Today makes 2 years to the day that I joined HW. What an incredible place, what an incredible journey
1 month and 1 day later, I had my open RP, 4 1/2 days in hospital, and I thought that would be that, a few weeks of healing. Cancer gone, end of the story. Wrong.
101 days after surgery, was finally able to have last of the foley caths out of me. Going dry took me less than a month, I tried keagels once, got bored, and never did them again. ED, my story is well known here. No ED. From the time the cath was removed, had full, natural wood, just the same as before, dry orgasms of course - but they lasted longer and deeper.
April - June of 2009 - only good months I had - went on Florida vacation, did a lot of house reno work, and rebuilt a 1972 Shasta Compact Travel Trailer "The Pink Cup Cake".
From July 2009 all down hill. Had total stricture blockage for 2nd time, had to have emergency dialation, followed by my 2nd corrective surgery of the year.
By Aug 2009, BCR had been confirmed with 3 readings in a row above .10. Due to presurgery PSA velocity issues, I was sent to the front of the line at radiation clinic. Interview 3 rad oncologists before chosing one. The plan: 72.0 gys of IMRT over 39 treatments.
I won't rehash what went wrong during and post SRT, still too painful.
In the end, my bladder and bladder neck basicall destroyed by radiation. We tried a painful 11 months to acchieve some natural healing but it wasnt going to happen. The experts at Duke turned me down, due to the excessive damage (dont tell me they dont cherry pick).
I had to settle for this complex Ileal Conduit Surgery. I will forever pee through a stoma in my side, for life. I am 3 weeks into what is said to be 8-10 of recovery.
This is the short version of my journey. Another post SRT PSA in a month, my last one was an uptick, hoping it was a fluke. I have used up my curative cards.
HW has been a Godsend to me. I go to no other prostate forumns, been faithful here. Thanks to Peter, our moderators, old friends and new. It doesnt matter to me if we agree on all or any points, it matters that the brotherhood is real, and we stick together to fight this wicked, evil, horrible cancer.
Why am I still here? I just cant turn my back on the endless line of new friends we keep attracting.
David in SC