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compiler
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Date Joined Nov 2009
Total Posts : 7270
   Posted 10/6/2010 10:41 AM (GMT -6)   
Well, I may be jumping the gun (I prefer to think of it as staying on top of things).
 
Given my steadily rising post-surgery PSA (also known as ultra-sensitive PSA test anxiety), I have the folllowing appointments:
 
1) Local radiologist later today. I want to find out about the nuts and bolts (and scheduling options) of SRT and try and measure if the local treatment is comparable to Umich. Our local hospital is the major center for mid-Michigan and supposedly is pretty good.
 
2) In one week, I see my local urologist. I hope to pick her brain a bit.
 
3) On 11/1, I will be seeing a top medical oncologist at Umich (Dr. Maha Hussein). If things go downhill I would certainly need to have such an expert.
 
4) My next PSA is scheduled for 12/21, but I will probably delay that 2 weeks so I don't totally ruin the holiday/New Years season. I'll get it done before:
 
5) 1/7/11 -- my next scheduled appointment at Ford Hospital. I'll have my next PSA by then and I can see what they think.
 
Mel
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. 9/21/10--0.06

BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 10/6/2010 11:50 AM (GMT -6)   
Mel, I don't think you are jumping the gun. I wish that I had moved more quickly when my PSA began to rise, .01 to .07. I waited until my next test when it came back at .28. Then I really had to move quickly since I wanted to start SRT before it hit .5. Setting up appointments, getting second opinions, making decisions, getting tests and planning SRT takes some time. BB

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 10/6/2010 12:36 PM (GMT -6)   
BB:
 
Agreed. On the psychological front, I HATE having so many appointments. I remember when my Dad was elderly. He sure needed his calendar to keep track of all his appointments. He HATED that.
 
I seem to be following his footsteps!!
 
Mel

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 10/6/2010 7:13 PM (GMT -6)   
I think you might be too pessimistic. Another way to look at your numbers is the .01 and .02 were the ~ same. The 0.06 is a rise, but could be considered just one rise, not a trend. Certainly the measurement between 0.01 and 0.2 could have been something like this. 0.019 and 0.020 so it is theoretically possible that if the tests wee 100% accurate there could have been just a 0.001 difference betweeen tests one and two?
I know what it's like to worry and just because someone tells you not to worry. ......
I reality, I might be doing the same as you, just because I don't want to be caught setting still when I could preparing myself for what's next. But I hope you end up in a year saying.. whew, what was I worried about. I hope your next test is <0.06.
A few 0.06's is not bad I think.
Ron

rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 10/6/2010 7:30 PM (GMT -6)   
Mel, I don't think you are jumping the gun. In fact, if you didn't have the appointments, I bet you would be driving yourself crazy with "what ifs". You can go and get all of your questions answered and come back and report back to us!
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 10/6/2010 9:40 PM (GMT -6)   
Ron:
 
I would be delighted if my PSA does not trend upward.
 
But I think I am being prudent. IF my PSA rises in a major way I will want to move quickly.
 
I already saw the radiology guy today.
 
I posted on that in a separate thread.
 
But, bottom line, if I need to have SRT I am now in a position to start  very quickly. Studies have shown the efficacy of doing SRT sooner rather than later once certain PSA readings occur.
 
Mel
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. 9/21/10--0.06
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