Husband experiencing pain- some reasons why?

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duomtn
New Member


Date Joined Dec 2009
Total Posts : 3
   Posted 9/16/2010 1:12 PM (GMT -6)   
I need some answers to a couple of questions. With prostate cancer, why would the base of the penis or back behind the bone pelvic bone? My husband experiencing excrusiating pain today. He has opted not to have chemotherapy or radiation, could it possibly have gone to his bones?

edited post to add a sjubject for archiving and easier searching. James C.

Post Edited By Moderator (James C.) : 9/16/2010 1:15:19 PM (GMT-6)


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 9/16/2010 1:17 PM (GMT -6)   
hello and welcome. You first question seems incomplete. Do you mean With prostate cancer, why would the base of the penis or back behind the bone pelvic bone have pain, maybe? I am sorry he is in pain and wonder what stage in his journey he is in. Has he had any treatments, biopsies or testing up to now to establish where he is in his staging? Without more info, I don't think anyone here can answer your question with any certainty..sorry. How about posting back with more info about his situation?

Ok, I see you posted the following back on 12/13/2009. Still would help if we knew he had had any further examinations by doctors or treatments. You got several resposnes then, which you never responded back to, for those who wish to answer her. Here's the link to the other post:

www.healingwell.com/community/default.aspx?f=35&m=1667683

You said:
12/13/2009
My husband has been diagnosed with prostrate cancer and he has chosen not to have any treatments done. My question is this: what is the end stage symptoms for prostrate? He is angry and scared which is understandable, but his mood swings are unpredictable. Any help or information I can obtain would be greatly appreciated. Thank you
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., margins clear GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh, reoccurance?
ED continues: Bimix- .3ml or Trimix- .15ml

Post Edited (James C.) : 9/16/2010 1:23:46 PM (GMT-6)


duomtn
New Member


Date Joined Dec 2009
Total Posts : 3
   Posted 9/16/2010 1:36 PM (GMT -6)   
Thank you for responding, he has not had any treatments at all.  He has chosen to not to seek treatments.  I was just wondering if anyone had experienced the same symptoms.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 9/16/2010 1:38 PM (GMT -6)   
Ok, he hasn't had a biopsy? What was his PSA test results? What circumstance told him he had prostate cancer? Who told him,? what counseling did he get as to his options to make his decision to not have any treatment? Who did this, a GP, Urologist, Oncologist, ETC?
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., margins clear GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh, reoccurance?
ED continues: Bimix- .3ml or Trimix- .15ml

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 9/16/2010 1:42 PM (GMT -6)   
The fact that he had a PSA result of 50 at initial detection versus a psa of 3.5 will make a big difference in how your questions about pain can be answered. With super high PSA, usually that indicate the cancer has metasizied into other areas of the body, first usually the bones in the pelvic region and/or lymph nodes, etc. Bone metasized can bring pain, usually severe, but sometimes a shot of radiation can/may ease the pain.
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., margins clear GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh, reoccurance?
ED continues: Bimix- .3ml or Trimix- .15ml

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/16/2010 3:03 PM (GMT -6)   
Duo,

Welcome, but as James is asking, you aren't providing enough information on your husband to even make a guess, let alone a good answer. Is there anyway you can fill in the holes here at bit? We would love to help you, or steer you in the right direction.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

NEIrish
Regular Member


Date Joined Aug 2010
Total Posts : 245
   Posted 9/16/2010 3:12 PM (GMT -6)   
Duo: There are many wives here who post for their husbands too. No matter what your husband has decided, you may need to stay in touch with this site for your own sake. It's never easy to watch our husbands suffer. Please take good care of yourself as you look for answers for him...
Husband 60yrs., no symptms: PSA 10/04 2.73, 12/06 3.64, 5/09 3.9, 10/09 4.6, 1/10 5.0w/ free PSA 24
6 core biop 4/1/10 path rept: rt mid: adnocarc. G=3+3, 5% of core; R apx v. susp. minute ca, R base bnign w/ mod. atrophy, L side atrphy only; 2nd opnion JH confrmd
MRI - 15mm nodule
BiLatRP surg 7/6/10, path: T2c, nodes, sem.ves, extra caps. neg., adenoc both sides G=3+3 cntinent, Viagr-8/27 ED

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 9/17/2010 6:55 AM (GMT -6)   
Duo, I am sorry to hear about your husband's pain. I'm curious as to the reason why he chose no treatment. I'm not questioning his decision, just wondering how and why he came to it.

From the little we know of your husband's situation, it does sound like he had a biopsy since your post states that he has been diagnosed with prostate cancer, which would only come about through a biopsy. Can you share with us the results of that...for example, what was the Gleason score and stage at that time? If his PSA and/or Gleason score were very high at diagnosis, did he have any further tests such as a CT or bone scan? If so, what were the results of these? If his disease is advanced (and it might just be), what advice did the doctor or doctors give as to managing the disease and controlling the pain (assuming the pain is related to the disease)? If - and I stress the word "if" - the cancer has spread to his bones, it could certainly cause the pain you are describing but back pain has many causes. Would he be willing to submit to an xray or MRI of his back?

Many cancers can spread to the bones, and this can cause quite a bit of pain. But, without further tests and more information, there's just no way to know.

I hope you come back and answer some of our questions as we'd really like to help you as best we can.

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 9/17/2010 2:15 PM (GMT -6)   
People are right about needing more information, but to ease your mind a little there is nothing like a diagnosis of PC to get you to notice every ache and pain and attribute it to mets.

BUT if your husband is having severe pain he needs to see a doctor. This has nothing to do with PC, it is just plain good sense!

Patcharoni
New Member


Date Joined Sep 2010
Total Posts : 7
   Posted 9/18/2010 10:00 PM (GMT -6)   
my husband found out he had prostate cancer because of severe back pain. He had a compression fracture of L5 vertebra and needed back surgery to repair it. Currently receiving Zometa infusions, Trelstar injections, (still taking Casodex), and receiving radiation to relieve the residual pain
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