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Arch
Regular Member


Date Joined Jun 2010
Total Posts : 192
   Posted 10/19/2010 4:06 PM (GMT -6)   
good news, just received my 5 month PSA and it was 0.03, and..........I did the deed without Viagara last week, just barely, but it did do the job. I've ditched the pump after a couple of months, I really don't know if it helped other than allowing me to enjoy that part of the relationship prior to recovery. I'm so grateful for my situation...now I've got to get the leakage under control...I'm setting Christmas as a tartget, that would be 7 months. Think dry, think dry, think dry.
 
 
PSA 5.5 Jan 2010
Biopsy, both lobes involved
Gleason 3/4=7
open RP May 18, 2010
Pathology: 15% involved, lymph nodes and v. d. clear, margins clear
June 3-10 10-12 pads/day
2 months 8 pads/day
Aug 1, 2010 5-6 pads/day
Aug 20, 2010 3-5 pads per day
Aug 16, 3 month PSA: undetectable
ED 95% with viagara
Sept 22, 2 pads a day
Oct 12, PSA 0.03
ED, 100% with viagara, just doeable without.

Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 10/19/2010 4:49 PM (GMT -6)   
Congratulations Arch, on the psa results and loosing your virginity on the other side. lol
...........Kev
Age 52yrs [Gold Coast Qld, Australia]
6 out of 8 cores positive 3 X 60% / 3 X 10%
PSA 4 Gleason Score 3+4=7 Stage T1c
RP 24/12/08
Upgrade Gleason Score 4+3=7 Gleason Differential 60%/40%
Stage T2c Three small foci total volume <10%
Neg Margins and Nodes
Nil - EPE
Dry less than 1 week. ED- okay with Meds.
PSA at 18mths no change remains 0.03
"Everday in Everyway, I get better"

LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 10/19/2010 4:51 PM (GMT -6)   
Excellent news on the PSA Arch. Hopefully the incontinence will improve in the coming months. It took me about 10 months to get to those occassional dribbles and still improving on that 2 years out.
You are beating back cancer, so hold your head up with dignity

Les

Signature details in Sticky Post above - page 2

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 10/19/2010 6:42 PM (GMT -6)   
Great news Arch. Congratulations
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005

dacama
New Member


Date Joined Oct 2010
Total Posts : 11
   Posted 10/19/2010 6:44 PM (GMT -6)   
Good news Arch. I will be getting my first PSA post surgery in a few weeks. I have very little incontinence but a big ED problem. I wonder if I would trade one for the other.
54
Late 07 PSA UP/Early 08 First Biopsy - Neg
Late 08 PSA Higher/Early 09 Second Biopsy - Neg
Early 10 PSA UP/Early 10 Third Biopsy - Positive
26 Cores...4 positive
8/23/10 RP Gleason 6+ 5% of Prostate Cancerous Wide Margins
Nodes negative/Vesicles negative
Tumor contained in capsule
NO post surgery PSA test as of yet.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 10/19/2010 7:43 PM (GMT -6)   
Arch - congratulations - here's to a lifetime of zero's !!
BRONSON

Arch
Regular Member


Date Joined Jun 2010
Total Posts : 192
   Posted 10/19/2010 7:49 PM (GMT -6)   
Dacama,
 
Thats  a hard call, while the ED is frustrating the incontinence can mean a real social inconvenience, I'd truly have a hard  time choosing one over the other.
I think I'd probably choose continence as the more important since you live with it the rest of your life while sex tends to take on less of a priority as we age. (not talking from experince, I'm only 56)
 
If its only your first post surgery PSA you have lots of potential recovery to go. I consider myself ahead of average in ED and probably average incontenence, its a long process and took me many months to come to grips with the reality of it, I remain optimistic and patient.
 
Good luck on that PSA.
 
 
PSA 5.5 Jan 2010
Biopsy, both lobes involved
Gleason 3/4=7
open RP May 18, 2010
Pathology: 15% involved, lymph nodes and v. d. clear, margins clear
June 3-10 10-12 pads/day
2 months 8 pads/day
Aug 1, 2010 5-6 pads/day
Aug 20, 2010 3-5 pads per day
Aug 16, 3 month PSA: undetectable
ED 95% with viagara
Sept 22, 2 pads a day
Oct 12, PSA 0.03
ED, 100% with viagara, just doeable without.

kbota
Regular Member


Date Joined Aug 2010
Total Posts : 487
   Posted 10/19/2010 8:29 PM (GMT -6)   
Speaking to my own Quality of Life, the ED vs Incontinence is not even an issue. Being continent is far more important to me than the ED. and trust me, the ED IS important.

Ask any of these guys who are still using 8 to 10 pads a day several years post surgery. I would prefer to not have an artificial sphincter if at all possible, although I would consider a surgical fix for the ED such as an implant.

For the sphincter, you have to use one of those many times each day (and night) .....that's lots of scrotum squeezing.
vs maybe every other day for the implant. (I'll just let my wife have the honors...lol)

At least that's my two pennies.

k
Age 57 at Dx
5/09 PSA 2.26
6/2010 PSA 3.07 FPSA 18% DRE +
6/2010 Bipsy, 7 of 12+, >60%, 4+5=9
7/21/2010 - RRP
Nodes neg,Ves neg
tumor in capsule, still 4+5=9
pni extensive
8/5, 2010 cath out
9/3, 2010 PSA - 0.04 whew!
9/3/2010, I'm 99% continent - only stress incontinence
10/14/10, PSA still 0.04, and lupron #1, 99.9% continent
Total ED, 3 caverject failed, pump sux

Arch
Regular Member


Date Joined Jun 2010
Total Posts : 192
   Posted 10/19/2010 9:26 PM (GMT -6)   
kbota,
 
Good point, if I were still 8 pads a day I'd also choose continence, once down to 1-2 pads a day my reference point altered. 8 pads a day was a very trying time in my recovery and I questioned my progress,  I wouldn't wish it on anyone.
age 56
PSA 5.5
Biopsy, both lobes involved
Gleason 3/4=7
open RP May 18, 2010
Pathology: 15% involved, lymph nodes and v. d. clear, margins clear
June 3-10 10-12 pads/day
2 months 8 pads/day
Aug 1, 2010 5-6 pads/day
Aug 20, 2010 3-5 pads per day
Aug 16, 3 month PSA: undetectable
ED 95% with viagara
Sept 22, 2 pads a day
Oct 12, PSA 0.03
ED, 100% with viagara, just doeable without

kbota
Regular Member


Date Joined Aug 2010
Total Posts : 487
   Posted 10/19/2010 9:55 PM (GMT -6)   
I feel very blessed with the incontinence issue. On Day 1 after the catheter was removed, I used no more than 3 pads. Day 2&3 no more than 2 pads, days 4-6, I used 1 pad a day, but at the end of each day, the pads were dry. For the first week, I used diapers to sleep......just in case,...... but they were always dry the next morning. As of today, three months post surgery, I don't use anything. Having said that, there are those "moments" when I cough, clear my throat, or lift something heavy, that I may lose a few drops, but nothing to fret over. I still have 80% of a box of diapers left, and 95% of a case of pads. That's the incontinence journey.

The ED journey is tougher. I lost both nerves in surgery. Pump works, but takes some planning. Also, I must finish fairly quickly or the erection will disappear before I'm done. Caverject was a complete failure even though I did not have ED issues prior to surgery. We will be making first attempt with trimix tomorrow or Thursday, but it's in the fridge waiting on us whenever we're ready...lol

If the trimix doesn't give a decent response, then I'll be making an implant appointment asap.

k
Age 57 at Dx
5/09 PSA 2.26
6/2010 PSA 3.07 FPSA 18% DRE +
6/2010 Bipsy, 7 of 12+, >60%, 4+5=9
7/21/2010 - RRP
Nodes neg,Ves neg
tumor in capsule, still 4+5=9
pni extensive
8/5, 2010 cath out
9/3, 2010 PSA - 0.04 whew!
9/3/2010, I'm 99% continent - only stress incontinence
10/14/10, PSA still 0.04, and lupron #1, 99.9% continent
Total ED, 3 caverject failed, pump sux

Arch
Regular Member


Date Joined Jun 2010
Total Posts : 192
   Posted 10/20/2010 7:13 AM (GMT -6)   
Kbota,
 
You're fortunate with the continence result, not so much with the ED....I'll take those leftover pads..lol
For me the pump did serve its purpose for a couple of months but it was an inconvenience and the ecitement of a false woody wore off after a while.
I still have much room for improvemet in the ED dept but I think its only a matter of time and healing.
 
I hope the Trimix gives you the results you're hoping for, good luck.
 
r
 
 
age 56
PSA 5.5
Biopsy, both lobes involved
Gleason 3/4=7
open RP May 18, 2010
Pathology: 15% involved, lymph nodes and v. d. clear, margins clear
June 3-10 10-12 pads/day
2 months 8 pads/day
Aug 1, 2010 5-6 pads/day
Aug 20, 2010 3-5 pads per day
Aug 16, 3 month PSA: undetectable
ED 95% with viagara
Sept 22, 2 pads a day
Oct 12, PSA 0.03
ED, 100% with viagara, just doeable without

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 10/20/2010 7:39 AM (GMT -6)   
Congratulations on the PSA result

As for the debate about whether ED or continence matters more...

All I noticed was that when you have an erection, but there is pee pouring out of it all over you, your bed and your partner you kind of think that the continence matters a bit more. Fortunately that didn't happen more than a couple of times, but it threatened to happen almost every time for months, and it still needs working on to prevent leaks and dribbles even now. The thing is that one of the basics of sex is that it doesn't really work very well if most of your mind is occupied with the idea that something is going to go wrong.

As for pumps and "false" wood, well you may never know, but I'm pretty sure that getting blood into your equipment regularly must help keep things in better health.

Alf

NEIrish
Regular Member


Date Joined Aug 2010
Total Posts : 245
   Posted 10/20/2010 5:42 PM (GMT -6)   
Before surgery, the list was 1.) I don't want to die, so get rid of the cancer, 2.) Continence. No diapers, for the love of G.., 3. Little NEIrish must live too. Now, 3 and 1/2 months post-surg, only #3 is on the table and the priorities haven't changed. Only one thing now to worry about, and it doesn't take much thought to bring back those earlier frightening days and feel pretty lucky. There are many here on this site dealing with so much worse. Congrats on your ZERO, and wishing you a very dry Christmas.:-)
Husband 60yrs., no symptms: PSA 10/04 2.73, 12/06 3.64, 5/09 3.9, 10/09 4.6, 1/10 5.0w/ free PSA 24
6 core biop 4/1/10 path rept: rt mid: adnocarc. G=3+3, 5% of core; R apx v. susp. minute ca, R base bnign w/ mod. atrophy, L side atrphy only; 2nd opnion JH confrmd
MRI - 15mm nodule
BiLatRP surg 7/6/10, path: T2c, nodes, sem.ves, extra caps. neg., adenoc both sides G=3+3 cntinent, Viagr-8/27 ED

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 10/20/2010 7:10 PM (GMT -6)   
Things are going your way Arch. A lot to be grateful for. Thanks for posting.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael

Wigs
Regular Member


Date Joined Mar 2009
Total Posts : 89
   Posted 10/21/2010 3:49 PM (GMT -6)   
I know I'm a few days late finding this thread, but I wanted to weigh in. I was one of those guys that was incontinent, using 4 diapers & 8 pads per 24 hours; and did not have nerve sparing surgery. I chose the AUS and the IPP procedures. I, for one, don't mind the scrotum squeezing several times a day as opposed to changing diapers and pads. And I definitely don't mind the scrotum squeezing for the other as opposed to shots.

Wigs
Diagnosed @ age 46 - September 1997
PSA 5 / Gleason 3+3
Seed Implant - January 1998 @ Trident Hospital, SC
PSA 2.4 - July 2007
PSA 2.7 - July 2008
PSA 3.0 - November 2008
Diagnosed @ age 57 - December 2007
Gleason 4+3
Salvage Prostatectomy & Colostomy - March 2008 @ MSKCC, NY
Suprapubic cathether installed - July 2008 @ Cleveland Clinic, OH
Urethral-Rectal Fistula Repair - August 2008 @   Cleveland Clinic, OH
PSA < .03 - Aug 2008
Penile catheter removed October 2008
Suprapubic catheter removed December 2008
Colostomy Reversal - January 2009 @ Cleveland Clinic
Urethral stricture removed - January 2009 @ Cleveland Clinic
(Total incontinence - 4 diapers & 6 - 8 pads per 24 hour period)
PSA < .03 - Jan 2009
AUS implant - May 2009 @ Cleveland Clinic
PSA < .03 - May 2009
AUS activated - July 2009
(Wearing a light pad daily.)
PSA < .03 - July 2009
Penile Implant - December 2009 @ Cleveland Clinic
PSA < .03 - December 2009
Penile Implant activated - February 2010
PSA < .01 - April 2010 
 
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