Summary of my latest surgery

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/30/2010 5:17 AM (GMT -6)   

A short summary of my Ileal  Conduit Surgery, required as the result of severe radiation damage to my bladder, bladder neck, and general rectal area as  the result of Salvage Radition:

Thursday Sept 23

Surgery day.  Arrived 0800.  During prep, too 5 attempts to get in IV, finally my anathesolgist had to come and do it.  Remember being wheeled into OR.  Helped get myself on OR table.  Mask over face, blackness.  Surgery was deemed 2 ½ hrs normal, 3 hours with difficulties, took surgeon 4 full hours.  In recovery room 2 hours.  Was in room at 5 PM.  New stoma in place and urinating into bag.  Heavily medicated with pain pump, Dialud, strong stuff.  Had problems with nasal tube, so that had to halfway remove and put in properly,  Rough night, too many interruptions by staff hourly.

Friday Sept 24

Second day. Quite a few visitors.  Dr. looked me over and thought all went well. Increased pain meds. That night, developed 101 fever, no explanation found, Tylenol brought it down. Started hating the nights, long painful hours of nothingness.

Saturday Sept 25

Third day.  Too many visitors. Love em all, but they don’t realize how tiring it is.  Mostly drifting in an out of medicated sleeps.  No major problems that day.  Had first  food in 4 days, some yummy vegetable broth, apple juice and jello.  First night with no major issues.  Horrid sleep at night.

Sunday Sept 26

Fourth day.  Barrage of visitors, as many as 5 at a time.  Watched football game on/off.  Had med pump reduced. Too strong.  That night, began severe farting attacks, very pained.  Nasal tube gagged me all night, everytime I swallowed.  Had mental meltdown, and cried with nurse.  Longest, darkest night of my life.

Monday Sept 27

Day 5.  Met with my main dr, very emotional.  Said I could plan to go home next day.  That revived my dark heart.  So I worked with PT dept, and sat up, sat in chair, took first walk.  Also, good sign, had 5 bowel movements that day, so knew I had ticket out of place.  Did all I was asked, and more.  Better mood, night still long and terrible, so much side effects from the meds.  They had 6 meds going in me same time.  They removed nasal tube, horrible experience of gagging putrid material, but free of it at last.

Tuesday Sept 28

Day 6. Long day.  Still having BM’s fine.  Long session with PT.  Long session with Stoma Nurse and my wife.  She changed my device and bag perfect on first try, marrying a nurse has plusses.  Lots of paperwork and waiting.  Finally time to leave, wife gets car, I go down in wheel chair to 75 degrees and sunshine.  Felt wonderful.  Uneventful drive home.  So great to be home, eldest son was waiting, had doors opened and helped the old man up the two steps into house. Best part, was laying down with wife, side by side on bed, and going to sleep together.

There, that’s the short version of this event.

 (We had a 5 day outage of our Charter Internet Service this week, hope its fixed now)

 

David in SC

 


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 9/30/2010 5:25 AM (GMT -6)   

Hi David..welcome home. Rough sledding, but hopefully it's better sailing from here on. I guess I should have done my homework and known by now, but I'm unclear as to how a stoma functions. Could you give me the Cliff Notes version? :-)

Arnie in DE

 


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 9/30/2010 6:03 AM (GMT -6)   
Yes welcome home and continue to rest and heal.

larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN.

Final Path report:

20% of the prostate Involved

Tumor graded at T2C

Overall Gleason 3+4 (7)

Lymph Glands Clear, Positive Margin Noted in Right Apex



First post Surgery PSA - 0
Six month PSA - 0
Ten month PSA - 0

don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 9/30/2010 6:06 AM (GMT -6)   
Hi David,

Glad your surgery went well and hopefully you can begin to heal.

Don
Diagnosed 04/10/08 Age 58
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
IGRT/IMRT with adjuvant HT (lupron) 2yrs
PSA:
02/08 21.5
07/08 0.82
10/08 .642
09/09 0.32
03/10 0.32
06/10 0.32
07/10 0.10

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6947
   Posted 9/30/2010 7:29 AM (GMT -6)   
David,
 
Sounds like you handled the "adventure". Glad you are home and resting.
 
Take it easy.
 
My best -

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 9/30/2010 8:18 AM (GMT -6)   
Hi David, glad to see that you are home and on the recovery path. Hopefully everything will work well for you and your suffering will be finally over.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005

Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 285
   Posted 9/30/2010 8:19 AM (GMT -6)   
Glad to hear you are home, nothing better for recovery than familiar surroundings and loved ones (and lucky you... a private nurse).

Our best to you,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op clear margins, no extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, SRT 01/19/10 started 39 sessions 70.2gy, psa 6 weeks into salvage IMRT up to .4
Post SRT psa at 10 weeks (5/31/2010) down to .2, @20 weeks (8/20/10) .1 (getting close)

daveshan
Regular Member


Date Joined Jan 2010
Total Posts : 363
   Posted 9/30/2010 8:23 AM (GMT -6)   
Glad you're home, and hope things go well for you from now on!
Cheers
Dave in Durango CO

Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 9/30/2010 9:14 AM (GMT -6)   
 
Welcome home David sounds like you had a rough go of it, but hopefully that is all in the past now and you get get on with the job of getting well.
 
Jerry1 & MJ

gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 9/30/2010 11:49 AM (GMT -6)   
Welcome back.hope you feel better. yeah

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 9/30/2010 11:58 AM (GMT -6)   
Hi David.
Glad to read that you're now at home and recovering from your ordeal. Hope
that your recovery will be swift and complete. Thanks for keeping us up to
date.
All the best to you and yours.
 
Mag

Born 1936
PSA 7.9, Gleason Score 3+4=7, 2 of 8 positive
open RP Nov 06, T3a, Gleasons 3+4=7, Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; at SRT Start=0.1, Salvage RT completed (33 days-66Gy) 19 Dec 08
PSA: in Jan 09 =.05, all tests to date (Jul 10) <.04

Jazzman1
Veteran Member


Date Joined Sep 2010
Total Posts : 1160
   Posted 9/30/2010 12:00 PM (GMT -6)   
Man, what an insanely rough ride for you, David.
 
I'm really glad to hear that you're home in your own bed and on the mend.  You're overdue for a break, so feel better and heal up.

Old Sailor
Regular Member


Date Joined Aug 2009
Total Posts : 208
   Posted 9/30/2010 12:22 PM (GMT -6)   
David, sooo glad your home.  You've been through the storm and the horizon looks mighty fine.  I've asked Padre Pio to stand by you - always remember what he said "worry is useless." Your a tough old bird and your going to be fine.  Old Sailor

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/30/2010 1:19 PM (GMT -6)   
thank you friends, one and all, too tiring right now to answer each person as i like. staples scheduled to come out next tuesday. incision is huge for nowadays, 9 inches, looks like a shark bite

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

BobCape
Regular Member


Date Joined Jun 2010
Total Posts : 416
   Posted 9/30/2010 1:30 PM (GMT -6)   
Gld you're home. I hope pain is something you remember used to having. Wishing you the best. Be strong, you ARE strong. In my thoughts and...
First ever PSA test Jan 2010 @ 51 years old. 4.0.
Digital exam in March 2010 showed 1 side hard, other soft.
Biopsy, positive in 3 of 12.
Davinci @ Boston Medical Center, May 17, 2010.
Was suggested prior to it was likely contained.
June 1 advised 3+-4 was really 4+3 per pathology. Pos margins.
Listed on patholgy as PT3, but with extraprostatic extension,
microscopic invasion of the bladder neck, PT3A is perhaps the case.
Catheter removed June 1.. 1 pad/day, doing ok. ED, but not in rush.
Sore as heck down there, but doing much walking with my wife.
To meet with my Uri (1st meeting since) June 17 - 1 mo point, to discuss.
BMC already has me setup to meet with radiology.
Felling a little better each day. Cant tell if my expectancy just went from 10-15 down to 5-7, the information out there appears to be all over the place. I WILL NOT radiate my insides to the point of being a veg for the sake of a few years. QOL is primary to me. Selfish I guess. I pray for all of you as I do for myself, but must remember that i've had a pretty good 50+ years, and know others who have lost their children to disease.. so I dont have the nerve to complain! Update 7/14/2010: When I tried changing this sig a few days after creating it, system was broken. My new rad oncologist are discussing IMRT.. though he says he can see why waiting a bit and watching the PSA on super sensitive basis might make sense. I am leaning towards IMRT.. thinking is my body is pretty strong now, i'm 51, and if I can rid my body of this while trying to minimize the side effects.. I dunno. No really Good answers. When I said I didnt want radiation to the point of being a veg.. I really meant there is a limit as to where I wish to go in order to realize only a small increase in life expectancy.. and not that I am an unreasonable person. I do, after all, have an obligation to my wife and kids.

DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 732
   Posted 9/30/2010 1:32 PM (GMT -6)   
Dave,

So good to hear from you. Thanks for sharing your difficult journey. It was pretty rough when my wife had it, according to her (this was before we met). Hoping your life will become much better.

Arnie, here's what I recall: There are muscular tubes that pump fluids through the body via controlled, coordinated squeezing, called peristaltic pumping. Ureters pump urine from the kidneys to the bladder this way. The urethra also pumps. And so do the intestines. In this type of surgery, the surgeon removes a section of intestine, reconnects the remaining intestine, and using the section to connect the kidney to an opening on the abdomen. The intestine pumps urine from the kidney to the collection device which is attached to the body. Sort of like a catheter bag. This surgery is appropriate for folks with a damaged bladder, which could be from an accident, or cancer, for example.

DJ

spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 345
   Posted 9/30/2010 2:08 PM (GMT -6)   
David,
That sounbs pretty rough mate.
Glad your on the other side and hoping for a steady recovery for you.
Mike

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 9/30/2010 2:27 PM (GMT -6)   
Dear David:
So glad you are home out of the hospital - they do their best to be helpful in recovery - but the real recovery is when you are home with your loved ones.
 
Glad to read that even with the turmoil and dark clouds, you were able to find the silver lining - being beside your Peggy once again at night.
 
Hope the nights are less dark for you and your are able to see and reach for the stars.
 
When they do the movie version of your journey - I hope it is not in 3-D ... but who will play you?
Hmmmmm.....
 
Wishing you a steady and boring recovery.
Gentle hugs to you, Peggy and your wonderful son, Josh.
 
BRONSON
 
 

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 9/30/2010 2:41 PM (GMT -6)   
Good to hear from you David and glad that you are home.  Look forward to hearing more from you and hoping this will help with the pain you had prior to this surgery. We missed the big party up in NY, but maybe next year we will both be there.
Michael

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/30/2010 3:13 PM (GMT -6)   
thanks guys.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 9/30/2010 3:54 PM (GMT -6)   
Home at last. There is no place like it. You were missed here David and it is good to see you back. But recovery is the most important thing right now so be sure to take it easy. How lucky are you to have your very own personal nurse on hand ....... she will be such a great contributor to your return to good health. I read of your boudoir escapade in your other post ....... all I can say is you are da man!
Talking of stitches and shark bites .... when my brother was 14 he had to have a part of a lung removed. This entailed him being opened up along the line of his ribcage front to back and resulted in many accompanying stitches. It really did look like a shark tooth scars. At the time there were many immigrants coming to Australia and particularly to our area where they stayed in hostels in their early months here. Many local young blokes used to go there to crack onto the new girls. He was a great hit for years with them (and did quite well for himself smilewinkgrin) as he told them of the time he bravely fought off the man eater while surfing. Any newcomers who doubted were shown the scars of the battle. One of them became his wife for the next 38 years.
Get well ol' friend,
Bill

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/30/2010 6:57 PM (GMT -6)   
great story billy

i am listening to my body. i am up an hour or so, then down for an hour or so, keep repeating that cycle
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6947
   Posted 9/30/2010 9:51 PM (GMT -6)   
David,
Mom asked how you were doing tonight - sends her best -

Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1404
   Posted 9/30/2010 10:03 PM (GMT -6)   
Oh David, you have been through so much.  Glad you are home and resting.  I hope your healing process will go by quickly!  I know your wife is taking good care of you.  Get well soon!
 
Best wishes,
Aimzee
 
Husband Ron, age 63
4/1/10 PSA 5.5 Prostate size = 50 cc.
Biopsy on 4/20/10 12 samples... Adenocarcinoma: 3 positive on right side, one core left base (5% ` 0.5 mm) - two cores of left lateral mid
(20% ~ 2mm, 10%, 10% ~ 1mm) - No Perineural Invasion
Gleason 6 (3+3)
Bone Scan/CT Negative (2 lesions on liver)
8/18/10 - Da Vinci Prostatectomy
Post Op: Gleason 7 (3+4)
Negative surgical margins and lymph nodes
Both nerve bundles spared
Catheter - 13 days

Franchot
Regular Member


Date Joined Jun 2009
Total Posts : 130
   Posted 9/30/2010 10:59 PM (GMT -6)   
Wow. Just reading it made me cringe. You're an Iron Man. Onto better and better and better days.
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