I hate to say it, but there's something wrong with the way this disease is identified to the patient. There needs to be "norms".
One Uro told me he could not advise me at all on what I should do. "too personal".
Another was happy to answer the "If you were in my shoes" question.
Biopsy comes back and i'm 3+4.
Pathology comes back and it's 4+3.
Pre-op they're convinced it's contained so lets operate.
Post op it's reached the margins, and they say had they known they would not have operated.
Post op they sign me up for radiation.
2nd radiation oncologist agrees with me we should wait and see.
"THEY" all tell me their ethical obligation & measuring stick is my life.
I have to explain to "THEM" that quality of life matters to me more than simply numbers of years.
90% of men have ED after, 90% dont have ED, most have incontinence issues, most dont...
Old Gleason, new Gleason.
On and friggen on and friggen on.
I could start a song....
"Watch and wait, operate, radiatiate, dont hesitate, it's not too late, results are great, dont test fate"
First ever PSA test Jan 2010 @ 51 years old. 4.0.
Digital exam in March 2010 showed 1 side hard, other soft.
Biopsy, positive in 3 of 12.
Davinci @ Boston Medical Center, May 17, 2010.
Was suggested prior to it was likely contained.
June 1 advised 3+-4 was really 4+3 per pathology. Pos margins.
Listed on patholgy as PT3, but with extraprostatic extension,
microscopic invasion of the bladder neck, PT3A is perhaps the case.
Catheter removed June 1.. 1 pad/day, doing ok. ED, but not in rush.
Sore as heck down there, but doing much walking with my wife.
To meet with my Uri (1st meeting since) June 17 - 1 mo point, to discuss.
BMC already has me setup to meet with radiology.
Felling a little better each day. Cant tell if my expectancy just went from 10-15 down to 5-7, the information out there appears to be all over the place. I WILL NOT radiate my insides to the point of being a veg for the sake of a few years. QOL is primary to me. Selfish I guess. I pray for all of you as I do for myself, but must remember that i've had a pretty good 50+ years, and know others who have lost their children to disease.. so I dont have the nerve to complain! Update 7/14/2010: When I tried changing this sig a few days after creating it, system was broken. My new rad oncologist are discussing IMRT.. though he says he can see why waiting a bit and watching the PSA on super sensitive basis might make sense. I am leaning towards IMRT.. thinking is my body is pretty strong now, i'm 51, and if I can rid my body of this while trying to minimize the side effects.. I dunno. No really Good answers. When I said I didnt want radiation to the point of being a veg.. I really meant there is a limit as to where I wish to go in order to realize only a small increase in life expectancy.. and not that I am an unreasonable person. I do, after all, have an obligation to my wife and kids.