Pre-surgery meeting and Pre-op Today

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 9/17/2010 2:19 PM (GMT -6)   
Had my hands full today.  Back home now, wiped out but good.  Met with my Uro/Surgeon this morning, we spent one full unterupted hour together.  He went over the finer points of the upcoming surgery, sounded simple until you get into the details.  He then went over, probably the top 10-15 complications that could happen, and then explained one by one, how he would deal with them if any of them happened.
 
The biggest decision, is whether he can use the easy to get to lower intestines to make the conduit out of, or have to use material from higher up in my digestive system.  He said he can't know till he has me open, and then he can determine if the easier material is too radaition damaged to use or not.  This is one time that you want that tactile feel of an experienced surgeons  fingertips, he said he will be able to tell by touch if the material is damaged or not.  For me, it will mean it will either be a 2 1/2 surgery or a 4 hour surgery, I will be knocked out so that part won't matter.
 
He said he has searched his soul, so to speak, and still feels this is the best long term solution by by-passing the damaged bladder and bladder neck for good, and ultimately, relieve me out of so much of this daily pain.  He feels now, that I will probably be in the hospital a full 7 days, possibly more.  The first 2 weeks at home will almost be the same as being in the hospital.
 
He will meet with my wife and I one more time before surgery, and he gave me a 24/7 number to call him anytime with any last minute questions or concern.
 
Then I went to St. Francis for the pre-op at the hospital.  First hour, normal and routine for me, lots of questions, blood tests, etc.  Its my 4th op there this year so far, so saw lots of familiar faces.  Then spent a full hour with a full-time Stoma Nurse, a first for me.  She was very good, 31 years experience, but the whole subject is expectedly creepy to me.  She measured and marked the stoma locator, and I am wearing a test device just to see how it feels moving around, bending, sleeping, etc with one in place.  She will be spending much time with my wife and I once I am in a hospital room, testing different devices, to see what will work best for me.
 
I threw her off being left handed, she said she hadn't thought about how all this would work for some one that essentially can't do a thing right handed.  But in the end, I will have to adapt, as the stoma can not be located left sided.
 
This post is important, in that its just one more thing that a PC patient might have to face, another QOL issue, another "side effect".  Yes this is rare, but its important to know that things can go wrong.
 
From the start, I had the stricture issues post surgery, but the surgeon was close to having that worked out.  The radiation going wrong, took any natural solution out of the picture for good.  My dr said, that even if by magic, he could keep me open, that I would always urinate in extreme pain from the radiation, and he suspects that  I have gone from being 100% dry to being 100% incontinent.  Its only the catheter at this point that is keeping me dry.
 
Am I afraid at all? Absolutely. Not from the op itself, but the recovery, and adapting to a whole new way of doing things.  Do I have a better alternative?  No.  Can I stay in the world of extreme pain and endless painful cath changes?  No way.  So I will be doing this someone on a step of faith (for a better word), and hoping, like all of our decisions PC, that I am making the right choice.  Status quo, is out of the question after nearly a year of steady suffering.  Time to be brave, and hope for the best.
 
David in SC

Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 9/17/2010 2:26 PM (GMT -6)   
Best of luck David if anybody deserves a break it's you. I hope all ends well and life returns to normal asap.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 9/17/2010 2:28 PM (GMT -6)   
You and your wife will be in my thoughts and prayers as you enter this final stage. Good luck, easy recovery...
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., margins clear GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh, reoccurance?
ED continues: Bimix- .3ml or Trimix- .15ml

Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 9/17/2010 2:37 PM (GMT -6)   

Best of luck David.  I pray that this operation brings you the peace you deserve.

 

Ray


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7197
   Posted 9/17/2010 2:40 PM (GMT -6)   
David:
 
We will be thinking of you.
 
Hopefully someone will post to let us know how you are doing.
 
Mel
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. Next PSA late Sept.

Ger42
Regular Member


Date Joined Apr 2010
Total Posts : 189
   Posted 9/17/2010 2:49 PM (GMT -6)   
Good luck I'll keep you in my prayers.
Age 68 weight 185 height 6'
Samples taken 4/19/2010 sent to Bostwick
3 out of 12 samples cancer
1) gleason score 3+3 involving 65%
2) gleason score 3+3 involving 65%
3) gleason score 3+3 involving 10%
PSA 3.5 Mar 19
PSA 2.5 Apr 4
Bone scan clean CT scan clean
Da Vinci 8/24/2010, rescheduled to 8/26, now Oct 12th
God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 9/17/2010 2:51 PM (GMT -6)   
thank you ziggy and james. these pc journeys sure have strange twists and turns for some.

thanks too, ray and mel.

yeah, sonny and cajun jeff will be getting called by my wife post surgery, to give an update that can be relayed here to HW for those that are interested. for the rest of you, you will get a few good no-posts-from-purgatory days, as my first 3-4 days in the hospital, unlikely i would be in a position to be on my laptop.

i sincerely hope that this upcoming ileal conduit surgery is a one of a kind event for our PC community, wouldn't want anyone else to go through this, but if it happens, at least one of us will have first hand experience to help another through it.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2840
   Posted 9/17/2010 3:01 PM (GMT -6)   
David:
All I can say is HOORAH FOR DAVID !

It may not be your original answer to the problem - but it is the start ( or near starting line) of a new journey that we all hope, pray and believe will be better than the H. E. double hockey sticks you have been living with.

Thank you for sharing your triumphs and tragedies - we are all players in this game of life - checking out the rules - being sidelined - and then back on the field.
You are a very special person, David, and we cannot forget your Peggy, who is a saint in nurse's scrubs...

hugs to you both.
BRONSON & STEVE
Age: 54 -gay with spouse, Steve - live in Peteborough, Ontario, Canada
PSA: 10/06/2009 - 3.86
Biopsy: 10/16/2009- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/2009
Pathology: pT3a- gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
Post Surgery-PSA: April 8, 2010 - 0.05 -I am in the ZERO CLUB - hooorah!
Next PSA: Sept 23, 2010 -TBA

F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3780
   Posted 9/17/2010 3:03 PM (GMT -6)   

you're on a hero's journey, David.  i salute your courage and look forward to your speedy return.

ed


age: 55
PSA on 12/09: 6.8
no symptoms, no prostate enlargement
12/12 cores positive....gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10

SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 9/17/2010 3:06 PM (GMT -6)   
David, Good luck with your surgery.  I Know it will feel really great to spend a day without those painful bladder spasms.  Squid.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 9/17/2010 3:09 PM (GMT -6)   
thanks to, ger

ed, i am ready to get off the hero's horse, lol, and just have a break from all of this. just another battle in the bigger war of PC that we all share

bronson, you are the man! if i ever make it back to canada, would like to take you and steve out to dinner. i will share, that my wife had always wanted to be a nurse, from the time of being a child, but lets just say, she wasnt much for school. she kept her dream alive, and at age 40, she went to college, graduated top of her class, with honors, at a time when we had 3 teenagers living under our roof (and their thousand friends) and at a time that I was the peak in my world of finance, as i was often traveling all the time. her graduation from nursing college was one of the highpoints of my life, and hers of course. the only problem with being married to a nurse, you cant ever get them to feel sorry for you, not even with moist puppy dog black velvet painting eyes. lol.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3632
   Posted 9/17/2010 3:16 PM (GMT -6)   
I don't do prayers David, but for what it's worth, I'm going to do one for you tonight..

Fair Winds my friend...

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4088
   Posted 9/17/2010 3:24 PM (GMT -6)   
David my dear bro. I see this next adventure your way to a mote normal life. Sonny and I will be waiting for the call. Know that you and Peg are in our thoughts.

Cajun Jeff

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 9/17/2010 3:46 PM (GMT -6)   
David
Our hopes and prayers go with you.

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2457
   Posted 9/17/2010 3:46 PM (GMT -6)   
David,
You have suffered so much from all of this. I hope this surgery will free you from catheters and from pain. I wish you the best.

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 9/17/2010 3:48 PM (GMT -6)   
Hi David,
 
Well, it looks like you have your next step all laid out and organized. I sure hope it will work out for you this time and that you will finally get some relieve from the constant pain. My fingers are getting a permanent bend from keeping them x'd for you for so long, but as long as the next step in your journey is successful I don't mind.
All the best to you David. 
 
Mag

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 9/17/2010 3:55 PM (GMT -6)   
David, I hereby volunteer to act as your mouthpiece on HW. I'd be happy to share with our brothers and sisters here your progress after surgery. If you'd like me to do this, I would do it gladly.

cooper360
Regular Member


Date Joined Jul 2010
Total Posts : 161
   Posted 9/17/2010 4:11 PM (GMT -6)   
Purg........Even tho I don't know you well enough to call you David....LOL!!! I feel for my short time posting I got to know you a little. Your a strong guy to have endured all that you have mentally & physically! All the very best to you, hope all goes well...Prayers,Hopes and a little Luck to you and your wife & family! You'll be in my thoughts in the coming weeks....... Cooper

Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4085
   Posted 9/17/2010 4:13 PM (GMT -6)   

David, I really, really hope and pray this surgery goes well and that you get the relief you need and deserve.  I'm sure you know that all of your friends here at HW will be wishing you well during your procedure, recovery and then some.  Best of luck my friend,

Tud (Jim)


Age 62 (64 now), G 3 + 4 = 7, T1C, PSA 4.2, 2/16 cancerous, 27cc. Brachytherapy 12/9/08. 73 Iodine-125 seeds. Procedure went great, catheter out before I went home, only minor discomfort. Everything continues to function normally as of 9/10/10. 6 month PSA 1.4, 1 year PSA at 1.0. My docs are "delighted"! My journey:
http://www.healingwell.com/community/default.aspx?f=35&m=1305643

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 9/17/2010 4:59 PM (GMT -6)   
subic, who would have ever believed my early strictures, like you had, would lead one day to something this major? you never know, glad your strictrures are a thing of the past

thanks fairwind, i am a man of faith, but keep it off HW according to their rules

thanks cajun jeff, you have always been there for me

geezer and edc - you are good guys too, thanks for the care

sephie - you may serve as my surrogate mouth piece anytime. since my sox aren't going to make it, at least make sure that the yankees keep the rays from being on top.

mag - you always been a good friend here, appreicate you too

cooper - david is fine, that's my name, purgatory has been a name for years for me, has nothing to do with PC or any other illness

tud - you are one of my oldest buds here, always enjoy your posts and attitude about things. i know you are in my corner.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

TryingToStayCalm
Regular Member


Date Joined Aug 2010
Total Posts : 53
   Posted 9/17/2010 5:06 PM (GMT -6)   
David, your courage astounds me! I learn a great deal from how you handle your life, your trials and your challenges. I am grateful you post so openly and so heartfeltedly. I wish you as easy a time as possible with this next phase and when you need to share, or want to share know that there are many here who care and who are waiting to hear your wit and your wisdom. My thoughts and prayers are with you, David.
Judy
Husband DX on 6/30. Age 56. PSA b/fore surg. 7.9. Biopsy 6/12 positive 5=50%/90%, 1/10%. PNI present. Gleason 7 (3+4). Robotic RP Mt Sinai. NYC. 8/26. POST SURGERY PATH: Extensive bilateral involvement. Gleason 7 (4+3) w/ some 5 patterns. 70% of slides contain tumor. 42g. Extends beyond capsule into tissue and left seminole vesicle. Extensive Intra & Extra prostatic PNI w/tumor. Lymphs neg. pT3b

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 9/17/2010 5:18 PM (GMT -6)   
thanks judy, contrary to rumor, not particurly couragous. i hate pain, and hate it even more the past year, perhaps just some strong survival skill at work here. i expect the op to go fine, still have 110% faith in my uro/surgeon, this is his 8th surgery on me. i expect the recovery to go slow, since i am in a much more weakened state then before my last major surgery. but i have my wife and daughter in law (both nurses) lined up for my at home recovery ,plus my daughter going to use some vacation time here filling in the gap, and my future daughter in law wants to help, as well as my oldest son's mother in law, a retired nurse. i may get smothered with nurses. lol.

i have always been an open book, which is sometimes good, sometimes bad.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 9/17/2010 5:31 PM (GMT -6)   
I'm one who definitely believes in the power of prayer and I'll be offering a bunch tonight for you to finally get on the road to full recovery. You deserve it, and you are certainly a tougher guy than I.
Age: 63
Gleason grade: 3+4=7, present in both lobes, pT2c NX MX
Robotic RP: Sept. 15th, 2009
PSA's: .04, .03, .02, .05 (darn)
ED: Improvement slow but there are positive signs. No incontinent issues.
Surgery: Dr. Jim Hu. Dana-Farber/Brigham and Women's, Boston

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 9/17/2010 6:14 PM (GMT -6)   
Red, thanks. When is your next PSA? Hoping your .05 is just a blip, not a trend.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 9/17/2010 6:34 PM (GMT -6)   
I've heard of people going the extra mile, but my goodness, I truly hope this is the solution you, and we, have been waiting for.  I can picture you as Tom Hanks going over that last wave in Cast Away.  Off the island at last.
 
Good luck, my friend
Bob
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