Sometimes we deserve a REWARD.

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JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 9/18/2010 11:28 AM (GMT -6)   
For me, it's not been a great year, healthwise. First came the hormone shots and back in January went through prostate open surgery which was followed by seven weeks of daily radiation at a hospital 110km. away.

I was tired, somewhat disillusioned and in more than my usual grumpiness. Debbie knew I had been checking the internet about the Great Lakes Tallship Challenge and suggested I try to book a sailing trip on one of the vessels. Got my attention alright but when I showed her the costs and knowing we did not have the extra money, partly because of the many trips for treatment, she offered to pay for the trip with the money she had been saving for a new set of bedroom furniture. How could I say no to that ? Not enough money though for both of us and yet, I did not want to do this alone, so she suggested I ask a best friend if he was interested. Immediate answer was: YES!

So, there we were, Tom & I on a train to Milwaukee on September 3 to board the Bounty for a 6 day non-stop voyage to Erie, PA. for their Tallship Festival. The photos pretty well tell the story, including the cannon fire, just for Debbie as a way of thanking her for allowing me to do this trip. as we passed our apartment building while sailing by my hometown of Sarnia.

We also had a surprise stop-over in Lake Erie on the Island of Put-in-Bay. Great break for us and the crew! On Thursday we were, along with 5 other tallships, part of the Parade of Sail, into the Erie Harbour where thousands of spectators were waiting our arrival and cannon fire.

All great memories of trying to 'learn the ropes' of a tallship.

Thank you Tom for doing this with me and thank you Debbie for the trip.
 
Here is our facebook page with lots of pictures:

 


Age, only 71.
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
Started Casodex 50mg. on Nov. 6, first pill of 30.
Got Lupron 22.5mg ( 90 day ) on  November 19.
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery done on Jan. 20th. by Dr. J. Chin at London's University Hospital.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
====================================
Pathology Report:
 
Gleason Score: cannot be determined due to hormone therapy effects. ???????
Extraprostatic Extension:
present, left radial, multifocal
present, left basal, multifocal
Resection Margins:
Apical: involved by invasive carcinoma, multifocal
Bladder Neck: involved by invasive carcinoma, unifocal on left side.Other: non-tumoural prostatic present at resection margin.
Perineural Invasion: present.
Seminal Vesicle Invasion: absent
Lymphovascular Invasion: absent
Lymph Node Status: no malignancy in regional lymph nodes
Additional path. findings:
high grade prostatic intraepithelial neoplasia
 
Pathology Stage: yp T3a NO MX
==================================
Radialogist appointment was on Friday Feb. 26 with Dr. Glenn Bauman in London.
Got another Lupron 90 day shot today and he wants to start IMRT soon. CT Scan plus measure scheduled in about 3 weeks. ( march 15)
 
First PSA test since surgery on March 18th.
with the results of <0.03 !!!
 
Started a Facebook page for bikers with prostate issues at:
 
IMRT to started on May 10. Going to get 33 units.
 
.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 9/18/2010 12:32 PM (GMT -6)   
Jerry - so glad you had a good time on the trip - great pix - you deserved a reward and got a great one !
-thanks for sharing !
hugs
BRONSON
Age: 54 -gay with spouse, Steve - live in Peteborough, Ontario, Canada
PSA: 10/06/2009 - 3.86
Biopsy: 10/16/2009- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/2009
Pathology: pT3a- gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
Post Surgery-PSA: April 8, 2010 - 0.05 -I am in the ZERO CLUB - hooorah!
Next PSA: Sept 23, 2010 -TBA

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 9/18/2010 1:06 PM (GMT -6)   
Wow, what a great thing -- it put me in mind of a whole bunch of Great Lakes songs

White Squall
www.youtube.com/watch?v=Hw0mKGFmK2w

The Edmund Fitzgerald
www.youtube.com/watch?v=Q0DqPSF2fyo

Woops, perhaps these are better listened to after the trip.

mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 9/18/2010 1:17 PM (GMT -6)   

Jerry, Looks like it was a great trip! Thanks for sharing the photos. When you first came on HW, I mentioned how much I love sailing, too. As one of the captions below a photograph said..."what memories are made of"...bet you got a few from that trip. I remember being in at Put-in-Bay a couple times...nice islands last time I was there. 

 

Good for you!

 

Mike



goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 9/18/2010 2:12 PM (GMT -6)   
Jerry,

Sounds like a blast, and your reward. I could be in Put-inBay in about 30 minutes from where I live. Really great place if you like to drink !

Glad you got to have the trip. Keep on going friend !
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 9/18/2010 2:37 PM (GMT -6)   
Goodlife, Don't mean to hijack Jerry's thread. When were you last there? I was there in late 60's and again very late 70's...haven't been back since , but would love to. My memories were of of good warm, mid-summer lake beezes, no bugs and yes, some beverages.

Weathered a couple good thunderstorms both times. But, from my memories, it was a good place.
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving. ED oral meds didn't do much initially. TRIMIX was working very well. Initial dose of 0.1 mL too much. Had priapism at 0.075 mL that ended up in a humiliating ER visit. Doses recently after 50% dilution by Uro about 0.025 mL or less. Don't use Trimix anymore...I'm too sensitive to it, even at very low doses and the Alprostadil is pretty consistent in causing erection pain...had a few episodes of 3+ hour wood with pain.
-Levitra now starting to work at low doses of 5 mG to 10 mG. Sometimes the side effects like stuffy nose aren't fun...sometimes OK.
-Was supposed to see ED doc last week, but due to his schedule, will now be late August. Will discuss bimix with him.
 

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 9/18/2010 2:44 PM (GMT -6)   
Bugs ? Have you ever seen a Mayfly ? The Lake Erie pollution greatly diminished their populations on the 60's and 70's. With the advent of the Zebra mussell, and a real turnaround in the cleanliness of the lake, the Mayfly is back.

They actually show on radar their numbers are so great. Our power plant had a huge transformer blow up because they literally smothered it. They blanket the streets, docks, and boats during the hatch.

It still is a great place. But, it is best known for a place to drink. Boats tie up 5 and 6 deeep, and party all weekend.

OBama bucks are restoring the Perry minument right now, so it is closed, one of the few other attractions besides the bars.

From a boat, it is still the best place to dock for a weekend in the area.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 9/18/2010 3:18 PM (GMT -6)   
Geez, sounds like our shad flies in Canada. But, by August, they're mostly gone.

Like I said, haven't been there for some time.....mike


Jerry, hope you had a great time!
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving. ED oral meds didn't do much initially. TRIMIX was working very well. Initial dose of 0.1 mL too much. Had priapism at 0.075 mL that ended up in a humiliating ER visit. Doses recently after 50% dilution by Uro about 0.025 mL or less. Don't use Trimix anymore...I'm too sensitive to it, even at very low doses and the Alprostadil is pretty consistent in causing erection pain...had a few episodes of 3+ hour wood with pain.
-Levitra now starting to work at low doses of 5 mG to 10 mG. Sometimes the side effects like stuffy nose aren't fun...sometimes OK.
-Was supposed to see ED doc last week, but due to his schedule, will now be late August. Will discuss bimix with him.
 

Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 9/18/2010 6:06 PM (GMT -6)   
Jerry
What an experience. You have just added another item to my bucket list. My son sails in petoskey and is doing the Chicago/mackinac race next summer. Now, thanks to you, I now found something cool to do with him.
thanks
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!

JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 9/19/2010 2:30 PM (GMT -6)   
Mikey1955, really good to hear from you and just where have you been? How time flies, especially this year. Had hoped to have you out for a sail this summer but as it turns out we have only been out (of the harbour) about 6 times. Next year just has to be better.

Put in bay: was there several times on our boat back in the early 90's. Great party place if that's what needed. Lots of bars including the world's longest. Dockage has greatly improved and they now have lots of mooring balls to tie up to instead of just anchoring.

Goodlife: yes, we had hoped to take pictures of the BOUNTY from the top of the Perry Monument but like you mentioned its closed and has been for quite some time.

Paul1959: Splendid and I'm sure you will both enjoy it.

Bronson: Hugs in return and we all hope of your continued
success in the artsy world.
.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 9/19/2010 3:15 PM (GMT -6)   
jb,

you are making me wish i still had a sailboat and was well enough to use it. had to sell my last one 4 years ago. we have some beautiful crystal clear mountain lakes here in western South Carolina. keep on enjoying, i would if i could. *sigh*

dvid
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 9/19/2010 3:58 PM (GMT -6)   
Jerry,
I can always count on you to take my mind elsewhere besides PCa. Well done mate, hope that you had the time of your life.
Michael
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