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James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 9/17/2010 9:56 AM (GMT -6)   
A note from Peter:

Just a little note about how HW got it's start (historically speaking). Feel free to spread the word around your forums.

www.facebook.com/note.php?note_id=481881720984

or just go to the main HealingWell Facebook page at

www.facebook.com/HealingWell/Peter Waite
HealingWell.com
www.healingwell.com
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., margins clear GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh, reoccurance?
ED continues: Bimix- .3ml or Trimix- .15ml

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 9/17/2010 11:29 AM (GMT -6)   
Great story and quest for answers, the same can be said about these four websites:

www.yananow.net (Terry H. & friend)
www.prostate-help.org (Don Cooley originally founded- Judy T. may be moderator now)
www.Phoenix5.org (Robert Young-founder)
www.hrpca.org (Howard Hansen- this was a spin-off of prostate-help.org)

Those came alittle after Peter's, but for this disease these were the mainstays of unbias and free discussions and open forums. The information was greatly needed and somewhat comforting or shocking sometimes to hear. Kept me interested in these on going discussions and findings.

This site is the most like a home and helping support system, compared to others in a real time basis, but all of them are great.

added html code to make links clickable James C.

Post Edited (zufus) : 9/17/2010 2:32:56 PM (GMT-6)


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 9/17/2010 12:43 PM (GMT -6)   
Thanks for this site and those that have helped me and those I'll be able to meet soon.
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving. ED oral meds didn't do much initially. TRIMIX was working very well. Initial dose of 0.1 mL too much. Had priapism at 0.075 mL that ended up in a humiliating ER visit. Doses recently after 50% dilution by Uro about 0.025 mL or less. Don't use Trimix anymore...I'm too sensitive to it, even at very low doses and the Alprostadil is pretty consistent in causing erection pain...had a few episodes of 3+ hour wood with pain.
-Levitra now starting to work at low doses of 5 mG to 10 mG. Sometimes the side effects like stuffy nose aren't fun...sometimes OK.
-Was supposed to see ED doc last week, but due to his schedule, will now be late August. Will discuss bimix with him.
 
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