.2 points. Huge difference, still high by normal standards but again...great news. His liver enzyme test results came in at 255 so down also.

Side effects have been severe hot flashes and a much greater appreciation for menopausal women but a small price to pay in the grand scheme of things. Travel this fall is our goal so we won't be back home until January... except for when he gets his next injection the first week of November.

Sonny, we wish you all the best as you continue this journey but just wanted to say that the HT for the Man has been a godsend! Can post all his actual results if anyone is interested.

Thanks for sharing your stories...it means a lot to the women who share your journey's.

Irish Colleen

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/10/2010 10:16 AM (GMT -6)   
Sonny, watch out, Jeff might be into time travel experiments too, so make sure he is back in the right year when you are there.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.
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