Current issue of Paact Newsletter synopsis on articles of interest perhaps

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zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 9/10/2010 6:27 PM (GMT -6)   
If you are not familar with www.paactusa.org  visit there website and find a tab or link to the newsletter(s), I think you can even archive and see some info on line also. The Newsletter is done a few times a year (maybe 3-4 times) and sent to you, you are asked for a donation basis to them for receiving the Newsletter and so that is a reasonable thing. They also have a phone number and will talk about PCa issues which are useful for newly diagnosed or less informed patients. They may even post your written letter to the editor within their Newsletter, mine was put in along while back.

These folks are helpful to patients even with little money or without insurance, they helped a friend of mine on a personal basis whom had no insurance, and did him more than justice. The articles in the Newsletter are usually written by doctors, names we as patients have heard about and may admire.  Some doctors offices have this Newsletter in their waiting areas for patients whom are interested in reading the world of PCa, my radiologist had their Newsletter sitting there and I read it and liked it. Been getting it for around 8 years.

Synopsis on current issue: (sept. 2010  vol 26, number 3)

High dose ketoconazole  (HDK+HC) with hydrocortisone by Dr.  Lam   (tells how to use it, what foods or drug interactions you have to watch while using, effectiveness found in abstracts and more...a good piece of information for someone considering doing this.

Degarelix- Dr. Jeff Turner  (co-worker with Dr. Leibowitz)  great must read article, the findings compared to Lupron are very interesting and you may find yourself asking for this drug instead of Lupron or other LHRH drugs

Cabazitaxel-  Dr. Sartor    This is recently FDA approved and has advantages over Taxol, if doing chemo therapy one needs to know this information for comparisons

Mark Moyad- usually writes about vitamins, herbs, supplements and debunks or confirms if there is value in them (he has like 5 tidbits in this issue)  He has books written if you wish to search for them.

Article on Advance Robotic Techniques-  Dr. Tewari, et al and 7 others collaborated.  This article has some more information and some pathological comparative data charts and more.

PAACT-  Patient Advocates for Advanced Cancer Treatments   (Michigan based-   616-453-1477 phone  Rick Profitt-  mgr.)

They have a number of leading PCa doctors on their medical advisory board, fyi. (like Dr. Strum, Labrie, Lee, Trump, Tewari, Sartor, Myers, Ragde, Leibowitz,  Dattoli,  Chinn, Barken,  Bahn, Baladament, Onik, Ablin, Arterbery, Berger, Leach) 


Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35 normal, ct and bone scans appearing clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off for 1 yr., controlled so well, resumed, using intermittently, pleased with results

Post Edited (zufus) : 9/10/2010 5:32:31 PM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/10/2010 6:29 PM (GMT -6)   
great info there, brother, thanks. looks like something we should all be reading, thanks for sharing

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 9/10/2010 6:38 PM (GMT -6)   
Thanks Dave I hope you can handle the anticipation of your upcoming new surgery, it would probably leave me sleepless. Best wishes going forward.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35 normal, ct and bone scans appearing clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off for 1 yr., controlled so well, resumed, using intermittently, pleased with results

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/10/2010 6:52 PM (GMT -6)   
zufus, i really count on you for bringing the type of info that you do here at HW, as much as I enjoy JohnT's type of contribution, and of course, Tony's and a few others. Looks like we tend to specialize in our unique way, and I think that is cool and useful. Math and languages was always my areas of expertise in the biz world, anything to do with science, biology, etc - is my week link. I think its good if we all can keep learning from one another.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.
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