Fairwinds Decent Into Purgatory..

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Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3892
   Posted 10/19/2010 12:02 PM (GMT -6)   
Have you guys missed me?? It's been a ROUGH 10 days..Having enjoyed a speedy and uneventful recovery from robotic surgery, I was about ready to start "adjunct treatment" (my six week post-surgery PSA came back 0.9, ouch). I got up in the morning feeling a little queasy and by 10am I was nauseous, vomiting and running a fever...This on a Friday, the worst possible time to get sick..By Saturday morning, unable to eat or drink, fever at 102. Off to an "Urgent Care" center, the only other choice being a hospital ER.. They diagnosed "a stomach bug", started an IV, infused 2 liters saline and something for the nausea and fever. I felt considerably better. Made it through Sunday, was able to drink water in small sips but not eat, stayed in bed. Monday, saw my Family Physician who put me on antibiotics and told me to return Wednesday morning if I didn't feel better.. Fever and nausea continue, bedridden, Wednesday, Family doc advises I see my surgeon RIGHT NOW or head for the E.R. Off to my urology treatment center, drink a liter of contrast dye (I don't know how I got that down) CAT scan, fluid-filled lymphocyte found in lower-right abdomen, sent directly to hospital where I was admitted and a "interventional radiologist", guided by a CAT scanner, placed a drain tube through abdominal wall..Massive amount of nasty fluid removed. I felt instantly better.. Back up to room, heavy IV antibiotics started, fever continues..Tests come back, STAPH infection found in both blood and drained fluid (lymph) samples..Next 24 hours pretty rough, fever, sweats, vomiting (dry heaves)

Luck changes, infection is NOT antibiotic resistant, is "matched" with the most effective antibiotic and 24 hours later I was out of the woods, fever broken, able to eat for the first time in 9 days.. I'm home now, and will be on home administered IV antibiotics for the next 3 or 4 weeks, while I monitor and service the abdominal drain which must be watched carefully because it likes to clog up, a potential disaster..

Unanswered question...How does a staph infection flare up 5 weeks after the surgery? Yes, several lymph nodes were removed from the area where the fluid-filled pocket had formed and become infected...Anyway, good to be home..

I was disheartened to see that David had suffered another setback on his journey...
Age 68.
PSA at age 55: 3.5, DRE normal. Advice, "Keep an eye on it".
age 58: 4.5
age 61: 5.2
age 64: 7.5, DRE "Abnormal"
age 65: 8.5, " normal", biopsy, 12 core, negative...
age 66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
age 67 4.5 DRE "normal"
age 68 7.0 third biopsy positive, 4 out of 12, G-6,7, 9
RRP performed Sept 3 2010, pos margin, one pos vesicle nodes neg

Post Edited (Fairwind) : 10/20/2010 5:16:33 PM (GMT-6)


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 10/19/2010 12:17 PM (GMT -6)   
Sounds like a wild ride. Glad you're feeling better.
 
Staph infection is most commonly caused by bacteria that lives everywhere on the human body. Most people unknowingly go their entire life with bacteria living on their skin. Bacteria helps us do many things like digest food, clean up old skin and remove waste from our bodies. Bacteria can go bad and revolt against it's host and a staph infection is a case of bacteria gone bad.

Jazzman1
Veteran Member


Date Joined Sep 2010
Total Posts : 1163
   Posted 10/19/2010 12:17 PM (GMT -6)   
Oh man! I'm so sorry to hear about your ordeal, and I'm so glad you're doing better now. Good luck with continued healing, and please, no more bad news.
 
This Purgatory stuff has just got to stop.

F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3996
   Posted 10/19/2010 12:35 PM (GMT -6)   

i missed you Fariwind but i hoped you were just taking a break.  glad to hear you are well.

ed



age: 55
PSA on 12/09: 6.8
no symptoms, no prostate enlargement
12/12 cores positive....gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10

kbota
Regular Member


Date Joined Aug 2010
Total Posts : 487
   Posted 10/19/2010 12:37 PM (GMT -6)   
Dang Fair.....sounds like you have had a tough go. and YES, we did miss you. I was thinking about you last night and wishing I had some way to contact you to see how you were.

I'm so glad that you are back home and feeling better, and also happy to see you back on the forum. I find myself looking for your posts, and the wisdom you bring to different topics.

So, what is your doc going to do about the .9 psa? That's worrisome.

k
Age 57 at Dx
5/09 PSA 2.26
6/2010 PSA 3.07 FPSA 18% DRE +
6/2010 Bipsy, 7 of 12+, >60%, 4+5=9
7/21/2010 - RRP
Nodes neg,Ves neg
tumor in capsule, still 4+5=9
pni extensive
8/5, 2010 cath out
9/3, 2010 PSA - 0.04 whew!
9/3/2010, I'm 99% continent - only stress incontinence
10/14/10, PSA still 0.04, and lupron #1, 99.9% continent
Total ED, 3 caverject failed, pump sux

Postop
Regular Member


Date Joined Feb 2010
Total Posts : 385
   Posted 10/19/2010 1:53 PM (GMT -6)   
Get well, we'd like to get you back on line and stirring things up again.

cooper360
Regular Member


Date Joined Jul 2010
Total Posts : 161
   Posted 10/19/2010 4:45 PM (GMT -6)   
I did wonder where you were!!!! Even though you've been on my case a few times LOL!!!!!! I clicked your name and realized you hadn't been on lately,sorry you had issues.I'm glad your doing better jeez!!!sounds like a bad time. Hope your back on the road to recovery..................Cooper

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 10/19/2010 6:55 PM (GMT -6)   
Fairwind, That was quite a roller coaster you have been on. I'm glad you are feeling better and resting at hope. Hopefully you will be back to normal soon.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 10/19/2010 7:33 PM (GMT -6)   
That's horrible!
 
Glad you are feeling better, and welcomeback.
 
Mel

Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 10/19/2010 8:24 PM (GMT -6)   
When you feel better take a walk through that hospital again and look for the cleanliness of the facility.  Check elevators, hand rails, restrooms, floors and the general cleanliness of the rooms.  Staph infections come from an unclean unit...not necessarily the OR's , but the post treatment areas that everyone has access to.  Staph is an incredibly debilating virus that can cause some pretty nasty outcomes.  I had a sister-in-law that went through the same thing after a lung procedure.  After some major complaining to the parent company all fees were dropped and the hospital went through a complete overhaul of sanitizing and some heads rolled.  THreaten lawsuit and all charges will be dropped.  I had the same thing happen to me in 1996. I went to the accounting office and asked for my file to be copied.  They said it would be 10 cents per page.  No problem, it's my file.  When you do that ,accounting is on the phone with the administrator and getting your file copied is hospital code for "lawsuit."  You shouldn't receive another bill.  Give it a shot.
 
Bob

Postop
Regular Member


Date Joined Feb 2010
Total Posts : 385
   Posted 10/19/2010 11:29 PM (GMT -6)   
Staph infections come from the skin of a person, that's where it grows. It's not a virus, its a bacteria. You don't get it from the floor. If its an antibiotic resistant form, like MRSA, it raises concern that it might be transmitted from a health provider's hands; that's why hospitals encourage their employees to use hand sanitizers and wash their hands. If it's not drug resistant, a likely source is the person's own skin.

See Steve n Dallas's message above.

An38
Veteran Member


Date Joined Mar 2010
Total Posts : 1152
   Posted 10/20/2010 7:08 AM (GMT -6)   
Fairwind,

Sorry to hear that you have had such a horrendous time post surgery. Good to hear that they found the right antibiotic (and that there was one that worked).

I have a nasty staph bug living on my own skin, I know because my skin infects very easily and a swabs they took of the infected areas, most recently under my armpit showed a rare and potentially dangerous staph bug which often behaves like Staphalaccocus Aurious (golden staph) but luckily is not antibiotic resistant. I had to be especially careful when Paul had his surgery, to practise very good hand hygiene and I washed myself with antibiotic wash everyday, washed linen frequently with very hot water to avoid giving him this bug in the post-surgery phase. Probably this is another thing to put on the pre-op checklist. So another possible source are people who rub up against you at home.

I hope that your healing is steady and good from now on.

An

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 10/20/2010 7:58 AM (GMT -6)   
Sounds like you've had a grim time, not what you needed on top of the 0.9

Doesn't the lymph system collect stuff from all over the body, and it's lymph that oozes out of cuts blisters etc, so you have to keep nicks and scratches clean to stop stuff transferring from the skin to the inside. The classic reason for the alcohol swab before an injection

There seem to be too many "bugs" around. Friend of my wife's is in the middle of chemo and she is about to start 3rd week in hospital after getting bacteriaed. Messed up her whole treatment and recovery.
my father-in-law just home after getting bugged after triple bypass
my sister is off work with recurrence of bug that has been lingering on and off since hysterectomy.
friend's dad just passed away after bug hit

I am a strep carrier as opposed to a staff one, so I'm glad my dad taught me to wash my hands like a surgeon when I was little. We all used to use cold-tar soap even in the bath or shower.
He made a special point of keeping clean if working in the garden. Trick is to coat hands, especially finger nails in soap before starting and not wash that off. Plants don't mind soap.
Even now I still handwash with disinfectant soap and I have a dettol spray by the kitchen sink for cleaning surfaces taps etc.
I sometimes carry a small pot of alcohol-based hand cleaner with me.
On arriving at hospital the first thing I do is wash my hands. I also open doors with a paper towel or my elbow rather than touch handles.
I often wash my hands before going to the bathroom as well as after.
I'm happier kissing people than shaking hands.

Any way glad things are better on that front and you can now concentrate on the 0.9

Alf

NEIrish
Regular Member


Date Joined Aug 2010
Total Posts : 245
   Posted 10/20/2010 5:48 PM (GMT -6)   
Curious about something I've not seen mentioned here before. How many here were asked to shower the 2 nights before their surgeries with hibaclens (unsure of the sp.)? It was part of my husband's pre-surgical protocol to help prevent carrying in anything nasty on his skin.
Husband 60yrs., no symptms: PSA 10/04 2.73, 12/06 3.64, 5/09 3.9, 10/09 4.6, 1/10 5.0w/ free PSA 24
6 core biop 4/1/10 path rept: rt mid: adnocarc. G=3+3, 5% of core; R apx v. susp. minute ca, R base bnign w/ mod. atrophy, L side atrphy only; 2nd opnion JH confrmd
MRI - 15mm nodule
BiLatRP surg 7/6/10, path: T2c, nodes, sem.ves, extra caps. neg., adenoc both sides G=3+3 cntinent, Viagr-8/27 ED

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 10/20/2010 6:07 PM (GMT -6)   
I did not have any specific pre-surgery bathing instructions.
 
Fairwind - sounds like you have been through the mill. Hope things are looking up somewhere in the process.
I have had staph infections, but never have had any explanation of how long they take to develop.

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3892
   Posted 10/20/2010 6:12 PM (GMT -6)   
Yeah, the 0.9 My PSA at the time of my surgery is somewhat of an unknown..It could have been as high as 14...The PSA is broken down by the liver, normally has a 3 day half life..But my surgeon says that since my liver was somewhat compromised by my infection, that last PSA test might not be too accurate and he will do another next week..But I doubt it will drop dramatically..

What this means as far as my future treatment, who knows?? The plan WAS to begin HT anytime I was ready, wait six or 8 weeks then start adjunct radiation..I don't know if the 0.9 will change that, but I will find out shortly..I must admit I have reservations about the radiation at this point..
Age 68.
PSA at age 55: 3.5, DRE normal. Advice, "Keep an eye on it".
age 58: 4.5
age 61: 5.2
age 64: 7.5, DRE "Abnormal"
age 65: 8.5, " normal", biopsy, 12 core, negative...
age 66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
age 67 4.5 DRE "normal"
age 68 7.0 third biopsy positive, 4 out of 12, G-6,7, 9
RRP performed Sept 3 2010, pos margin, one pos vesicle nodes neg

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 10/20/2010 6:23 PM (GMT -6)   
Fairwind,
 
You've probably seen my radiation thread (see sig.). I am 3 months out now, and I feel like the immediate side-effects have bottomed out. Not getting any better yet, but pretty much stopped getting worse. The fatigue and bowel issues have remained the most noteable problems. Incontinence got a little worse, and has stayed there.
 
Based on my very ugly post-DaVinci path report, a study from Walsh, et. al. back in Feb - March on improved results of adjunct RT vs. salvage (I don't have the link at hand), and strong insistance by my uro, I went with IGRT without waiting for a PSA rise. If it was the right choice, I'll likely never know. I'm just hoping I didn't put an auto-open timer on Pandora's Box in the process.
My IGRT journey -
www.healingwell.com/community/default.aspx?f=35&m=1756808

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 10/20/2010 7:06 PM (GMT -6)   

i42:

Can you email me?

I'd like to discuss your radiation experience.

It seems like the SE are continuing.

What was your level of continence before you started the SRT.

The radiation doctor seemed to indicate I should have no problems working (teaching 4 hours a day) while doing the treatments. I'm not so sure.

 

Mel

 

 

 


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 10/20/2010 11:07 PM (GMT -6)   
Mel,
 
I don't have an appropriate email address for this, so have to create one.
 
The side effects got worse for about two months after radiation ended, then about a month ago seemed to level off. They have gotten neither better nor worse in the last few weeks.
 
In the last few weeks before RT started, I was at a constant one pad per day just for stress leakage (except for the first days with all the RT water torture - had a couple of floods getting the timing down). Often that would be a 24-hour day with a virtually dry pad at the end. about half way through RT I saw a sudden increase in unexpected leaks, and am still at 1-3 pads per day. This is not dribbles, but soak-a-pad stuff with no warning at all - suddenly drenched. Some days it happens, most not, but its a 40/60 split.
 
I've cut completely out all citrus, coffee, and carbonation (cokes, beer, sparkling wine, etc.), all of which make it significantly worse.
 
I did not see any issues working (I put in 8-10 hours per day on the phone/computer on a flexible schedule, RT sessions in the middle of the day) until late - the last few weeks. Fatigue started setting in, and I still have it. Not meaning tired, but literally slamming into a wall at some point in the afternoon, and just having to stop on the spot. I can counter it with a pre-emptive short nap in the early afternoon.
If I don't take a break, by 8pm I'm ready for bed. Obviously I got a break in late this afternoon.
 
I really didn't have significant issues driving to my sessions (45 minutes each way - city traffic), but did see that I was tired the last couple of weeks. I had friends (other types of radiation / survivors) who expected me to need help, but none of the other PCa folks I saw day-to-day at the clinic seemed to have issues either.
 
The Rad. Onc. told me that none of the issues were caused by the radiation, but perhaps stress. My GP told me all of the issues were likely caused by radiation, and that he sees them often in patients after they finish RT of various types. Nice that they agree.
My IGRT journey -
www.healingwell.com/community/default.aspx?f=35&m=1756808

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 10/21/2010 4:10 AM (GMT -6)   
While the source of your infection may not be known, I nonetheless thought that your nasty experience was enough of a warning for it to be worthwhile adding something to my sticky. It thus now contains a couple of extra general comments about trying to keep yourself extra clean etc. before and after surgery.

Alf

Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1406
   Posted 10/21/2010 5:36 AM (GMT -6)   

Fairwind, you have had quite a traumatic experience; so sorry to hear this news.  May you be on the road to recovery and find the right treatment for the higher than expected PSA.

Best regards,

Aimzee


Husband Ron, age 63
4/1/10 PSA 5.5 Prostate size = 50 cc.
Biopsy on 4/20/10 12 samples... Adenocarcinoma: 3 positive on right side, one core left base (5% ` 0.5 mm) - two cores of left lateral mid
(20% ~ 2mm, 10%, 10% ~ 1mm) - No Perineural Invasion
Gleason 6 (3+3)
Bone Scan/CT Negative (2 lesions on liver)
8/18/10 - Da Vinci Prostatectomy
Post Op: Gleason 7 (3+4)
Negative surgical margins and lymph nodes
Both nerve bundles spared
Catheter - 13 days
ED / Day time incontinence.
Post Surgery PSA 8 weeks - .01

Sancarlos
Regular Member


Date Joined Feb 2010
Total Posts : 242
   Posted 10/23/2010 7:18 AM (GMT -6)   
Fairwind,

I am sorry to hear of your latest PSA of 0.9 and of the infection. As a Gleason 9 like you it is disheartening to hear of setbacks of this type, even though hopefully your infection may have biased the test.

However, if I were in your shoes before beginning any new treatment I would try to have a color doppler ultrasound in an attempt to determine if there may be some PCa in the area of the prostate, pelvic lymph nodes, etc. This could help you determine if the best course of action would be radiation or to begin immediately HT.

Anyway, I wish you the best on this journey we share.

Sancarlos
Age 66, PC diagnosed 7/2009 at age 65
Stage: T2c, Gleason: 9 (4 + 5), 6 of 6 cores positive
Bone, CAT and MIR scans negative

Treatment: brachytherapy (103 palladium), 100 gy, 11/2010 + hormone therapy (Lupron + Casodex) + IMRT on Novalis, 45 gy, 3/2010.

PSA: 7/2009, At time of diagnosis -- 11.9
10/2009 -- 5.0
12/2009 -- 0.56
5/2010 -- 0.15
8/9/2010 -- 0.06

Alegar
Regular Member


Date Joined Oct 2010
Total Posts : 91
   Posted 10/23/2010 10:14 AM (GMT -6)   
Fairwind:

Good to hear that you're feeling better. Godspeed!

Alex
54 year old 188 Lb. 6 ft. Male
Diagnosed July 1, '10 with PC,
PSA 3.88 Gleason 3+3=6, 2 out of 12 samples positive
DaVinci Oct 1 '10
Cath/JP Drain out Oct.16, '10

AIRBORNE ALL THE WAY!

mr bill
Veteran Member


Date Joined Sep 2010
Total Posts : 709
   Posted 10/23/2010 2:23 PM (GMT -6)   
Neirish,
I was not requested to use special bathing soap prior to RRP. However, my wife, who had some heavy duty back surgery a year ago, was requested to bath with a special wash cloth (cloths) and then wipe her skin with another wash cloth that contained a solution that looked like iodine. Not sure if that was what you used. I believe that this is one way that hospitals are using to lower the rate of infection caused by hospitalization. 

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3892
   Posted 10/24/2010 4:37 PM (GMT -6)   
There is no question my staph infection was a result of the surgery..A "one in a thousand" chance they said...The bug slowly incubated in the area of the surgery, settled into a lymph node, plugged it up, formed an abscess which filled with fluid which is still draining today...

These hospital acquired staph infections are a real and growing problem..I was "lucky" that mine was not antibiotic resistant, but still, I'll be taking IV antibiotics for at least two more weeks....
Age 68.
PSA at age 55: 3.5, DRE normal. Advice, "Keep an eye on it".
age 58: 4.5
age 61: 5.2
age 64: 7.5, DRE "Abnormal"
age 65: 8.5, " normal", biopsy, 12 core, negative...
age 66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
age 67 4.5 DRE "normal"
age 68 7.0 third biopsy positive, 4 out of 12, G-6,7, 9
RRP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9
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