OCTOBER SURGERIES

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Ger42
Regular Member


Date Joined Apr 2010
Total Posts : 189
   Posted 9/10/2010 3:43 PM (GMT -6)   
The August surgery post went so well I thought I'd set one up for October. This thread is for discussion/support for this month's RP surgeries. We know of the following members with surgeries planned:


Tim(pipedream) 1st

chefboz 4th

inwm 6th

Ger42 12th

2 time survivor 12th

Highwayman 22nd

TinFoilHat 23rd

Pocketman. 29th

Post Edited (Ger42) : 11/25/2010 1:22:45 PM (GMT-7)


pipedream
Regular Member


Date Joined Aug 2010
Total Posts : 64
   Posted 9/10/2010 10:04 PM (GMT -6)   
My husband, Tim....on Oct 1st.
Husband DX @ 64; 7.5 year survivor colon cancer; father had PCa @ age 65
04/09 - PSA 3.06 - retest in 6 mo
10/09 - PSA 1.55 Free PSA 7.74% - retest in 6 mo
04/10 - PSA 4.26

Biopsy 7/10
R base - 3+3=6 10%
R mid & apex - benign
R anterior horn - 3+4=7 20%
L base - 3+4=7 90%
L mid - atypical small acinar prolif
L apex - 3+3=6 < 5%
L anterior horn - 4+3=7 60%

Ger42
Regular Member


Date Joined Apr 2010
Total Posts : 189
   Posted 9/16/2010 9:29 AM (GMT -6)   
Date and time set Oct 12 at 3PM. Our son will be coming in on the 23rd and staying for a week. Our 2 dogs go in to the kennel the morning of the 12th. Wife will get them out the morning of the 19th. Wife is planning to take the 12th through the 22nd off.
I'm worrying more about how Gracie and Mojo my 2 dogs will take all of this than I am about the surgery. I was actually considering radiation not because I thought it was the best course of action for me but because it would be less disruptive to the dogs.
This may sound strange but the thought of dying of cancer is being out weighted by the thought of me possibly having to wear diapers for a year or more.
The Thursday ramblings of a man who is getting older by the minute.

Only 2 of us for October?
Age 68 weight 185 height 6'
Samples taken 4/19/2010 sent to Bostwick
3 out of 12 samples cancer
1) gleason score 3+3 involving 65%
2) gleason score 3+3 involving 65%
3) gleason score 3+3 involving 10%
PSA 3.5 Mar 19
PSA 2.5 Apr 4
Bone scan clean CT scan clean
Da Vinci 8/24/2010, rescheduled to 8/26, now Oct 12th
God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.

rhb47
Regular Member


Date Joined Mar 2010
Total Posts : 208
   Posted 9/16/2010 2:21 PM (GMT -6)   
Hi Ger,

Glad you finally have a date set. And don't worry so much about the incontinence issue-I think most guys are well on their way by 2-3 months. Just looking at the Aug. surgeries most of the guys are already pad free or just using 1 or 2 a day. Think positive!
The most important thing is that your cancerous prostate will be gone and then you can start working on any issues you might have. I glad your son is going to be able to help and your friends here on the site will be rooting for you.

Renee
Husband diagnosed 3/10
Age 56, PSA 4.7, free 7.6%

Biopsy 5 of 10 cores positve-all right side-25% to 57%
Gleason 6
DaVinci surgery with Dr. Vip Patel scheduled 8/9/10

Post Op: Gleason 3+4=7
Negative surgical margins and lymph nodes
No seminal vesicle and angiolymphaic invasion
perineural invasion present
Both nerve bundles spared
Cath out @1 week, totally pad free 2 weeks later

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 9/16/2010 2:27 PM (GMT -6)   
You know, I like the idea of having a monthly surgery group, it does help keep all the rest of the threads uncluttered and unconfused. Just my input as a member. It does produce a feeling of shared experience for the people invloved, feelings that will carry forward as long as they hang here- part of a special group,you know?
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., margins clear GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh, reoccurance?
ED continues: Bimix- .3ml or Trimix- .15ml

NEIrish
Regular Member


Date Joined Aug 2010
Total Posts : 245
   Posted 9/16/2010 4:04 PM (GMT -6)   
"Optimist" has just posted that a surgical date is now being arranged. He may join the Oct. group. I agree, James, that the monthly surgical group is a good idea. My husband's July surgery recovery was still helped along by the info I gathered and "fed" to him on the Aug. guys. We can thank An for that!
Husband 60yrs., no symptms: PSA 10/04 2.73, 12/06 3.64, 5/09 3.9, 10/09 4.6, 1/10 5.0w/ free PSA 24
6 core biop 4/1/10 path rept: rt mid: adnocarc. G=3+3, 5% of core; R apx v. susp. minute ca, R base bnign w/ mod. atrophy, L side atrphy only; 2nd opnion JH confrmd
MRI - 15mm nodule
BiLatRP surg 7/6/10, path: T2c, nodes, sem.ves, extra caps. neg., adenoc both sides G=3+3 cntinent, Viagr-8/27 ED

pipedream
Regular Member


Date Joined Aug 2010
Total Posts : 64
   Posted 9/16/2010 5:13 PM (GMT -6)   
I called the surgeon's office today to talk to his nurse with some questions as I felt that they had done almost nothing to prepare us for the upcoming surgery. She was friendly and somewhat helpful but still the information she provided left something to be desired.

I asked her if my husband should begin doing kegel exercises prior to surgery - she said, "No, those aren't necessary until after your first post-op visit". That seems to go against what I've read here and what my brother who recently had his bladder and prostate removed told me. So which is it? Helpful, or not? She did say it wouldn't hurt....

I asked what if we needed to have anything other than depends and loose fitting sweat pants on hand when my husband comes home from the hospital. "No....you won't have any problems until after the catheter is removed." Which brings up another question I have been embarrassed to ask....when talking about pads (as is often mentioned as how many pads guys use a day....), are they sanitary pads...or something else?

In answer to other questions: The Doc has two RRP's scheduled for that day and one small procedure. There will likely be a two-night stay - surgery on Friday, Oct 1st, probable discharge Sunday, the 3rd. No stats as to incontinence or other side effects...."It is individual". My husband can't get his wedding ring off - even with help of soap and water - "We like to have all jewelry removed but no need to cut it off - they will tape it or something."

When asked about the discrepancy between the surgeon being confident he can cure the PCa with surgery and our local urologist who seemed less confident she said the surgery wouldn't have been scheduled unless they thought it would cure my husband.

All in all, I estimate we have received <15% of the information we've learned about prostate cancer and potential treatments from the doctors and >85% from books and this forum. PCa is a strange disease - we never had such a sense of "being on our own" with my husband's colon cancer surgery, chemo & radiation. I mean, we had to make choices but it was not so unguided and unstructured as PCa has been. The colon cancer docs were far more willing to tell us what they would do or what they would recommend if it was their dad or brother. It has been disconcerting to say the least.
Husband DX @ 64; 7.5 year survivor colon cancer; father had PCa @ age 65
04/09 - PSA 3.06 - retest in 6 mo
10/09 - PSA 1.55 Free PSA 7.74% - retest in 6 mo
04/10 - PSA 4.26

Biopsy 7/10
R base - 3+3=6 10%
R mid & apex - benign
R anterior horn - 3+4=7 20%
L base - 3+4=7 90%
L mid - atypical small acinar prolif
L apex - 3+3=6 < 5%
L anterior horn - 4+3=7 60%

RP Surgery - October 1, 2010

NEIrish
Regular Member


Date Joined Aug 2010
Total Posts : 245
   Posted 9/16/2010 7:35 PM (GMT -6)   
Welcome Pipedream: You've discovered quickly how confusing, contradictory and uncertain PCa treatments and protocols are. If you don't have it already, Dr. Patrick Walsh's prostate book is considered the "bible" for PCa patients and you'll find it very helpful. Still, we've found many things have been a surprise post-surgery and the posts here have been tremendously helpful. Our own surgeon in Boston gave us a few handouts, but a surgery appointment made by us with Dr. Catalona in Chicago (we cancelled when my husband decided to stay closer to home) precipitated packets of letters and care sheets. You'd find his site helpful if you googled him.
The hospital released us with men's diapers, and they saw my husband through a very brief incontinency condition. The pharmacy aisles will have products/pads designed for men you could pick up based on what his condition is like when the cath is removed, but have some ready pre-surg. I'm surprised the nurse told you kegels after surgery. Nearly every book and doc highly recommends sets before surgery for a more successful continency outcome. It's just as important not to overdo them as it is to practice them. Good luck to you both.
Husband 60yrs., no symptms: PSA 10/04 2.73, 12/06 3.64, 5/09 3.9, 10/09 4.6, 1/10 5.0w/ free PSA 24
6 core biop 4/1/10 path rept: rt mid: adnocarc. G=3+3, 5% of core; R apx v. susp. minute ca, R base bnign w/ mod. atrophy, L side atrphy only; 2nd opnion JH confrmd
MRI - 15mm nodule
BiLatRP surg 7/6/10, path: T2c, nodes, sem.ves, extra caps. neg., adenoc both sides G=3+3 cntinent, Viagr-8/27 ED

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 9/17/2010 3:02 PM (GMT -6)   
Pipedream, some advice that may help you prepare for your husband's surgery:

The pads used for incontinence are not the same as sanitary pads...most large supermarkets and all the drug store chains sell incontinence products: Poise, Depends, Tena are all product names. My husband likes Depends Male Guards ... they're similar to a sanitary pad except that they "cup" the parts and provide more coverage and comfort. I think Tena makes male guards as well, but Poise doesn't.

Don't worry about the wedding ring...my husband couldn't get his off either and the nurse wrapped his ring finger in surgical tape to keep it from falling off (doubt that it would fall off since it's been on for 30 years but better safe than sorry).

I bought my husband a pair of sweatpants one size larger for him to wear with the catheter. He was so concerned about anything tugging on that baby and the fact that he could wear very loose pants helped him considerably. He wore them home from the hospital and whenever he went out of the house with the catheter.

Kegel exercises won't hurt...in fact, I know a fair number of folks who do them simply to keep the pelvic floor muscles toned (and allow better urinary retention). Our surgeon said do 'em - they won't hurt anything either before or after the surgery. But, you need to do them right so make sure you have proper instruction. I bet if you do a Google on Kegel exercises, you'll get alot of information and instruction.

Was kind of surprised to read that your husband's surgeon had two prostatectomies scheduled that day...wow, that's gonna be along for the surgeon! Unless he's back-up for the other surgery, which is often the case when the operation is long. My husband's surgery started at 4:00 in the afternoon and the surgeon came out to talk to me at 9:15 that evening.

A couple of weeks before the surgery, the doctor's office sent us an info kit in the mail which described the procedure and what to expect before and after. It talked about what would happen in the pre-op area, the anesthesia, emergency contacts, etc., and gave us a brief outline of what would follow including when to schedule removal of the catheter and staples and the first PSA test. The hospital also called a few days before the operation to see if we had any questions, concerns or special requests.

When your husband comes home from the hospital, have a small pillow for him to sit on for the ride home (or wherever you're going). He'll be given supplies for the catheter, and will have two catheter bags: one is a smaller, more discreet daytime bag that straps to the thigh but doesn't hold as much urine. The larger bag is for home and overnight use. The bags are very easy to empty and disconnect from the tube. You can take them in the shower with you...my husband would lay the larger bag on the floor of the shower while he soaped up. The surgeon encouraged showering every day and gently washing the area where the staples were (yuck) but said don't let the shower spray directly hit the staples. He suggested using a washcloth to cover the abdomen when rinsing off in the shower, and squeezing a wet washcloth or sponge over the sutures to rinse the soap off.

We were given bacitracin ointment to use on the sutures and the surgeon also recommended applying a little bit around the area of the penis where the catheter went in. This helped keep the area from drying out, or becoming irritated and/or infected. Worked fine for my husband.

Sunbird
Regular Member


Date Joined Apr 2008
Total Posts : 140
   Posted Yesterday 8:27 AM (GMT -6)   
Pipedream

Don't go crazy buying pads, Depends, etc. prior to surgery. I spent over sixty dollars on these items, and was 95% dry when the catheter was removed two weeks later. I had tossed the receipts, so I gave these items to the local nursing home. They were very happy to receive these items, but my wallet would have been happier with $60 in it.

On another point.

I passed a little blood on the OUTSIDE of the catheter when having a bowel movement after surgery. I think it has something to do with straining, and my doc or his nurse never warned me about it. I would have been on the phone immediately if I hadn't read it is very common. I read it here!

RCS
Veteran Member


Date Joined Dec 2009
Total Posts : 1268
   Posted Yesterday 8:46 AM (GMT -6)   
Pipedream,

I did Kegel's from the day I scheduled surgery (about two months pre). Increased the number I did each day .... slowly increased. I also changed diet, and started to walk more. Lost about 15 pounds. I'm not sure any of this helped, but it did give me something to focus on besides the operation.

After the cath was removed, I had no need for pads. Can't say this was due to the pre-op Kegels .... could have been the skill of the surgeon .... most likely I was lucky.

Like Sunbird, I ended up long on Pads, Diapers, etc. ... which made me happy. :-)

Best wishes and good luck.
PSA 2007 - 2.8; 11/24/2008 - 7.6; PCa Dx 2/11/09; age at Dx 62; RLP 4/20/09

Biopsy - Invasive moderately differentiated prostatic andenocarconoma; G 3+3=6; PT2C; No evidence of Seminal Vesicle or Extraprostatic Involvement; Margins clear; Tumor identified in sections from prostatic apex. 70 gram prostate. Continent after removal of cath.

ED - Trimix works well; levitra @ 90%
PSA - 7/31/09 <0.06; 12/1/09 <0.06; 3/29/10 <0.06; 8/4/10 <0.06

Post Edited (RCS) : 9/18/2010 7:49:46 AM (GMT-6)


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7080
   Posted Yesterday 1:31 PM (GMT -6)   
Pipedream,
 
A lot of my comments wound up in Alf's list that is at the top of the forum. Pity that I did not find HW until I had been home a couple of days.
 
I also found the amount of information from the doctor to be minimal. If I asked a question, he answered it (and I had a lot), but there was no prep packet. I accidentally found a site specifically for wives of PCa surgery guys (don't have it at hand right now), but that was where I learned about pre-positioning everything I would need the first days home in such I way that I didn't need to bend over or lift anything. Made my place look like a garage sale had taken over, but it worked.
 
The nurse who sent me home did do a good job on catheter dos and don'ts.
 
As to Kegels, start today. My GP suggested that. The uro said we would start with them afterwards if needed, and did not speak of them again until the cath was removed. Look them up, and try the first time while urinating - if it doesn't cut the flow, its not being done right. It was something you did with your girlfriend back in college days, never thinking about them being "medical".
DO NOT do them while the catheter is in (my GP's advice).
 
Pads - as already mentioned, the more useful ones are the "Mens Guards". Depends is the brand I use now. I used the Walgreens Certainty (house brand) at first, since it absorbs more. The Target and Kroger house brands are the same as Walgreems. Tena has one, but it has a little less capacity than the Depends.
 
Go to the Depends and Tena websites. Both will send samples (1 set per year per houshold). Both also have printable coupons (value varies from month to month, you can download one per month).
 
I am 11 months from DaVinci, and still use 1-3 a day, depending on activity and beverages. More often 1 or 2, but ....
 
For nighttime, early on I used the Tena Long pads, or the Walgreens "ultimate absorbency" womens pads when I was short on guards.
 
Keep the receipts - in the US if you have an FSA / HSA account with your insurance, they qualify this year. Also, most reputable stores will take unopened packages back. A few extras left around won't hurt. Better than my circumstances.
 
I sincerely wish that you have the problem of not knowing what to do with the extras.

Ger42
Regular Member


Date Joined Apr 2010
Total Posts : 189
   Posted 9/28/2010 9:36 AM (GMT -6)   
Welcome chefboz to the October club. Let us know how it goes.
Age 68 weight 185 height 6'
Samples taken 4/19/2010 sent to Bostwick
3 out of 12 samples cancer
1) gleason score 3+3 involving 65%
2) gleason score 3+3 involving 65%
3) gleason score 3+3 involving 10%
PSA 3.5 Mar 19
PSA 2.5 Apr 4
Bone scan clean CT scan clean
Da Vinci 8/24/2010, rescheduled to 8/26, now Oct 12th
God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.

TinFoilHat
Regular Member


Date Joined Sep 2010
Total Posts : 51
   Posted 9/28/2010 9:49 AM (GMT -6)   
Sunbird said...

On another point.

I passed a little blood on the OUTSIDE of the catheter when having a bowel movement after surgery. I think it has something to do with straining, and my doc or his nurse never warned me about it. I would have been on the phone immediately if I hadn't read it is very common. I read it here!


I read it here too, and having had my first BM post surgery today, I would have freaked if I hadn't known about it.

This site is a wealth of information (and, they invite you to parties without even knowing you very well :-) ).
Jeff

Age: 49 (09/61)

PSAs: 12/08 - 1.8, 12/09 - 2.5, 6/10 - 3.9, 8/10 - 5.7

Biopsy 8/10: 14 samples, 5 positive, Gleason: 3 + 3

open RP 9/23/2010

Post Op Path: Organ contained, Gleason 3+3, nerve bundles spared, negative margin.

Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1406
   Posted 9/28/2010 11:13 AM (GMT -6)   

Hi Ger ~ I just had to come by and see if you had your date yet, and I see you do.  Finally... I know how difficult it was for the postponement.  Remember about the suggestion of getting a smaller soft pillow in case you cough?  It really does work!  Well, that same pillow prevented our two year-old Granddaughter from climbing on Ron's lap.  So, I am wondering if that would help with your dogs? 

Pipedream, I bought the pillow for at Kohl's; 50% off -  paid $8.99.  I put a smaller pillow case on it, and Ron still uses it.  Ger,  maybe your wife can get the pillow and start preparing the dogs not to jump on you with the pillow?  Just an idea.  I am happy to hear that your son will be able to help you.

It's been six weeks since the surgery, and  Ron has been dry at night for 3 weeks.  He choose to wear the Depends rather than pads.  Now, he's down to one a day, sometimes two.  For him, this part has been a little slower than some of the other guys.  No one can guarantee when this will be back to normal.  One thing, Ron didn't do the Kegels and I think that may be why he's a bit delayed.  Now, he does them regularly.  Your ramblings are fine, Ger.  That's what this thread is for.

Pipedream, I am trying to comment to Ger, but there may be advice that you may find helpful.  I am sorry you have to go through this journey, and it is one both you and Tim share.

It was recommended here that we purchase the Depends adjustable.  You should have seen us at Walmarts looking at 6 different ones.  We got the right ones.  It was very hot during Ron's recovery, so I bought some pajamas that are knee length.  Also, I bought knee length (basketball style) shorts in a bigger size.  That worked out real well.  He wore them to and from the hospital.

Sephie has provided good advice!  If it is cooler than sweat pants would work.  Oh, Ron's surgery was at 10:30 AM; I finally saw him at 5:30 PM.  His surgery was less than three hours.  No staples, just a heavy glue-like material.

Oh, I can't forget the most important suggestion I found here!  Buy an oval bucket 12 quart size.  This was so helpful to Ron.  Now, in his case, he decided to use the overnight bag (the bigger one) rather than changing back and forth.  So, he laid the catheter bag in the bucket.  Also, he used it when he began his walks in our yard, side yard, and drive-way.  Can you just picture this?  He had the cath for 13 days.

There was so much good advice that I printed everything up for Ron to read.  We got the items we needed ahead of time, except the Depends.   I hope there is something here that will be helpful.

Best wishes,

Aimzee

 


Husband Ron, age 63
4/1/10 PSA 5.5 Prostate size = 50 cc.
Biopsy on 4/20/10 12 samples... Adenocarcinoma: 3 positive on right side, one core left base (5% ` 0.5 mm) - two cores of left lateral mid
(20% ~ 2mm, 10%, 10% ~ 1mm) - No Perineural Invasion
Gleason 6 (3+3)
Bone Scan/CT Negative (2 lesions on liver)
8/18/10 - Da Vinci Prostatectomy
Post Op: Gleason 7 (3+4)
Negative surgical margins and lymph nodes
Both nerve bundles spared
Catheter - 13 days

Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1406
   Posted 9/28/2010 11:35 AM (GMT -6)   
Pipedream, one thing we learned early on is to write ALL questions on a piece of paper before going to the doctor.  You should have seen Ron's surgeon - I laugh now - we both had lists of questions!
 
Yes, your brother is right about doing the Kegels ahead of time.  My husband had a harder time controlling the incontinence because he didn't start soon enough.  Also, try to get as much sleep as you can... now.
 
I don't understand this, "No....you won't have any problems until after the catheter is removed."  When Ron got the catheter removed, he was refreshed.  Just felt so much better. 
 
about your comment: PCa is a strange disease - we never had such a sense of "being on our own"  If it makes you feel any better, most of us felt this way.  I hope this forum will be helpful to you.  Check out Alf's list of information.  I would never have thought about getting a 12 quart OVAL bucket for Ron's catheter bag,  He slept on the couch, and laid it down on clean plastic.  Another hint we got here was to wrap toilet paper around the cath when having a bowel movement.  Ron took stool softeners for about a week.  They really helped.
 
I wish you the very best and will be glad when you are on the other side.  There is so much anxiety leading up to the surgery, but there is support here.
 
Aimzee
 
Husband Ron, age 63
4/1/10 PSA 5.5 Prostate size = 50 cc.
Biopsy on 4/20/10 12 samples... Adenocarcinoma: 3 positive on right side, one core left base (5% ` 0.5 mm) - two cores of left lateral mid
(20% ~ 2mm, 10%, 10% ~ 1mm) - No Perineural Invasion
Gleason 6 (3+3)
Bone Scan/CT Negative (2 lesions on liver)
8/18/10 - Da Vinci Prostatectomy
Post Op: Gleason 7 (3+4)
Negative surgical margins and lymph nodes
Both nerve bundles spared
Catheter - 13 days

Ger42
Regular Member


Date Joined Apr 2010
Total Posts : 189
   Posted 9/28/2010 3:31 PM (GMT -6)   
To all of the graduates thank you for all the information. This site is like having a mommy and daddy helping you through a difficult time. All of those who are sharing their experiences deserve a big group HUG. You that have gone through could just as easily stopped coming back here but you didn't and I for one am grateful.
Age 68 weight 185 height 6'
Samples taken 4/19/2010 sent to Bostwick
3 out of 12 samples cancer
1) gleason score 3+3 involving 65%
2) gleason score 3+3 involving 65%
3) gleason score 3+3 involving 10%
PSA 3.5 Mar 19
PSA 2.5 Apr 4
Bone scan clean CT scan clean
Da Vinci 8/24/2010, rescheduled to 8/26, now Oct 12th
God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.

pipedream
Regular Member


Date Joined Aug 2010
Total Posts : 64
   Posted 9/28/2010 5:18 PM (GMT -6)   
Thank you all so much for the advice and support. I confess that as the RP-day draws closer, my anxiety level is rising. My husband seems to be completely calm. You should have seen him at the pre-surgery check yesterday - cool as a cucumber.... apparently he is content to let me do the worrying for both of us.

Tomorrow is the first of two days with no food but clear liquids and a bottle of magnesium citrate to start off each day. Tim has had one-day bowel prep for his colonoscopies numerous times and it is pretty brutal. Is the two-day magnesium citrate bowel prep less ferocious? We're still trying to get our work organized enough to be off for two weeks. We're hoping Wednesday and Thursday he'll be able to work at his office at least some of each day. Is that realistic?

I honestly don't know what we would have done without HW members. Having this as a resource has been invaluable! Thanks again - I will be in touch and let you know how things go.
Husband DX @ 64; 7.5 year survivor colon cancer; father had PCa @ age 65
04/09 - PSA 3.06 - retest in 6 mo
10/09 - PSA 1.55 Free PSA 7.74% - retest in 6 mo
04/10 - PSA 4.26

Biopsy 7/10
R base - 3+3=6 10%
R mid & apex - benign
R anterior horn - 3+4=7 20%
L base - 3+4=7 90%
L mid - atypical small acinar prolif
L apex - 3+3=6 < 5%
L anterior horn - 4+3=7 60%

RP Surgery - October 1, 2010

mr bill
Veteran Member


Date Joined Sep 2010
Total Posts : 709
   Posted 9/28/2010 5:32 PM (GMT -6)   
The magnesium citrate is not as brutal a prep for colonoscopy. It is not fun, but it is not intolerable.
Age 66
BPH since 2000. at least three negative biopsies Erie. Uro did not prescribe finasteride
2007 acute urine retention photoselective vaporize Clev. Clinic
8-9-10 Aug PSA rose to 10.14 with finasteride positive biopsy Cleveland gleason 9, cat & bone scan negative
9-8-10 Robotic prostatectomy at Cleveland. B iopsy 9 nodes, 2 positive,seminal & vas deferens positive invasive adenocarc

An38
Veteran Member


Date Joined Mar 2010
Total Posts : 1152
   Posted 9/29/2010 6:21 AM (GMT -6)   
Good luck guys with your surgeries....
The things that my husband found useful after surgery were
1. The donut cushion
2. His light cotton dressing gown for walking up and down with at the hospital
3. This website
4. Eating lightly in the first two weeks (his first BM was a nightmare and it was caused by over-rich hospital food).
5. Having nearly 3 weeks off work and then he went back for half days for a few days then full days
6. Walking a lot

I hope this helps you. The other thing is to not expect anything - we were ready for him not being able to work for a couple of months, each person heals at their own pace. Even now, nearly six weeks post surgery, even though his routine looks pretty much the same as it always has he does look a little more tired and more fragile, he's still in recovery.

Ger, I'm glad you've started this thread, hopefully it will provide plenty of support and we all know where to look when we want to know how you are doing.

Best wishes,
An

An
Husband's age: 52. Sydney Australia.
Family history: Mat. grandfather died of PC at 72. Mat. uncle died of PC at 60. He has hereditary PC.
PSA: Aug07 - 2.5|Feb08 - 1.7|Oct09 - 3.67 (free PSA 27%)|Feb10 - 4.03 (free PSA 31%) |Jun10 - 2.69. DRE normal.
Biopsy 28Apr10: negative for a diagnosis of PC however 3 focal ASAPs “atypical, suspicious but not diagnostic” for PC. Review of biopsy by experienced pathologist, 1/12 core: 10% 3+3 (left transitional), 1/12 core: ASAP (left apex)
Nerve sparing RP, 20Aug10 with Dr Stricker. Post-op path: 3+4 (ISUP 2005). Neg margins, seminal vesicles, extraprostatic extension. Multifocal, with involvement in the peripheral, apex, fibro-muscular and transitional zones.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7080
   Posted 9/29/2010 11:13 AM (GMT -6)   
Pipedream,
 
I worked at the office the day before surgery, perhaps 2 hours, just to get all of the stuff that had to be up to date on the laptop sorted out, and to get my desk clear and co-workers up to date on where things were. By the end of that I was wiped out (from the clear diet), and wanted to be closer to a men's room that I knew would be available.

pipedream
Regular Member


Date Joined Aug 2010
Total Posts : 64
   Posted 9/29/2010 11:35 AM (GMT -6)   
Thanks, Veteran for the information. Hopefully that will be Tim's schedule tomorrow. We'll make a couple hour visit to the office, then we'll be on our way to Pittsburgh which is about a 3 hour trip. Now there's something I hadn't thought about until now - he better wear Depends because there are long stretches along the way with no access to bathrooms. Oh, he's just going to love that!

Tim's on his way right now to file papers at the courthouse to obtain a preliminary injunction, petition and complaint he stayed up most of the night preparing (I'm not happy about that but apparently it had to be done to prevent actions scheduled to take place on 10/2/10)....he's planning to drink the cocktail when he gets back. He was supposed to drink it first thing this morning but will be getting a later start due to not wanting to take the risk of embarrassing himself in the judge's chambers....oh, my...PCa surely does throw a wrench in the works, doesn't it?

Jazzman1
Veteran Member


Date Joined Sep 2010
Total Posts : 1162
   Posted 9/29/2010 12:27 PM (GMT -6)   
Thanks, everyone, for all the great information. I'm not on the October list, and probably won't be. I'm going to see the man next week to schedule my surgery, which probably won't be before November.
 
I had a lot of the same questions that were asked here. I'm sure there are others who aren't on the October list who wondered about these things as well. And I'll probably ask more questions when the November list is announced.
 
This is such a valuable forum, and people we don't even know are probably lurking and gaining a lot of valuable information. Thanks for sharing your hard-won wisdom with the world here. You guys are the coolest...

Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1406
   Posted 9/30/2010 4:48 AM (GMT -6)   

Pipedream, hoping all goes well for Tim's surgery!  Each man is different.  Ron is still experiencing fatigue; however, he does have other issues going on.

Jazzman, that is great that there is information here you find helpful!  Some of "us" guys that are the coolest are wives! turn

Aimzee


Husband Ron, age 63
4/1/10 PSA 5.5 Prostate size = 50 cc.
Biopsy on 4/20/10 12 samples... Adenocarcinoma: 3 positive on right side, one core left base (5% ` 0.5 mm) - two cores of left lateral mid
(20% ~ 2mm, 10%, 10% ~ 1mm) - No Perineural Invasion
Gleason 6 (3+3)
Bone Scan/CT Negative (2 lesions on liver)
8/18/10 - Da Vinci Prostatectomy
Post Op: Gleason 7 (3+4)
Negative surgical margins and lymph nodes
Both nerve bundles spared
Catheter - 13 days

bsjoplin
Regular Member


Date Joined Feb 2010
Total Posts : 308
   Posted 9/30/2010 11:56 AM (GMT -6)   
hi all:
i know the subject of this thread is "OCTOBER SURGERIES", and i don't have one, but just wanted to share my good news..
i've had hernia repair on BOTH sides, several years before my open RP, so now i have 3 cute scars up my front...i was having the familiar pulling, burning sensation, and assumed i probably had another hernia problem needing repair (apparently not uncommon after RP)....the surgeon says it appears to be a groin pull, and NOT a hernia problem, so i DON'T HAVE an "OCTOBER SURGERY" (!!) rah!!
i guess the point is; don't assume the worst, just go get it checked, and let the doc tell you what's up...
anyway, thanks for listening, and CHIN UP!
bob
 
 
Age@dx: 55
5/05 PSA: 1.8 ;12/07 PSA: 3.7 ;7/08 PSA:4.7
8/08 Biopsy1: 3 of 6 irreg
11/08 PSA: 6.5; 12/08 Biopsy 2: of 12, 3 cancer, other 9 irreg; Gl:3+3=6.
1/22/09 RRP; 1/25/09 Released; 1/28/09 Pathology: Cancer on 10% of gland, lymph & SV were benign, Gl re-typed 3+4=7, stage T2c
2/13/09 PSA:0.1
3/9/09 back to work
6/09 PSA:0.1; 10/09 PSA:0.1; 2/10 PSA:0.3 ; 4/10 PSA:0.4 Referred to RO
5/4/10 First RT.;6/25/10 Final RT. ended up 36 treatments, 64.8 Gy.
8/10 PSA:0.2
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