Thanks for your reply. Even though I had a really great post pathology and I have been told by even Dr. Epstien at J.H. that I have 4/10s of one percent chance of recurrence. Something did not sit right with me. From the time I was dx. every Dr. said I was a low risk case. It was only recently that I realized G6 PCa probably runs about a 20-30 year course. Not that I am not happy with that, but I feel I will have to deal with recurrence eventually. When everyone was telling me I had little chance of PCa mortality I said, O.K. show me all the 40 year olds that had it 30 years ago and are still alive. Everyone said our studies don't go back that far. So, how can they claim with such confidence that a G6 40 year old has the same chance a survial as a 68 year old? 68 being the average age for PCa dx.
Not many 68 year olds will live another 20-30 years to see if G6 PCa kills them. Most likely something else will get them instead. I have a life expectancy of 40 years. Like all of us I will forever be looking for recurrence to happen, since there have been no studies that say once you reach a certian number of years out recurrence stops happening. Recurrence just seems to level off at a smaller percentage. I will never be "out of the woods." It weighs on my mind extremely heavy everyday. I feel that worst case I have 15-25 years before PCa mortality. I hold small, very small, hope that some new treatment will come out in that amount of time. Who knows, maybe Provenge will be highly effective in patients with early BCR. If they ever try it. I always wonder why trials are done on the worst cases only and not everyone else. Seems to me you would want to see what it does at all stages. Sorry, off subject.
The next thing that bothers me is a recent article I found about "Circulating Tumor Cells" (CTC) in low tumor volume PCa patients. It showed that 7 out of 9 patients with a tumor volume of <.5cc were positive for CTCs after surgery. Even though they had them it did not mean they had fast growing PCa. It just meant that surgery did not remove all the cancer. Since PCa is mostly slow growing you could have micro-mets for 20 years without knowing it. So, this only compounds my worrys for the next 20 or so years.
I know, I know I have no reason to complain compared to what other people here are suffering with. I feel like I really am in the same boat as everyone else here, just on a longer time frame. I really mean no dis-respect to anyone else here, it's just how I feel about it.
Post Edited (ChrisR) : 10/17/2010 8:02:42 AM (GMT-6)