Another Incontinence Question

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Regular Member

Date Joined Jun 2010
Total Posts : 35
   Posted 10/17/2010 7:33 AM (GMT -6)   
It's been three weeks since my catheter was removed and, as I've posted before, I've been dealing with incontinence since then.  Fortunately, I was dry at night after day 2.  I'm now going through about 2 pads a day.  I've noticed, however, that I cannot go for very long periods between trips to the toilet.  At night, I often awake 3-4 times to urinate and during the day, I visit the toilet about every hour or two.  When I get to the toilet, I have the urge to go but I only void about 100-150cc's of urine.  Is this something that others have experienced and if so, is there something I can be doing to try and build up my ability to go less often and with more volume?  Having to run to the john every hour or so is putting a crimp on my ability to travel back and forth to work.   Thanks for your input about my output!!!

James C.
Veteran Member

Date Joined Aug 2007
Total Posts : 4463
   Posted 10/17/2010 8:04 AM (GMT -6)   
Bill, sadly, the urgent and frequent trips are part of the process. At least, it was for me. It took maybe 3 months or more for me to be able to sleep more than an hour or two without waking and heading to the toilet. As is often said, your innards have been sliced and diced, parts removed and rearranged and nerves cut and regrown. It's really a miracle we have any control at all until we heal good. Internal healing can take 3 to 6 months or more, and it takes time for the body and brain to learn the new circuitry and plumbing abilities. The urgency and lack of output is more a nervous system deal, rather than an actual physical effect on the bladder. There's lots of new stimuli now and lots of times it translates into urgency feelings, until you and your brain sort it out, then you will probably have this problem. There may be medicines that can help, ask your doctor.
James C. Age 63
Gonna Make Myself A Better Man
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., all clear except:
Probable microscopic involvement of the left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh
ED continues: Bimix .30cc & Trimix .15cc PRN

Regular Member

Date Joined Jun 2010
Total Posts : 192
   Posted 10/17/2010 8:09 AM (GMT -6)   
you're still ahead of most others, I'm 5 months since surgery and get up 1 or 2 times a night, usually twice. I often feel the urge but try to ignore it and go back to sleep if possible. Prior to surgery I was up 1 or 2 times as well but never ignored the urge.
At 3 weeks it was 5 or 6 times a night. It started to improve around the 2 month period for me. I'm still at 2 pads a day. I was just telling my wife that tonight I'm going padless. Others have said it does make a difference...mind over body. I tried padless during the evening and it was a bit of a bust, maybe I'll give it another go. I rarely drink anything past 8 PM and if I do drink late due to social events its water, and I still only get up twice.
At your rate you'll be padless well before most.
PSA 5.5 Jan 2010
Biopsy, both lobes involved
Gleason 3/4=7
Radical prostatectomy May 18, 2010
Catheter out June 3
Pathology: 15% involved, lymph nodes and vas deferens clear, margins clear
June 3-10 10-12 pads/day
2 months 8 pads/day
Aug 1, 2010 5-6 pads/day
Aug 20, 2010 3-5 pads per day
Aug 16, 3 month PSA: undetectable...woohoo!
ED 95% with viagara
Sept 22, 2 pads a day

Regular Member

Date Joined Aug 2009
Total Posts : 147
   Posted 10/17/2010 11:59 AM (GMT -6)   
Yes, I did find I had to make frequent trips to the bathroom initially, sometimes every hour. But it does get better in time. I am now about 18 months out from surgery and I am back to pre op routines of going through the night without needing a pee.
All the best from England.

Regular Member

Date Joined Jun 2008
Total Posts : 407
   Posted 10/17/2010 10:36 PM (GMT -6)   
Relax.  It's been such a short time since your procedure your body hasn't had time to adjust.  Don't lose sight of the trauma your body was subjected to.

Worried Guy
Veteran Member

Date Joined Jul 2009
Total Posts : 3743
   Posted 10/19/2010 2:20 AM (GMT -6)   
You measure your output. I'm not the only crazy one here. I'm so proud of you.
I still keep a container on the back of the toilet so I can occasionally check my output and see which way I'm trending.
Are you emptying your bladder completely? Do you give yourself that little "perineum push" at the end? How about squatting slightly?
If you're sure you are emptying out each time, then give it a bit more time. I know it is difficult but patience is a virtue. Do your Kegel exercise when you think of it.
Good luck to you.

English Alf
Veteran Member

Date Joined Oct 2009
Total Posts : 2218
   Posted 10/19/2010 3:08 AM (GMT -6)   
At three weeks after catheter removal you are doing well.
And your frequency and urgency sounds very like how I was at that time.

Like Jeff I have been known to take measurements and collect data.
Why don't you actually write down the time when you pee, then if you do the same in say 3 months you will be able to see any improvement for real and not just wonder if things are or are not better. I did that and it was good to see the proof of an improvement.
What I noted was the following:
Three weeks after I stopped using pads I had to pee 3 times at night and 12 times during the day.
but Four months later it was 1 pee at night and 10 in the day.

I was thus heading in the right direction when I had to have RT, which has made things much worse again. (18 times in 24 hours last time I took notes)

It's not convenient having to pee so often, but this is not that new a development for me as for most of my life I have had to get up at night to pee and pee quite frequently during the day (When I was about ten years old I was described by a friend as having a small tank.)

You do have to adjust your life to fit in around your bladder's new attitude and that can take some getting used to. When driving I just stop as gas stations very regularly to use the WC, for instance, even if I am nearly at my destination.

Hope things continue to improve

Born Jun ‘60
Apr 09 PSA 8.6
DRE neg
Biop 2 of 12 pos
Gleason 3+3
29 Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
17 Nov 09 PSA 0.1
17 Mar 10 PSA 0.4 sent to RT
13 Apr 10 CT
28 Apr 10 start RT 66Gy
11 Jun 10 end RT
BMs weird
14 Sep 10 PSA <0.1
Erections OK

Regular Member

Date Joined Oct 2009
Total Posts : 419
   Posted 10/19/2010 9:42 AM (GMT -6)   
I have been dealing with the frequency issue since my RP two years ago. It started even before RP. I had an enarged prostate...about 70 gms. Did this have something to do with shrinking my bladder or creating urgency?? Who knows! After fighting the incontinence thing and after both sling surgery and now an artificial sphincter I am still getting up from 1-3 times per night depending on how much liquid I have consumed late in the day. Also, I still have my evening cocktail and that may add to the frequency. Caffine and alcohol are not good friends of the bladder so you may want to watch those. I sleep well but when I get that urge I just get up and go and then go back to sleep immediately. I empty completely so that is not the issue and since I was a constant leaker during the day the "urge" issue to go did not affect me. Now, with my AUS I have no "urge" issues during the day and I think my bladder may be stretching most often when I go it is a normal amount. I still have no answers to the night time frequency. When I get that "slight urge" it wakes me and I just need to get up and go in order to go back to sleep.  It might be that I have my body had just been "overtrained" to this routine. It is really not much of an issue and I do feel it is getting better now that I have the AUS.
66 year old male
PSA jumped 3 to 8 Jan 2008
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP, 7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Incontinence & ED. Dry nights , no control during day.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Virtue sling surgery 2/3/10 NYU med center
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day.
Latest PSA 4/1/10 negative.
AMS 800 artificial urinary sphincter implanted 7/8/10 at U of MI.
AMS 800 activated 8/25/10 Dry for first time in 2 years.
Links to my journey posts:
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