Post cancer penile implant surgery

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Rufus2
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/29/2010 9:27 PM (GMT -6)   
After cancer surgery 16 months ago, I had  surgery two weeks ago to place a Coloplast implant.  I am still recovering but am not sure if my present symptoms are normal.  The device was left partially inflated by the surgeon and is very uncomfortable.  They plan to leave it this way for 6 weeks.  Also, the inflation ball and deflation valve are hard to reach and seem like they will be difficult to actuate.  I am numb on the side where the resevoir has been placed.  My surgeon assures me that all is normal.  What have been the experiences of others?
 

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6982
   Posted 9/29/2010 9:41 PM (GMT -6)   
I'm not there yet, but the implant is a strong possibility for me as well. I'll be watching your reports.
 
The things you describe are consistent with what I have heard from others on the forum over the last year.

hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 9/30/2010 9:37 AM (GMT -6)   
You need to join the "penileimplants" group on Yahoo Groups. There are over a hundred members who can relate very well to your experience.
 
I haven't had the surgery yet, but your experience so far is very common. The biggest after effect seems to be the six weeks of partial inflation, which for some men, can be very painful. I think it depends on how many surgeries one has had, if you tolerate pain very well, how active, etc.
 
I had by-pass surgery in 2005 so I don't expect the pain to be bad for me at all.
Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
PSA Sept 2009 0.00, PSA Dec 21, 2009 0.02, PSA March 29, 2010 0.03
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.
Stopped the injections except for "Fun" weekends. Really don't need them anymore.

Rufus2
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/30/2010 2:16 PM (GMT -6)   
Thanks a lot.  I appreciate your help and will join Yahoo group.
 

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/30/2010 2:20 PM (GMT -6)   
rufus, good luck on your recovery

david
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4110
   Posted 9/30/2010 3:36 PM (GMT -6)   
Rufus you may want to check out franktalk.org. There are several guys there that you can chat with that are bionic.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
Only issue at this time is ED

Rufus2
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/30/2010 5:32 PM (GMT -6)   
Thanks verymuch. Went for my 2 week followup today and the docs are happy.  It is beginning to feel better but will be nice to talk to people who have had this.
 

Rufus2
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/30/2010 5:40 PM (GMT -6)   
Hi hb2006 if you have a link to the penile implant group on Yahoo please attach it. I can't find that forum.
Thanks,

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 10/1/2010 7:48 AM (GMT -6)   
I could not find the yahoo group either. I am probably going to be in line for sphincter implant and am considering getting both done, if I can. I was wondering about a comparision of the AMS and Coloplast penile implants. What did you find out about the comparitive differences?

Wigs
Regular Member


Date Joined Mar 2009
Total Posts : 89
   Posted 10/1/2010 8:57 AM (GMT -6)   
Rufus2,

I had my implant procedure, AMS, in December 2009 and activated in February 2010. I, too, was sore and numb. It will get better with time. After nine months, I still have a little discomfort in my scrotum after sitting in the same position for too long. I say that, but I also have a AUS implant with another bulb in my scrotum. All in all, I can't complain.
 
Wigs

hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 10/2/2010 8:18 PM (GMT -6)   
Here is the info:

penileimplant-subscribe@yahoogroups.com or

penileimplant@yahoogroups.com

It's one of the Age Restricted Groups on Yahoo.
Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
PSA Sept 2009 0.00, PSA Dec 21, 2009 0.02, PSA March 29, 2010 0.03
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.
Stopped the injections except for "Fun" weekends. Really don't need them anymore.

hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 10/2/2010 8:24 PM (GMT -6)   
Forgot to say that the Yahoo Group has 359 members and there are between 100 t0 150 emails posted a month. Some are quite descriptive about implant issues so be warned...

There have been a few guys that felt they made a big mistake, mainly because they expected to recover all their lost inches from PCA Surgery or Peyronies Disease. Neither Coloplast or the AMS implant can give you back inches, AMS will expand up to an inch but it takes 18 months. It also gives back girth so most guys are at least 2 inches in diameter after the implant.
Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
PSA Sept 2009 0.00, PSA Dec 21, 2009 0.02, PSA March 29, 2010 0.03
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.
Stopped the injections except for "Fun" weekends. Really don't need them anymore.
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