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tvwohio
Regular Member


Date Joined Sep 2010
Total Posts : 172
   Posted 9/26/2010 3:40 PM (GMT -6)   
I was diagnosed and had radical prostectomy in 2001 and have survived 9 years.
 
The major problems I have had are:
 
 ED - nothing works except pump - tried Viagra, Cialis, injections  with limited success and finally figured out pump.
 
The problem which really affects me is incontinence.   When I had the surgery I had a staph infection while in the hospital and I believe this affected some of the healing process.
After the surgery I had problems with scar tissue which resulted in at least 4 times of having the urethra opened by either manual manipulations or surgery - the last being 9/ 15/2010. 
It must be noted I also had the bulking with collagen and teflex which wasn't successful.
This surgery was done using the laser and so far so good but it doesn't seem like I am healing very well.  I accidently pulled out the catheter and had to have it reinstalled during the process.
 
Last Tuesday, I had the catheter removed and cystoscope done.  We talked about the sling and the Urologist stated if no scar tissue I would be a candidate in 90 days.   Since the removal, when having bowel movements (5 days after reomoval) I am noticing a slight blood in urine and on penis.  The Urologist warned me of leakage and I have little or no control unless I am lying down.  I am using a penis ring to slow slow and it also allows me to urinate normally.   I have control if I get up and urinate and start and stop flow, it is just the dripping which is getting me down.
 
I have another appointment with Urologist this Tuesday due to bleeding and I believe the low grade infection I have.   It doesn't feel normal.
 
I am depressed and really want to stop or at least slow down the leakage since the last scar tissue removal and hope that I will heal and be candidate for this surgery.
 
In all probability I will be going to Cleveland Clinic if I am a candidate for sling but not certain if any other hospitals in Ohio or even Indiana would be better.   I am 3 hrs Cleveland, 3  hrs Ann Harbor Mich, 2 hrs Cinci, 2 hrs Columbus.   Any suggestions for hospitals which have done the most of these would be appreciated. 
 
Thanks
Tom

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/26/2010 4:35 PM (GMT -6)   
Tom... I'm no expert by any means, but from what I know, the sling will most likely do you no good.  No one who I've read about or know about with your degree of incontinence has had success with the sling.  I welcome those who would disagree because I don't want to come across as a know-it-all.  But here's what I do know: You should talk to your uro about an Artificial Urinary Sphincter... the AMS 800.  Do a search about it.  I think most uro's would tell you they don't work for your amount of inconence and for the length of time you have experienced it. 
 
You will see from my profile that I had both the AUS 800 and the IPP (inflatable penile prosthesis) AMS 700 CX installed for the ED.  I had both installed in July of 08 and am still 100% satisfied with the results.  I will attempt to bump old thread about my experience with both of these devices.  I'll also be glad to answer any questions you have about both devices.
Gene

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/26/2010 4:47 PM (GMT -6)   
P. S. Dr. Allan Morey of UT Southwestern in Dallas did mine. I know it's a long way from you but guys from all of SW US come to him for the AUS & IPP.

tvwohio
Regular Member


Date Joined Sep 2010
Total Posts : 172
   Posted 9/26/2010 4:56 PM (GMT -6)   
Gene
 
Thanks  very much.  I am in exploratory stages only.  Do not know if I will be a candidate for either one.  Right now I am trying to get well from the Laser cleanout of scar tissue.
 
I'm 59 so concerned about the Aus 800 spincter and erosion effects as well as time factor if I live to be 80.  Per everything I read spincter has to be replaced every 5-10 years so I would see at least 2 replacements minium or 4 maximum.
 
I am a long way from any decisions and would probably go to a Urologist at Cleveland Clinic since my urologist knows his limitations.
 
Thanks again
 
Tom
 
 

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 9/26/2010 5:04 PM (GMT -6)   
Welcome to the group Tom. "they" say about 2% RP patients fall into the incontinence category that you ( & me) are in (and i guess Gene was that bad too). Are you saying you have been having this issue 9 years? or just since the last repair? If it is 9 years, wow! I am just about around the bend after just 10 months and i just did a post about going for elavaultion which is the first step towards Gene's solution, the AUS 800 and i could use the IPP too but haven't got to that yet. You should do a search and read TallGuys saga if he doesn't chime in on this thread. He had sling and AUS surgery, in that order, and his story will give you some pause about the sling, I think. anyway sorry to hear about this problems. Prostate cancer, i used to think, was pretty simple, catch it early and it is done. Now I realize it is a big deal and how great it is for you to have no PC recurence for 9 years. Congratulations on that and we all hope that we could achieve that. Good luck on finding answers to your problem and i for one, would like to hear how you go about it and what you have done. Keep us posted. I have my appointment oct 14 and will post what I find out.
Good luck, Ron

tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 417
   Posted 9/27/2010 4:56 PM (GMT -6)   
Tom,
As Ron said in his post, you can read all about my journey with AUS 800 and Virtue sling. I just did a reply to another post so it just bumped to the top. Also, I would be happy to talk to you if you have questions. My email address is in my profile if you click on my name.
We are all different but after well over a year of studying everything I can find on slings and AUS I have to say that slings are a "crapshoot" at best for someone that has advanced incontinence. AUS on the other hand is quite reliable and if you have an experience doctor do it you should have a good outcome....assuming you are a good candidate.
My AUS was done at U of Michigan, Ann Arbor by Dr. Jerilyn Latini. I can recommend her highly. She does a large number of these (she did three the day mine was done). Also, I found her to be very ethical and straight forward and will not try to oversell you on any procedure that is not right for you. On top of all that, she is very easy on the eyes.
Good luck in your journey!
Carl

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 9/27/2010 7:50 PM (GMT -6)   
Tom,  I had the AdVance sling done and it did me no good.  Then I had the AMS 800 AUS done by Dr. Morey in Dallas.  It was the best thing I did.  I would look into the AUS if I were you.  But, I know you have to do what you feel in your heart and mind.
Good Luck,
Kw
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