OhioState-Andrew has his story started on yananow now, some update

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zufus
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Date Joined Dec 2008
Total Posts : 3149
   Posted 9/29/2010 8:34 AM (GMT -6)   
In case you forgot brother Andrew (OhioState) from previous H.Well posts and replies. He has now posted his story at Yananow and would be happy to help anyone whom is without insurance or much money, to know that paths exist to get opinions and treatments, of which he has proven can happen. He can be contacted from the yananow site listed below. Currently doing very well too.
 

Sephie
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Date Joined Jun 2008
Total Posts : 1804
   Posted 9/29/2010 6:43 PM (GMT -6)   
Zufus, thanks for posting the update about OhioState...was just wondering how he was doing so I was glad to read his piece on Yanow and glad to hear he is doing well. For what it is worth, please send him my regards.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 9/30/2010 7:15 AM (GMT -6)   
Thanks Sephie you can see how to contact him within the yananow posting, might be great for him to hear from you or others....directly. (hint-hint)

He is doing fabulous so far, which is probably better than his original expectations. (his information from the color doppler scans was not encouraging, to say the least)
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/30/2010 2:24 PM (GMT -6)   
zufus,

that was decent to post this. glad to hear he is doing well. still a brother of the pc

david
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 10/1/2010 6:58 AM (GMT -6)   
Thanks Dave you are a stand up guy, hope you are healingwell.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 10/1/2010 8:10 PM (GMT -6)   
Zuf, I get the hint (hee hee)...think I will stop by Yanow and see if I can get a message to Andrew just to let him know we're thinking of him.

Hope you're doing well, my friend.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 10/2/2010 7:29 AM (GMT -6)   
Thanks Sephie, like any of us would enjoy a pick me up from others. Thanks for asking about me too, I go in monday for a treadmill ekg testing gig to assess how good my heart and system is doing. My blood pressures have always been really good, but Cholestoral was at 226 should be under 200. Doc had me add a couple basics like red yeast capsules and Simvastin (derived from Salmon I think), see him in one month after this. Usually I see him every 3 months, which has been going on for like 5+ years now. Will mention results later.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 10/2/2010 10:01 AM (GMT -6)   
Zuf, my John's cholesterol was about the same as yours over the summer. His doctor started him on a regimen of red yeast rice, fish oil, and a product called CholestOff (think it's made by Nature Made). His follow up blood work 6 months later was excellent...hope you'll have the same success he did.

I managed to make my way over to Yanow last night and send Andrew a message via his posted email...imagine he'll be surprised to hear from me (LOL) but hopefully will respond.

Let us know how your doctor's visit goes on Monday.

livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 10/2/2010 11:21 AM (GMT -6)   
thanks for the update Zufus I use to call and check on Andrew however it has been a year or so since i did so. I will check out his page and give him a ring next week.

thanks
Dale

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 10/2/2010 3:13 PM (GMT -6)   
Thanks for your support to all of the brothern in these battles, some have different fights or different issues....we all need help in one way or another. Disease levels, anxieties, marital or relationships issues, physical functionings, emotional storms, coping with changing life.

Andrew will no doubt enjoy a few email letters from Santa's or Mrs. Claus'
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/2/2010 7:18 PM (GMT -6)   
Zufus, first, thanks for the update on Ohio State and the URL of his blog. It's good to know he's doing reasonably well. As David said above, we are all brothers and once you have PCa more binds us in common than separates us, I'm sure.

Second, you say, "..... we all need help in one way or another. Disease levels, anxieties, marital or relationships issues, physical functionings, emotional storms, coping with changing life." Well put, and so right.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  
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