Saw my urologist

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Veteran Member

Date Joined Nov 2009
Total Posts : 7187
   Posted 10/15/2010 11:58 AM (GMT -6)   
Well, just to remind you all, my PSA is rising post-op and I suspect SRT is in my immediate future.
Anyway, I scheduled appointments with:
1) A well-recommended local radiation oncologist
2) My local urologist
3) A highly recommended medical oncologist (Dr. Hussein at Umich).
I saw #1 last week and it was very helpful. I got a lot of information -- nuts and bolts stuff. I also established myself as his patient so that if the numbers go up I can quickly (in about 1 week) get started with SRT.
I saw # 2 a few days ago. She also agrees feels that SRT is looming and is the next step. I didn't gain any new knowledge. But I was due for a routine appointment. She did mention that Dr. Hussein will probably have me do a PSA when I see her on 11/1. Frankly, I hope not. I get enough anxiety before a PSA. My next regular PSA is scheduled for 12/21 and I may wait until right after the holidays, just before my next regular appointment with the Ford team on 1/6/11. I have a feeling that she will do a PSA and at that point the conclusion might be that it's back. I would really like to wait. My wife and I are thinking about doing a cruise (it would be our first one) during our December break. We will not start to book anything until after our 11/1 meeting. I am still being plagued with tailbone pain and I still worry that it could be PC related. So, I wonder if she is going to order any kind of scans. The radiology guy said the tailbone pain is unlikely to be the PC due to my low PSA (and also it generally doesn't come back as tailbone pain despite the proximity to the prostate).
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. 9/21/10--0.06

Regular Member

Date Joined Aug 2008
Total Posts : 328
   Posted 10/15/2010 12:03 PM (GMT -6)   
Based on your signature your latest PSA is .06? still <.10 where many doc's feel still undetectable....

Good Luck with your upcoming tests and doc visits.
Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4). Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008, Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
6 Post OP PSA's from 9/2008 to 6/2010: <0.1

Veteran Member

Date Joined Nov 2009
Total Posts : 7187
   Posted 10/15/2010 12:10 PM (GMT -6)   
That's correct Schuh.
But it went from 0.01 to 0.02 to 0.06. I think the handwriting is on the wall. Let's hope I am wrong.
I might add that my situation points out the pros and cons of the ultrasensitive test.
On the con side is PSA anxiety. I think this is overrated as I would have PSA anxiety anyway (my anxiety really starts about 2 weeks before my next PSA test) and I would still wonder if it is increasing.
On the pro side, it does allow me to prepare for a BCR. In my case it spurred me on to do these follow-up appointments and basically should things get worse I will be able to start SRT quickly. The studies I've read show significant advantage in starting SRT quickly (say at or before 0.20 as opposed to 0.50 and 1.0 is even worse).

Ed C. (Old67)
Veteran Member

Date Joined Jan 2009
Total Posts : 2457
   Posted 10/15/2010 7:04 PM (GMT -6)   
I hope all goes well with your appointment. Stay positive and take that cruise.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005
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