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gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 10/9/2010 8:04 AM (GMT -6)   
Hi,I just read the post from Khrisr and I wonder if it is realy a cure of pc.or becouse it works very slow
you will die from something else if you have a chanse to live a long live?
what if you are a young person when it hit you? confused

proscapt
Veteran Member


Date Joined Aug 2010
Total Posts : 644
   Posted 10/9/2010 6:48 PM (GMT -6)   
It's very hard to generalize. For some with PC, they've been "cured" by treatment, in that they never have any detectable sign that the cancer has returned.

Others have a PC come back but it says small enough and local enough that it doesn't do them serious harm before something else gets them.

Still others are not so fortunate, they either catch it too late, or they get it early but it is aggressive and comes back anyways.

If you post some specifics about your own situation, people here can share information that would be relevant. There are lots of tools for figuring out your own outlook based on the specifics of your own disease.

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 826
   Posted 10/9/2010 7:27 PM (GMT -6)   
Gold Horse,
 
This is the exact problem I have when people tell me I had "low risk" desease.  That may be true if I were 68 years old and my chances of dying of something else in the next 20 years is huge compared to dying of a slow moving cancer.  Heart desease is still the number 1 killer of men and women.  Cancer is #2.  So I am sure once you get to 68 or 70 your chances of dying from a heart attack in the next 20 years are much higher then dying of Gleason 6 or 7 prostate cancer.  And I mean a lot higher. 
 
Therefore, if most men are dx. with PCa at 68 and they have G6 or G7 localized desease and it is slow moving, which the majority of it obviously is based on all the survival data we see, no wonder most men die with PCa and not from it.  But how many of those men were dx. in their 40s and 50s.  I bet not "most" of them.
 
So, is G6 really curable or does it run a course of 25 to 30+ years?  If most men are Dx. at 68 and G6 runs a longer course then say G7 or G8 we may never have reached the end point because not many men will live another 25 or 30 years beyond 68 years old.
 
It's not like there are a bunch of studies out there saying that if you have G6 and reach the say 15 year mark, you are cured, because nobody recurred after that.
 
Then I read from Epstien at Johns Hopkins that G6 is virtually 100% curable.  They say 99.6% are cured.  I don't know what timeline they are using to say that about people.  Epstien even told me in an email that it applied to me even at 42 and age has nothing to do with it.  I do know of one study that shows a 94% reccurence free rate after 23 years for people who had RRP that were under 50. 
 
So what I do know is that I have a 100% chance of not dying of PCa in the next 15 years and probably will not have recurrence until at least then.  That being said if I recurred at year 15 it would be approx. another 13 years on average until death.  Hence I feel I have at least 23-25 years at a minimum.  If that's the case for G6 and I was 68 then I would have to live to say 95 before the desease would get me.  Most men don't live that long.  So, were the really cured?
 
Johns Hopkins keeps telling me age has nothing to do with it and cure is possible. I truely believe that they know what they are talking about.  Walsh, Epstien and Partin are not a bunch of screw ups.
 
I had a friend last week grab his chest and drop dead at 41.  He was a Capt. in the Salvation Army and had 4 kids.  Any of us could go at any second.  PCa has changed my entire view of life and no not for the better.  It's worse.  I do things I normally would not do, knowing that tomorrow might not be there.
 
Are we low risk or just long term high risk?
 
I don't know what to think.
 
 

Post Edited (ChrisR) : 10/9/2010 6:38:57 PM (GMT-6)


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 10/9/2010 8:15 PM (GMT -6)   
Chris R.

"PCa has changed my entire view of life and no not for the better."

Your post is very thought provoking. Your one phrase however, caused me to think a little.

How has it changed my life ? Is it for the better or for worse ?

Other than the side effects we all complain about, which obviously are worse than what we were used to, I have concluded in my own mind that in many ways my life is better.

1. I am more grateful for life itself. I savor things a little more than I used to. A walk in the outdoors on a beautiful day, a good meal, a loving family, the ability to work, etc. were the kinds of things I just took for granted that I could expect for many years.

2. I am a more loving husband, father, grandfather. Realizing more than I did before that life is not a guarantee, and that I am mortal, I am more aware that I should life in a manner that if I should clutch my chest and drop over like your friend, or die from matastisized PC, that I need to be sure that I need to live like every moment may be my last.  I tell my family I love them every time I see them, tell my friends that appreciate them, and try not to make any new enemies.  Life is short, and may be even shorter.
 
3.  I do do things a little more on the whim.  If I am invited to go fishing or hunting, or a trip to New York or Louisiana,  I am more likely to do it.  I don't have a bucket list, but I want to experience everything I can.  I have realized that I can't just wait until a more convenient time.
 
4.  And on and on.  I really do believe that my quality of life is better.  The side effects of the "cure", be it for 2 years, 10 years, or 23 years are worth to me.  A drip in my pants, or difficulty in having sex are worth the ability to spend a few more years here.  I would do it over again without hesitation.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

Post Edited (goodlife) : 10/9/2010 7:23:11 PM (GMT-6)


ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 826
   Posted 10/10/2010 2:49 PM (GMT -6)   
Goodlife I noticed you went to the Cleveland Clinic. I am on Columbus Ohio. Are you in Ohio or close.
Dx 42
Gleason 6 (tertiary score 0)

open RP 10/08 Johns Hopkins

pT2 Organ confined Gleason 6

PSA
10/15/2009 <.1
10/15/2010 <0.03
10/15/2011 -

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 10/10/2010 4:32 PM (GMT -6)   
Toledo
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 10/10/2010 5:08 PM (GMT -6)   
Goodlife,

Beautiful post mate, I feel exactly the same way, myself about life at the moment. Your post just made me stop and think how lucky I am, and I just had to tell you.

Cheers ...............Kev

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 10/10/2010 8:51 PM (GMT -6)   
Thanks Kev,

It sure makes every day a lot easier to face.

Goodlife
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4110
   Posted 10/10/2010 10:10 PM (GMT -6)   
Goodlife, My thoughts are a lot like yours. I know you read the post of 2 years post op. Many of those thoughts are much like yours. Live life like today is your last.

I appreciate off the guys on this board and always enjoy getting to meet with them. Life is good.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
Only issue at this time is ED

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 826
   Posted 10/11/2010 6:09 AM (GMT -6)   
Moderator. Please delete ilovegreens post.......
Dx 42
Gleason 6 (tertiary score 0)

open RP 10/08 Johns Hopkins

pT2 Organ confined Gleason 6

PSA
10/15/2009 <.1
10/15/2010 <0.03
10/15/2011 -
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