What are the best painkillers?

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rick27
Regular Member


Date Joined Sep 2010
Total Posts : 71
   Posted 9/11/2010 9:33 AM (GMT -6)   
I would like to be in control of my own pain medication. I've seen loved ones in the hospital begging for pain meds and waiting for so long to get them. Can I get the Dr. to prescribe meds to me before the surgery? My biggest fears are: getting the tube stuck up my penis and not being drugged for it. Or being beholden to an overworked nurse in the hospital. Or being given doses that don't get rid of the pain.

zufus
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Date Joined Dec 2008
Total Posts : 3149
   Posted 9/11/2010 9:55 AM (GMT -6)   
The tube and the wango tango in installing such is not as bad as you might guess. I thought it would be terrible, but they use a lube with it and since you are manufactured with this built in plumbing (tube) of your own, it is less than a roto-rooter type deal. I had no anesthetic but was dealing with total urinary blockage before ever being diagnosed with PCa, the pain of the blockage was so bad I drove quickly to emergency room to get something done, asap. The tube thing looked scary, as that is going where? But it went way better than my senses were telling me and hind sight not that big of a deal. Of course driving that in a one way zone, does make our brain tell us...this is not proper flow of traffic (LOL). You can handle this.

Others can help you on drugs to use, do not take oxycondtin (spelling?) it is highly addictive or be ready for rehab soon after getting hooked, of course this is a s.w.a.g estimate on its useage.

Post Edited (zufus) : 9/11/2010 1:55:27 PM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/11/2010 9:56 AM (GMT -6)   
many hospitals will have a button device, that the patient controls, when you need more pain med, you hit the button, and it delivers the med instantly. i am about to have my 8th op in the past 2 years, and never had any problem with nurses giving me pain meds when needed.

your catheter will be inserted when you are aleady put under near the end of your operation, you will never know it was put in, nor will you feel anything. when it is eventually removed a week or two later, as a general rule, there is no pain involved.

hospital will not let you use any meds that you bring with you, so dont do it. your surgeon will prescribe to the nursing staff what meds you will need
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

60Michael
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Date Joined Jan 2009
Total Posts : 2243
   Posted 9/11/2010 10:17 AM (GMT -6)   
I was out like a light when they put the catheter in, just as well. They gave me Tordal thru IV while at the hospital which is a non-addictive pain med. Oxcodone was precribed to me for my return home, and it might be addictive to some people but it just made me sick after a week of taking them. You will have more say than you realize about the pain med so not to worry. Have an advocate such as a family member at the hospital with you as well. Let us know how it goes and my best to you.
Michael

rick27
Regular Member


Date Joined Sep 2010
Total Posts : 71
   Posted 9/11/2010 11:52 AM (GMT -6)   
Thanks guys!
History: 2 brothers with prostate cancer
Age 56
PSA at age 40: 2.5
PSA at age 45: 4.7. DRE normal. Advice, biopsy (I waited)
PSA at age 52: 8.0. DRE normal. 1st biopsy 12 cores, negative
PSA at age 55: 9.5. DRE normal. 2nd biopsy positive 2 of 14, gleason 3+3. both cores <5%
PSA at age 56: 9.2. DRE normal. 3rd biopsy positive 4 of 14, 3 cores <5%, 1 core 7% Gleason 3+4 in 1 core, prostate 81cc

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3892
   Posted 9/11/2010 12:03 PM (GMT -6)   
I am six days post RRP..There was no pain..In pre-op, the anesthesiologist will come in, say hello, inject "a little something" into your IV and it's lights out.. He may also inject a long-lasting epidural pain-blocking drug into your back (you will not remember it) that controls post-op pain for 24-36 hours...When you wake up 4 hours later, the first thing they will ask you is "Are you in any pain??" In your room, your nurse carefully monitor your pain level and deal with it effectively. Hospitals have come a long, long way..

FORGET about medicating yourself with pain meds, that's a big, big, no-no....
Age 68.
PSA at age 55: 3.5, DRE negative. Advice, "Keep an eye on it".
PSA at age 58: 4.5
PSA at age 61: 5.2
PSA at age 64: 7.5, DRE "Abnormal"
PSA at age 65: 8.5, DRE " normal", biopsy, 12 core, negative...
PSA age 66 9.0 DRE "normal", 2ed biopsy, negative, BPH, Proscar
PSA at age 67 4.5 DRE "normal"
PSA at age 68 7.0 third biopsy positive, 4 out of 12, G6,7, 9
RRP performed Sept 3 2010

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 9/11/2010 2:29 PM (GMT -6)   
You won't be awake when the catheter goes in...that's done at the end of the surgery. Most anesthesiologists put in a morphine line that you control...when you're in pain, you push the button (but it allows only some much morphine within a certain time period). John was given a script for oxy; we had it filled but he never used it. Honestly, his pain was minimal both in and out of the hospital.

Since opiates are binding (e.g., they contribute to constipation), our doctor cautioned above using them since John would not be allowed to have any solid food til he had his first BM. With my husband, having solid food outweighed any discomfort and he opted to not take the oxy. At night, I would give him (and me) two tylenol PMs which helped both of us sleep straight through the night...these over-the-counter pills were a blessing for us.

You don't need pain medication before...the hospital and anesthesiologist has a room full of drugs that they will offer you.

rick27
Regular Member


Date Joined Sep 2010
Total Posts : 71
   Posted 9/11/2010 6:44 PM (GMT -6)   
Thanks all. It is very comforting to know that the pain will be well managed. I knew this day was coming for the last 15 years. But still crazy worries have come over me. You folks on this site are a real blessing.
History: 2 brothers with prostate cancer
Age 56
PSA at age 40: 2.5
PSA at age 45: 4.7. DRE normal. Advice, biopsy (I waited)
PSA at age 52: 8.0. DRE normal. 1st biopsy 12 cores, negative
PSA at age 55: 9.5. DRE normal. 2nd biopsy positive 2 of 14, gleason 3+3. both cores <5%
PSA at age 56: 9.2. DRE normal. 3rd biopsy positive 4 of 14, 3 cores <5%, 1 core 7% Gleason 3+4 in 1 core, prostate 81cc

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/11/2010 6:57 PM (GMT -6)   
rick,

can i assume this is your first major operation, or perhaps our first op period? Your fear and apprehension is normal and expected. Pain control is one thing that is down to a science in our age. when a nurse asks you, how is your pain? Make sure you understand the 1-10 pain scale, and be honest. no time to be mr. macho, if you are hurting, say so, no prize for being a tough guy, all that does is retard your body's healing process and works against you.

the whole process can seem scary, but you will well taken care of, and once you are on the other side, its generally all about recovery, and getting a little better each day.

i am about to have my 8th surgery since my pc journey began nearly 2 years ago, after you have a few ops under your belt, it almost becomes routine. i have always had outstanding care at my hospital, would have nothing to complain about. my wife is a nurse, as is my daugther in law, and between them, there is always someone keeping an eye open on my care.

we will be glad whe you get through this part.

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

rick27
Regular Member


Date Joined Sep 2010
Total Posts : 71
   Posted 9/11/2010 8:07 PM (GMT -6)   
Thanks David. You have had a tough time. I pray it will get better for you!
Yes this is my first op. My brother had some tough times with his surgery in 1992. He was horrified that they shoved the breathing tube down his throat with no meds. It took three tries to get it in while he gagged violently. My brother-in-law had horror stories from the several times he had the tube stuck up his penis for his bladder cancer with no meds.
But the posts here have been comforting to hear.
History: 2 brothers with prostate cancer
Age 56
PSA at age 40: 2.5
PSA at age 45: 4.7. DRE normal. Advice, biopsy (I waited)
PSA at age 52: 8.0. DRE normal. 1st biopsy 12 cores, negative
PSA at age 55: 9.5. DRE normal. 2nd biopsy positive 2 of 14, gleason 3+3. both cores <5%
PSA at age 56: 9.2. DRE normal. 3rd biopsy positive 4 of 14, 3 cores <5%, 1 core 7% Gleason 3+4 in 1 core, prostate 81cc

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/11/2010 9:23 PM (GMT -6)   
rick,

sorry to hear about these horror stories from the past. usually those kind of things are not normal, and should be reported afterward to the hospital administrators.

the catheter you will have inserted will already be there when you "wake" up. but most times, even if you have to have another one inserted, if done properly, its more of a mental distress for us guys, then a physical horror. if the nurse/doctor uses a liberal amount of lydacaine gel, and let is numb a few minutes, it can take all the pain out of it. in reality, you are having a tube (the well lubricated) catheter inserted into your urethra (a natural tube). like many things in our private areas, thinking about it, is much worse than the doing it part, thank goodness.

i dont know your personal situation, but i hope you have loved ones and/or friends to help you through this part. what part of the country do you live in? I live in a small city 10 miles west of Greenville, SC, halfway between Charlotte and Atlanta, in the foothills of the Appalachian Mtns. Real preta ty country.

In the pre-op part of your surgery, they usally put the first numbing med into you shortly after you meet with your anathesiolgist. once they do, being that its inserted in a port in your IV, it hits fast, and at that point, you won't have a worry in the world.

On some of my ops, I am feeling good but conscious even entering the operation room. they are always icy cold, and they typically will keep you covered with pre-warmed blankets, it feels great at the time. i have even helped them move me from the gurney to the table, but that is about it. even managed to joke about with the staff. but once they slip a mask over your nose and mouth, and say breathe in, the lights go out, and you are in the blisss of la-la land, until some sweet recovery nurses is calling your name. It's really not unpleasant, in my opinion.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

rick27
Regular Member


Date Joined Sep 2010
Total Posts : 71
   Posted 9/12/2010 11:44 AM (GMT -6)   
David,
I'm living on Long Island. I trek into the NYC to Sloan Kettering because I understand it is one of the best cancer hospitals and my insurance covers it. I am married so I will have plenty of support. I am not telling anyone except my wife and daughter until after I am somewhat recovered. No need to worry everyone.
History: 2 brothers with prostate cancer
Age 56
PSA at age 40: 2.5
PSA at age 45: 4.7. DRE normal. Advice, biopsy (I waited)
PSA at age 52: 8.0. DRE normal. 1st biopsy 12 cores, negative
PSA at age 55: 9.5. DRE normal. 2nd biopsy positive 2 of 14, gleason 3+3. both cores <5%
PSA at age 56: 9.2. DRE normal. 3rd biopsy positive 4 of 14, 3 cores <5%, 1 core 7% Gleason 3+4 in 1 core, prostate 81cc

April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted 9/12/2010 2:40 PM (GMT -6)   
Purgatory said...
I am feeling good but conscious even entering the operation room. they are always icy cold,


Sorry this is OT, but my operating room was really cold too. Why do they make it so much colder than a regular air-conditioned room?

Dan

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/12/2010 3:58 PM (GMT -6)   
dan, i have alway been told it was to keep germs down in the OR, not positive if that is factual or not
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 9/12/2010 5:03 PM (GMT -6)   
After surgery a nurse checked me for pain about every four hour hours. All I had to do was acknowledge pain to get more medication. In fact, being awakened was more of a pain than the pain.
I would say, don't worry, you are likely to have more pain control options than you need.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day
9 mo. PSA 0.00 -- 1 light pad/day ED remains
12 mo. PSA 0.00 -- still one light pad and ED
16 mo PSA 0.00 -- light pad just for security, ED still an issue
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