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MistyCoffee
Regular Member


Date Joined Oct 2010
Total Posts : 39
   Posted 10/12/2010 8:06 PM (GMT -6)   
Aloha,
I was diagnosed with PCa in early 2007, shortly after I presented with getting many times/night to void, full bladder, 200 cc plus. Not just dribbles. This had been getting worse over the past year and I was getting tired of loosing sleep. Worst case I would be up ten times in eight hours, voiding about 2 liters/night. Not so much during the day. Measurements indicate urine production rates about 35 to 50 cc/hr when awake, and 100 to 200 cc/hr when asleep. Even after PCa EBRT/IMRT (Sept/Oct 07) treatment the night voids continue. In April 2010 the urethra began to be very painful, on pain management with nausea control. Last week, my uro decided I'ed had enough and I had a Suprapubic catheter installed which bypasses the urethra but still have some leakage which hurts. I needed severe pain management after the cystoscope used to place the SPC, but the next day was able to quit the pain management program. Finally getting a good nights sleep, leaving the cath open to bed bag at night.

Has anyone else had night voids? I have no idea if they are associated with prostate cancer as they do not seem to be. No other med depts have any answers (uro, neph, endo). I suspect it is in my head.

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2216
   Posted 10/13/2010 2:22 AM (GMT -6)   
Welcome to the forum MistyCoffee

Can you change your urine output pattern by altering your fluid input. (And do you drink a lot of coffee, given your handle)

Producing urine the way you are must be related to your kidney function and I'd have thought that your docs could do something about it. The difficulty may be that Kidney function gets affected by pain meds, I'm surprised neph department were no help to you. I have a feeling that there may be something related to adrenaline involved too. Do you loose much body fluid through sweating?

I had been having to get up at night to pee before I was diagnosed but it was never a problem and it was never something I measured. However, during the week after surgery when I was on a catheter I did notice that I produced a lot more pee at night than in the day time. I can't remember the exact details, but one night I produced a full bag in about 4 hours and that's about 1500ml. (And I was on a lot of pain meds during that week)
Now however, I pee very little at night as far as quantity is concerned. And I am only having to get up once or twice even after both surgery and SRT.
I have become very strict about what I drink, how much I drink and when. I now don't drink less than 2000ml or more than 2500ml each day.
I cut out caffeine from my life and drink very little alcohol (almost no beer) also no sodas. When I drink fruit juice I drink mild juices or dilute them with 25% water. I also drink green tea at some point every day and drink nothing after 8pm.
At present I pee as much as I can before I go to bed, which is about 10pm, but then I read for a while and make sure I get up at about 11pm and pee again. Then I go till about 7am with just one nocturnal visit to the bathroom.

The SP catheter and the pain you have can not be pleasant so I hope you get something sorted soon.

Alf
Born Jun ‘60
Apr 09 PSA 8.6
DRE neg
Biop 2 of 12 pos
Gleason 3+3
29 Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
17 Nov 09 PSA 0.1
17 Mar 10 PSA 0.4 sent to RT
13 Apr 10 CT
28 Apr 10 start RT 66Gy
11 Jun 10 end RT
Tired
BMs weird
14 Sep 10 PSA <0.1
Erections OK
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