Anyone read this story by Dr. Ciril Godec, opinions?

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BobCape
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Date Joined Jun 2010
Total Posts : 416
   Posted 10/16/2010 7:44 PM (GMT -6)   
 "In comparison, for relapses following tumor surgery, the survival time for pancreatic cancer is 4 months, kidney 6 months, stomach 8 months, lung 1 year, colon 2 years, and breast 3 years. Prostate is in a league by itself — 13 years. PC is the slowest growing cancer that we know, so slow that at this point we can consider PC a chronic disease, like diabetes or high blood pressure. We cannot cure it but we can control it, and patients can lead a normal life. If I had to choose one cancer for myself, it would be prostate cancer."
 
 
Thanks,, and positive thoughts towards all.
 
Bob F.

Julietinthewoods
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Date Joined Sep 2010
Total Posts : 309
   Posted 10/16/2010 8:05 PM (GMT -6)   
That should be encouraging to absolutely everyone. Might have been nice if he'd discussed treatment side effects a bit more, but the bottom line (and scary part) for every man newly diagnosed is the life or death issue. This article should also help everyone realize he can make his own treatment choice, he does have a choice, and it will in all likelihood turn out just fine.

As parents of sons, we are glad to hear the downplaying of the hereditary factor as well.

Thanks for posting it. I needed it.

Juliet

60Michael
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Date Joined Jan 2009
Total Posts : 2243
   Posted 10/16/2010 8:06 PM (GMT -6)   
Very interesting Bob, and thanks for posting the link.
Michael

gold horse
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Date Joined Nov 2009
Total Posts : 360
   Posted 10/16/2010 8:28 PM (GMT -6)   
Bob,thank you it is always to hear good news in this roller coster. yeah

Radical
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Date Joined Mar 2009
Total Posts : 739
   Posted 10/16/2010 8:29 PM (GMT -6)   
Bob, I totally agree with you, with the exception of the guys who are in serious trouble with this disease, for the majority it is probably the better one to have. As my Uro said to me when I was very first diagnosed [quote] "your not going to die", well not of pc anyway.
Kev.
Age 52yrs [Gold Coast Qld, Australia]
6 out of 8 cores positive 3 X 60% / 3 X 10%
PSA 4 Gleason Score 3+4=7 Stage T1c
RP 24/12/08
Upgrade Gleason Score 4+3=7 Gleason Differential 60%/40%
Stage T2c Three small foci total volume <10%
Neg Margins and Nodes
Nil - EPE
Dry less than 1 week. ED- okay with Meds.
PSA at 18mths no change remains 0.03
"Everday in Everyway, I get better"

ChrisR
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Date Joined Apr 2008
Total Posts : 831
   Posted 10/17/2010 7:14 AM (GMT -6)   
Yea. This theory works if you are dx. At the medium age of 65. It does not work for us younger guys.
Dx 42
Gleason 6 (tertiary score 0)

open RP 10/08 Johns Hopkins

pT2 Organ confined Gleason 6

PSA
10/15/2009 <.1
10/15/2010 <0.03
10/15/2011 -

BobCape
Regular Member


Date Joined Jun 2010
Total Posts : 416
   Posted 10/17/2010 7:56 AM (GMT -6)   
Hi NotHard & Chris..
NotHard - to be clear, the quote was mean to be attributed to the article that i linked to.
ChrisR - i'm not sure which of the specific points or theories you refer to, but I certainly apprecite the disctinction of getting this when younger vs older.

Funny how this works, depending on the user's statement, i'll look at their full sig.. you can obviously only appreciate what one of us says if you can also see where that person is and has been.

ChrisR, G 6 - 0 Tetiary - Johns Hopkins - organ confined - AND only 44ish - I'm a little envious! Yet, to you i'm sure it's a disgustingly difficult realty, the whole thing. I agree.

The doctor saying "if he had to choose a cancer it would be prostate" bothers me a little.

Just doesn't seem right when you all who have paid such a high price, and continue to.. probably dont care for that statement.

I'm curious, hope you will all take my poll i'm about to add.

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 831
   Posted 10/17/2010 8:59 AM (GMT -6)   
Bob,
 
Thanks for your reply.  Even though I had a really great post pathology and I have been told by even Dr. Epstien at J.H. that I have 4/10s of one percent chance of recurrence. Something did not sit right with me.  From the time I was dx. every Dr. said I was a low risk case.   It was only recently that I realized G6 PCa probably runs about a 20-30 year course.  Not that I am not happy with that, but I feel I will have to deal with recurrence eventually.  When everyone was telling me I had little chance of PCa mortality I said, O.K.  show me all the 40 year olds that had it 30 years ago and are still alive.  Everyone said our studies don't go back that far.  So, how can they claim with such confidence that a G6 40 year old has the same chance a survial as a 68 year old?  68  being the average age for PCa dx.
 
Not many 68 year olds will live another 20-30 years to see if G6 PCa kills them.  Most likely something else will get them instead. I have a life expectancy of 40 years.  Like all of us I will forever be looking for recurrence to happen, since there have been no studies that say once you reach a certian number of years out recurrence stops happening.  Recurrence just seems to level off at a smaller percentage.  I will never be "out of the woods."  It weighs on my mind extremely heavy everyday.  I feel that worst case I have 15-25 years before PCa mortality.  I hold small, very small, hope that some new treatment will come out in that amount of time.  Who knows, maybe Provenge will be highly effective in patients with early BCR.  If they ever try it.  I always wonder why trials are done on the worst cases only and not everyone else.  Seems to me you would want to see what it does at all stages. Sorry, off subject.
 
The next thing that bothers me is a recent article I found about "Circulating Tumor Cells" (CTC) in low tumor volume PCa patients.  It showed that 7 out of 9 patients with a tumor volume of <.5cc were positive for CTCs after surgery.  Even though they had them it did not mean they had fast growing PCa.  It just meant that surgery did not remove all the cancer.  Since PCa is mostly slow growing you could have micro-mets for 20 years without knowing it.  So, this only compounds my worrys for the next 20 or so years. 
 
I know, I know  I have no reason to complain compared to what other people here are suffering with.  I feel like I really am in the same boat as everyone else here, just on a longer time frame.   I really mean no dis-respect to anyone else here, it's just how I feel about it.
 

Post Edited (ChrisR) : 10/17/2010 8:02:42 AM (GMT-6)


TaurusBull
Regular Member


Date Joined Jan 2010
Total Posts : 91
   Posted 10/17/2010 9:33 AM (GMT -6)   
Bob: Thank you for posting this article! Always good to read different perspectives. And, I did take your poll. Thanks for that too!

ChrisR: I hear you loud and clear! It does seem that most studies that mention long-term survival center around the median age of 68 at dx. When you add 13 years to my age at BCR, you get 66. That doesn't give me much hope (LOL). I guess we have to realize that they are talking averages and such. We are patients, not averages. But, I still get your point!

TB
Dx: in 6/2005 age 49, PSA 4.1, 2/10 cores pos, G6, T1c
bone scan: negative
daVinci RRP 8/2005, Hartford Hospital, Dr. Wagner
Post-surgery upgraded G7 (3+4), pT2c, NX,MX, neg. margins, perineural invasion present, tumor invades capsule wall, but not entirely through it.
PSA <0.1 until 4th yr post surgery, then 7/09 0.1, 10/09 0.2, 1/10 0.2, 2/10 0.14, 4/10 0.16,
8/10 0.25, 9/10 0.23

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 10/17/2010 11:18 AM (GMT -6)   
Two quick comments on the article:

First, I love the Marie Currie quote which opens the article, and have used it myself, but it is incredibly ironic that she died from having exposed herself to toxins which she didn't really understand...

Second, the big "C" carries a scary connotation, which is largely overcome for prostate cancer patients with learnings/education over time. The most common death from PC occurs when the patient presents symptomatically with an advanced case, having totally skipped PSA/DRE tests for any variety of reasons for many years or decades. There are, of course, exceptions to this generallity, as there are with all things in life, but I'm just sayin' that the fear of dying of PC is very slight for anyone diagnosed "early".

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 831
   Posted 10/17/2010 11:23 AM (GMT -6)   
I guess to be fair I should add to my above post, that inlight of the fact that there are no stats on 30 year G6 people for all I know they could turn out to be good. Fact is we just don't know yet.
Dx 42
Gleason 6 (tertiary score 0)

open RP 10/08 Johns Hopkins

pT2 Organ confined Gleason 6

PSA
10/15/2009 <.1
10/15/2010 <0.03
10/15/2011 -

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 10/17/2010 12:06 PM (GMT -6)   
Bob,
Thank you for posting. I guess we can all hope fora cure but if we don't get it, at least we can have few years left.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005
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