I went to an incontinence specialist last week for a diagnosis of my 100% incontinence since RRP 10 months ago. Since I have had no improvement since a few weeks after cath removal early this january, I was expecting the news I got. My only option is an AUS or of course I could let it drip out. After the bladder pressure check (urodynamics), cystoscopy was done which revealed a very short sphincter. The Dr. said my sphincter was not going to be able to hold enought pressure to alow me to walk around dry. I has been frustrating just keegleing away with no improvement and wondering was i doing it right or doing enough. It was kinda cool to watch the cystoscopy and ask questions as there was no sensation of the camera being up in my urethra and bladder. The numbing gel worked good, at least for a while. He was explaining my condition and running the camera back and forth though my sphincter, yes is really short and a picture is worth ........
I promised myself that I would not consider an AUS till after a year, no point in waiting now.
What I guess happened, was my enlarged prostate had covered part of my sphincter so that part of the sphincter was removed along with the section of urethra that is removed causing me to loose more sphinter than normal. Really doesn't matter now, I have to live with it.
My AUS Dr. didn't offer me a perfect scenerio, the results vary widely and he could not predict what mine will be but he could predict I will be better. I am going for better then learn to live with how I end up.
Another other big post op subject most of us have is ED. I had bad ED pre op and it was no surprise to see that turn to total. I remember talking to my RP surgeon and saying if my ED got any worse it would be total. Well that is what happened. I was putting that on the back burner till I could "fix" my incontinence. I can have an IPP done at the same time as the AUS and I have little doubt I will need the IPP. However I will try injections just to be sure. Pumps and pills don't work anymore due to venous leakage. The whole subject of an IPP has suddenly rushed up on me as now I am going be having the AUS and one op sounds so much better than two.
So i think January would be a good month to be laying around indoors, come to think of it ,that is what I did last January.
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent after 3 mo. PT
ED, pre-op severe, post op total , considering IPP
10/10 Dr Boone, Baylor recomended AUS
post op psa's 0.04,<0.1,<0.1
Post Edited (knotreel) : 10/17/2010 9:03:27 PM (GMT-6)