Prostatitis again...

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Sethp
Regular Member


Date Joined Sep 2010
Total Posts : 78
   Posted 9/18/2010 2:26 PM (GMT -6)   
Hi everyone

I always seem to get a bout of prostatitis just about every year. I must be really susceptible to them because I can hope and pray I don't get one and then I end up getting one anyway because maybe I touched myself and my hands were not "perfectly clean" or something. Anyway, I absolutely DREAD these things and yet here we go again. I could just cry.

I know the drill well by now. 30 days of Cipro and tons of sometimes unbearable side effects (ie; anxiety, panic attacks, insomnia, heart palps, upset stomach, etc) as well as the discomfort and depression that comes from the prostatitis itself. I'm currently taking Levaquin (day 1#/500mg).

I'm pretty much posting this hoping to get some moral support through this very difficult time. Someone to relate to and ride this out with me and offer support (I'll take all I can get right now). This is no fun going through alone.

Thank you for reading this.

- Seth

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/18/2010 2:38 PM (GMT -6)   
Hi Seth,
You are most welcome to talk with us anytime you want. I know little about prostatitis but I have an expert friend. Here is his website dedicated to it:

prostatitis.ning.com/

He is easily contacted there but I also have all of his contact information. He is a urological surgeon and oncologist in Aventura Florida.

I have asked our site owner if he would consider a Prostatitis discussion forum and he is considering it. He usually adds forums at the end of the calendar year so we'll see. In the mean time, how long have you dealt with this?

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Sethp
Regular Member


Date Joined Sep 2010
Total Posts : 78
   Posted 9/18/2010 3:23 PM (GMT -6)   
@TC-LasVegas

Thank you so much for the warm welcome!. I'm definitely going to check out that site. I've dealt with this disorder off and on for about 6 years. This time around, about the last 6-7 days. I wouldn't wish this on anyone. It's similar to a long-term illness that requires taking powerful drugs for sometimes months on end and causes a great deal of stress and depression in one's life.

Thank again and I'm so glad I joined!.

Highwayman
Regular Member


Date Joined Sep 2010
Total Posts : 148
   Posted 9/18/2010 8:38 PM (GMT -6)   
Seth,
my sympathies and best wishes for a quick recovery.
Age 48 w/diagnosed
10/25/06 PSA 3.0
11/13/06 PSA 3.8
11/13/06 PSA FREE 0.5
11/13/06 PSA % FREE 13.2
10/25/07 PSA 3.4
12/18/07 Biopsy-neg
6/2008 PSA 3.5
1/7/09 PSA 4.6
6/18/09 psa 5.8
2/9/10 psa 8.7
5/13/10 psa 10.5
7/19/10 PSA 10.8
8/19/2010 3rd Needle core biopsy- single focus of prostatic adenocarcinoma, Gleason Grade 3+3=6, Tumor involves one of eight cores -2%, Prostate 78 (big)
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