GFMPH Weekend What a time!

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Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 9/26/2010 9:30 PM (GMT -6)   
I have to let you guys know that we all had a wonderful time at Worried Guy's home.  He is the best host ever.  We were 6 guys each from a different state.  We have the common bond of having had PCa and had very frank honest conversations but we also had a great time just enjoying getting to know each other. 
 
If ever you get to attend a GFMPH you should clear you callender and make every effort to attend for yourself.  I am flattered and honored that the guys voted Saturday as I was cooking Gumbo that the next gathering or meeting should be at my house in Louisiana and not exactly sure of the day yet but probably mid April...We are thinking Tax day.  April 15th.  Will let you guys know.
 
I can not express my thinks enough to Worried Guy (Jeff)  My hat is off to you.
 
To each of you guys that took time from your life to be there thanks to each of you.  My life is richer for having spent time with you guys.  Hope each of you make it home save.  I will fly home on Tuesday Morning early.
 
Cajun Jeff
 

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 9/27/2010 6:43 AM (GMT -6)   
Sounds like a great time was had by all Jeff. Maybe next year my body will allow me to travel, but the fellowship must have been fantastic.
Michael

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 9/27/2010 7:38 AM (GMT -6)   
I've just been outside talking with Sonny as he reviews his maps. He's leaving this morning to continue on the GFMPH road tour.
It is too quiet here already. Come on back!
Jeff

Opa N
Regular Member


Date Joined Sep 2009
Total Posts : 150
   Posted 9/27/2010 10:53 AM (GMT -6)   
Sign me up for next April in Louisiana. Sorry I couldn't make it up to NY.
Roger
68; Biopsy 4/20/09; G 4+3 in 2/2 cores, G 3+3 in 5/10 cores. CT & Bone Scan negative. Stage T2C. psa 4.02. DaVinci RP 8/27/09; Gleason 3+3 w/tertiary 4. Pos. margins L & R posterior, seminal vesicle invasion. Stage PT3b. 4 wk psa <0.01.
10/21/09 begin 8 months of HT w/Lupron. 1/14/10 begin IMRT 32 treatments. All psa tests return <0.01. Continent 5/1/10.

Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 9/27/2010 11:04 AM (GMT -6)   
A word of protest:

I have just completed my second GFMPH weekend in western NY. I have a few complaints to make. The whole thing was one big religious event from beginning to end. I kept trying to invoke Rule 11, but I was silenced by religious zealots. The entire event was marred by proselytizing.

First, The Penile discussions were positively Jewish in their intent. I could tell that if we were not circumcised (which, thank god, I am) we would not belong to the group. The proselytizing to become "fully jewish" was enormous. I did notice one guy looking forlornly at his private area, clearly disenfranchised because of his lack of this ultimate religious covenant.

Second, We were all forced to take communion. Each member was poured a glass of wine and we ceremoniously drank it after some words of intent...I'm sure it was prayers or something like that.

Then Saturday night, under the guise of eating dessert, we were forced to pariticipate in native american rites and rituals around a conflagration in a wooded glen where trances were induced and smudging by smoke was again forced upon me. I'm sure as I look back now, that there was even nudity involved. In fact, I'm sure of it - oh, some of the men made a vague attempt to hide their nudity with a few pieces of cloth, but let me assure you, under that cloth, every single man there was naked, in a trance, worshipping the fire and trying to commune with spirits. It was Wiccan, pagan, and Druidic all at the same time.

Then, if that was not enough, We had a speaking in tongues. Admittedly, it was only two of the members, but we were forced to listen to this Rhapsodic hysteria. To add more blasphemy, one of the participants claimed to be sexually aroused by this pentecostal talk. i was in fear for my virtue.

Then Saturday afternoon was spent with some member forcing their meditation time on us. They closed their eyes, became imobile and were in another realm for as long as an hour. this Hindu behavior was forced upon us even though some of us wanted to engage in secular, scientific talk.

I clearly stated Rule 11 again and again, but my freedom of speech was trampled and i was proselytized nearly every moment of the weekend. My civil rights were violated and i am going to ask the moderators to Lock the GFMPH weekend so that no one will ever have to put up with having all this religion forced down their gulletts at such a vulnerable moment. I have called the ACLU and am taking legal action.

Agnostically yours
Paul1959
(Atheist, Agnostic, Pragmatic, Dogmatic)
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!

TinFoilHat
Regular Member


Date Joined Sep 2010
Total Posts : 51
   Posted 9/27/2010 11:09 AM (GMT -6)   
Paul1959,

I've got tears running down my face I'm laughing so hard.

Sounds like quite a gathering.
Jeff

Age: 49 (09/61)

PSAs: 12/08 - 1.8, 12/09 - 2.5, 6/10 - 3.9, 8/10 - 5.7

Biopsy 8/10: 14 samples, 5 positive, Gleason: 3 + 3

open RP 9/23/2010

Post Op Path: Organ contained, Gleason 3+3, nerve bundles spared, negative margin.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 9/27/2010 1:46 PM (GMT -6)   
So you not gonna talk about the blood sacrifices of animals with cloven hooves? Combined with fire or charcoal it's usually performed over an open fireand accompanied by barley grain drinking and sometimes followed by pryrogic purges of the stomach.,all supposedly done in a rite of brotherhood. Lol
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., all clear except:
Probable microscopic involvement of the left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh
ED continues: Bimix .30cc & Trimix .15cc PRN

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 9/27/2010 2:04 PM (GMT -6)   
Is this more like a fraternity party with new twist on togas??? (LOL)
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 9/27/2010 2:04 PM (GMT -6)   
OMG!!!! I completely forgot about the animal sacrifices. Thank you for refreshing my memories - I had clearly blocked the horrors from my mind.

The tribal leader apparently murdered a harmless chipmunk and fed it to the spririts of the forest just as we arrived. The weekend was bathed in bloodshed. I feared that my blood was next... so i played along with the savages until I could escape. Call PETA now!!!

Traumatically yours
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 9/27/2010 6:09 PM (GMT -6)   
Paul,
The thought of a chipmunk running up a guest's pant leg while sitting around a fire was too much to bear. As the responsible host, it was my duty to address the situation.

As a witnessed by an early participant, Alvin was quickly dispatched and sent to his final reward by a single head shot at 68 yards. He became food for one of the red fox cubs that were watching us from the shadows.

J

See? I told you a Leupold 3-9x VX-II rifle scope was GFMPH.

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 9/27/2010 6:28 PM (GMT -6)   
Jeff, I can personally attest to the dastardly deeds of the aforementioned Alvin and his band of furry friends. No one, animal or person, should be allowed to wreck the havoc that has been brought forth to such a great icon classic as a 1970 Barracuda.

Their crime has been documented and their fate sealed. I can also personally attest as an eye witness, as to the accuracy and abilities of"THE ONE" called upon to dispatch them to the great chipmunk world beyond.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 9/27/2010 6:28 PM (GMT -6)   
Jeff, if you are truly gonna host in Louisanna next April, I promise to make every effort to be there....
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., all clear except:
Probable microscopic involvement of the left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh
ED continues: Bimix .30cc & Trimix .15cc PRN

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 9/27/2010 11:04 PM (GMT -6)   
Paul,

You will be sanctioned at the next tribal meeting of the sacred order of GFMPH. You have violated rule number 2011. The reason we have so many rules is so that you will not divulge the proceedings of our meetings.

I am glad you didn't mention the requirement to not wear pants so that those with continence issues didn't feel bad.

Goodlife
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 820
   Posted 9/27/2010 11:16 PM (GMT -6)   
No pants!? What about those of us with ED issues? The truth will be ...revealed...

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 9/28/2010 5:43 AM (GMT -6)   
James the plans are in motion. My wife is on board to host the ladies in a different location some 8 miles from my house. That way the can grow their friendships like we have. Jeff is a real hard act to follow.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
Only issue at this time is ED
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