Catheter out today and I'm continent?

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Ger42
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Date Joined Apr 2010
Total Posts : 189
   Posted 10/21/2010 6:08 PM (GMT -6)   
I had my surgery 10/12 had some stomach issues but they seem to have settled down. Had the catheter out today at 2:30. Had some leaking on the way home but since then I get the urge to urinate and I expel what's in me and flow stops. Seems that I have to go about every hour. My question is should I try to hold it longer? Urologist said I'd be in diapers for at least 2 weeks. Anyone else continent right after the cath is out?

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 10/21/2010 6:12 PM (GMT -6)   
Wow, that's great. I wouldn't worry about holding it for the time being. As you heal you can get some guidance from your uro, in the meantime relax and enjoy.
Ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent after 3 mo. PT
ED, pre-op severe, post op total , considering IPP
10/10 Dr Boone, Baylor recomended AUS
post op psa's 0.04,<0.1,<0.1

Trevor T.
New Member


Date Joined Aug 2010
Total Posts : 9
   Posted 10/21/2010 6:44 PM (GMT -6)   
I had my catheter removed last Friday after having an RRP on the 6th. I've been totally continent ever since. I do have the urge to urinate more often, but even that has diminished in the past day. I feel extremely lucky, although I believe that my age - 50 -and my excellent physical condition from years of running and mountain biking have had a lot to do with this. I'm returning the diapers this weekend. ED is my next challenge.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 10/21/2010 6:50 PM (GMT -6)   
It's you guys who don't leak who give the urologists all these cheerful stories.
 
Oh, well, somebody had to be responsible.
 
Kidding aside, it is great to hear that you guys are doing so well.
 
Just keep doing a reasonable number of Kegels and keep walking. Don't overdo the Kegels, as you can accidentally make things worse.

Jazzman1
Veteran Member


Date Joined Sep 2010
Total Posts : 1163
   Posted 10/21/2010 7:04 PM (GMT -6)   
Wow, Ger & Trevor won the continence lottery!

I'm 11 days from surgery and 20 days from catheter removal. Maybe if I rub their heads the luck will rub off. I'm feeling lucky!!!
Age 55

PSA:
8/09 2.69
7/10 4.00
8/10 4.11

Biopsy 8/10
Three of 14 cores positive: 10%, 60% & 80%
Stage T1C
Gleason 6

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 10/21/2010 7:18 PM (GMT -6)   
I was dry right after cath removed also. When I went back to the Dr. he asked about leaking I said look no pad in here. He said, "Your a lucky man" How if I could just get the wood back all would be fine.

cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
Only issue at this time is ED

creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 10/21/2010 8:17 PM (GMT -6)   
Ger,
My husband was also totally continent from the time the catheter was removed. It happens sometimes. Good luck with your healing. The urge to go slightly more often however,  has continued to this day,  but it presents no problems as long as we look for close toilets if confined to a space like theatre, or shopping centre etc. My husband tries to empty his bladder before and after driving a distance,  and does not hold on for lengthy periods if he can avoid it. He is lucky to have had no incontinence since surgery. Good luck and good health to you.
Creed_three (Lana) - with husband "CJ" now aged 52.5 yrs (49 years at diagnosis).
PSA (2002) 2.1. (2006) 3.5.  1 x 5% core of 12 positive at biopsy. Open Radical Prostatectomy with nerve sparing April 2007 Sydney, Australia. Gleeson 3 + 4 = 7. 2 x small multifocal lesions. Contained. Undetectable <.1 PSA since: June 2007-0.01, Oct 2007-0.02, April 2008-0.02: Oct 2008-0.03, Nov, 2008-0.02, April 2009-0.03, April 2010 - 0.03. 

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 10/21/2010 8:39 PM (GMT -6)   
You guys are really pissing me off! You're on my list, Pal... you're on my list.

I guess someone has to be on that end of the continence curve to balance out guys like me. Sigh.

Congrats on the quick recovery!

Jeff (the leaking one)

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3892
   Posted 10/21/2010 9:46 PM (GMT -6)   
I was dry (more or less) from day one..And YES try to "hold it" as long as you comfortably can to stretch your bladder back out. That organ gets lazy and weak (atrophy) after having a catheter for 10 days. Also, it may be irritated from the catheter so expect some strange feelings until things get sorted out.

You can't be getting up every hour to pee so work on increasing capacity and suppressing the urge to go. It will come back fairly quickly if you work on it..Now is not the time to back off the Kegel exercises either..That sphincter muscle needs all the help it can get..

Good Luck!
Age 68.
PSA at age 55: 3.5, DRE normal. Advice, "Keep an eye on it".
age 58: 4.5
age 61: 5.2
age 64: 7.5, DRE "Abnormal"
age 65: 8.5, " normal", biopsy, 12 core, negative...
age 66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
age 67 4.5 DRE "normal"
age 68 7.0 third biopsy positive, 4 out of 12, G-6,7, 9
RRP performed Sept 3 2010, pos margin, one pos vesicle nodes neg

IDguy55
Regular Member


Date Joined Mar 2010
Total Posts : 27
   Posted 10/21/2010 9:52 PM (GMT -6)   
My father had his RRP at age 70, never had to use a pad and is still continent to this day at age 86.
Current Age 55, DX October 2005 PSA 50
Biopsy 11/15/2005 Gleason 4 + 3, High Grade PIN, Perineural Invasion, T2 NX MX Stage 2
Bone Scan Clear, CT Scan Negative
open RRP on 12/19/2005 Gleason changed to 3 + 4, Tumor estimated at 25% of prostate volume, Negative Margins,
Extensive Perineural Invasion, Lymph Nodes Clear, Catheter removed 1/3/2006 (holidays) Dry at night. moderate incontinence during the day.
1/25/2006 PSA .046, Moderate Incontinence
2/28/2006 PSA .027
6/22/2006 PSA .043 Just a little stress incontinence
9/08/2006 PSA .065
IMRT Start 10/12/2006 45 treatments 80 gy
1/4/2007 Almost Total Urinary Blockage, Cystoscopy performed, The next few days I had the Urinary tract of a teenager.
1/8/2007 Clogged up again, Catheter put back in. Removed myself (highly recommended) 7 days later No problems since with only occasional very mild stess incontinence since.
1/11/2007 PSA .03
7/26/2007 PSA .011
1/24/2008 PSA .027
5/22/2008 PSA .104
9/25/2008 PSA .383
2/17/2009 PSA 1.06
5/12/2009 PSA 1.5
8/25/2009 PSA 3.8 LHRH agonist (3 month Zoladex) started
11/24/2009 PSA .021
2/23/2010 PSA 0.99 another 3 month Zoladex
5/25/2010 PSA .016, T level 17

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 10/21/2010 10:55 PM (GMT -6)   
i AM amazed at all these folks who were continent 100% from the get-go.
 
That was not my impression from reading HW posts. It seemed like Sonny was the only one!
 
Anyway, I also had good luck in that area.
 
Mel
 
 
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. 9/21/10--0.06

Newporter
Regular Member


Date Joined Sep 2010
Total Posts : 225
   Posted 10/22/2010 12:41 AM (GMT -6)   
I was lucky, full continent after the nurse removed the catheter. Since then I met two other PC patients who used the same surgeon and both told me they had very minimal side effects too.

65 Dx June-2010 PSA: 10.7, biopsy: Adenocarcinoma, 1 core Gleason 6, 3 cores atypia; Clinical stage T2; CT, Bone Scan, MRI all negative

8-23-10 Robotic RP; Pathology: Negative margins; Lymph nodes, Seminal Vesicle clear; PNI present; multiple Adenocarcinoma sites Gleason 3+3 with tertiary Gleason grade 4. Stage: pT2,N0,Mx,R0

Catheter out 8-30-10 full continent partial potency. Sept PSA: <.1

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 10/22/2010 1:54 AM (GMT -6)   
Glad to know that some people at HW have good news.

Well done for being where you are.

I was okay at night from the day the catheter came out, and I only really leaked and dribbled in my pads, but I did have to wear them. You can't simply lie still during the day time though to achieve continence!
It was also a case of managing to stay dry by going to the WC frequently.

I was doing quite well till RT set me back a bit (I was up several times last night)

Interesting what Newporter says about that surgeon. I'm guessing good results may have a lot to do with how the surgeon snips and stitches around the bladder neck where the relevant muscles are.

Alf
Born Jun ‘60
Apr 09 PSA 8.6
DRE neg
Biop 2 of 12 pos
Gleason 3+3
29 Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
17 Nov 09 PSA 0.1
17 Mar 10 PSA 0.4 sent to RT
13 Apr 10 CT
28 Apr 10 start RT 66Gy
11 Jun 10 end RT
Tired
BMs weird
14 Sep 10 PSA <0.1
Erections OK

Postop
Regular Member


Date Joined Feb 2010
Total Posts : 385
   Posted 10/22/2010 2:44 AM (GMT -6)   
My hunch has been the same as Alf's. I never experienced the incontinence that others talk about. I took a pad to the hospital when I had the catheter out, wore it home, it was dry, never used another. I didn't know why. Then, I saw that logoslidat, who used to post here, who had the same surgeon, also had the same experience. My surgeon never acted like this was at all remarkable. I also met another of his patients, who only used pads for about a month. Another patient who had a differ surgeon at the same hospital has had severe incontinence for several months. It makes sense that surgical technique could be a factor, although certainly not the only one.

TinFoilHat
Regular Member


Date Joined Sep 2010
Total Posts : 51
   Posted 10/22/2010 7:02 AM (GMT -6)   
I guess I'm one of the luck ones too. open RP 9/23, catheter removed 10/1. I wore pads for a few days, and an adult diaper for a few nights, but I haven't had as much as drop 1. *shrugging shoulders* I do seem to need to pee more frequently, but other than that I've been without issue. Like Trevor above -- I'm in very good physical condition (weight lifting, cardio most days of the week). Dunno if that has anything to do with it or not.

On a side note (but perhaps equally important), I had night wood 4 days post-op (with the catheter still in place), and have managed the deed several times in the past two weeks w/o any drugs/pumps etc. I feel lucky and blessed.

If I can join the zero club in a few weeks, I'll gladly buy the first round or two. smilewinkgrin
Jeff

Age: 49 (09/61)

PSAs: 12/08 - 1.8, 12/09 - 2.5, 6/10 - 3.9, 8/10 - 5.7

Biopsy 8/10: 14 samples, 5 positive, Gleason: 3 + 3

open RP 9/23/2010

Post Op Path: Organ contained, Gleason 3+3, nerve bundles spared, negative margin.

Post Edited (TinFoilHat) : 10/22/2010 6:06:39 AM (GMT-6)


Ger42
Regular Member


Date Joined Apr 2010
Total Posts : 189
   Posted 10/22/2010 7:17 AM (GMT -6)   
I got up this morning and diaper was dry. I had to get up every 2 hours to urinate. I wonder if doing Kegel exercises from the beginning of July helped. Just about every time I walked the dogs I did Kegel's.
Age 68 weight 185 height 6'
Samples taken 4/19/2010 sent to Bostwick
3 out of 12 samples cancer
1) gleason score 3+3 involving 65%
2) gleason score 3+3 involving 65%
3) gleason score 3+3 involving 10%
PSA 3.5 Mar 19
PSA 2.5 Apr 4
Bone scan clean CT scan clean
Da Vinci 8/24/2010, rescheduled to 8/26, now Oct 12th
God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.

ejn
Regular Member


Date Joined Jun 2010
Total Posts : 87
   Posted 10/22/2010 8:15 AM (GMT -6)   
Ger,  Good for you.  I was also dry from the minute the cath came out but I did wear a pad to work for a bit just incase.  I try to hold it as long as possible to get my bladder back in shape.  I get up one time during the night at the exact same time so I'm not sure if wake because I need to go or if it just a habit that I have.
 
Ed
Age 53
Pre OP PSA: 1/2008=5.9, 2/2010=6.0 (free=9%)
Biopsy, 4/10/2010 This was my 2nd Biopsy. The Uro put me out and took 36 samples. 3 samples positive 1%, 2%, 2% no evidence of perineural invasion. T1c

Dx April 2010
Gleason: 3+3=6
CT Scan: Neg
DaVinci: 8/11/10, Dr David Bryan, SSM DePaul-St Louis
Post Op Path:
Gleason 3+3=6
Tumor involves left lobe only
Tumor constitutes less than 5% of gland volume
No vascular or neural invasion detected
No capsular invasion detected
Distal urethral margin of resection free of tumor
Proximinal urethral margin of resection free of tumor
Radial margin of resection free of tumor
Seminal vesicles uninvolved by carcinoma
TM stage T2a (unilateral less than 1/2 of one side), NX, MX
ALL Margins uninvolved
Extra Prosatic extension: Absent
PSA: 9/10 <.1,

An38
Veteran Member


Date Joined Mar 2010
Total Posts : 1152
   Posted 10/22/2010 8:19 AM (GMT -6)   
Ger,

My husband was and is the same as you. Not one drop from the time the catheter came out. He put in a pad in his pants for about a week but soon realised he didn't need it. He, like you, was very lucky in this.

Regards,
An
Husband's age: 52. Sydney Australia.
Family history: Mat. grandfather died of PC at 72. Mat. uncle died of PC at 60. He has hereditary PC.
PSA: Aug07 - 2.5|Feb08 - 1.7|Oct09 - 3.67 (free PSA 27%)|Feb10 - 4.03 (free PSA 31%) |Jun10 - 2.69. DRE normal.
Biopsy 28Apr10: negative for a diagnosis of PC however 3 focal ASAPs “atypical, suspicious but not diagnostic” for PC. Review of biopsy by experienced pathologist, 1/12 core: 10% 3+3 (left transitional), 1/12 core: ASAP (left apex)
Nerve sparing RP, 20Aug10 with Dr Stricker. Post-op path: 3+4 (ISUP 2005). Neg margins, seminal vesicles, extraprostatic extension. Multifocal, with involvement in the peripheral, apex, fibro-muscular and transitional zones.
Post RP PSA, Sep10 – 0.02

NY-Sooner
Regular Member


Date Joined Sep 2009
Total Posts : 464
   Posted 10/22/2010 8:29 AM (GMT -6)   
I was continent right after my catheter was out and I thought, Wow!!! I beat the odds and I am not going to have top wear pads.  Well,,,three days later, I started to leak to the tune of 5-7 pads a day for about 3 months.  I asked my uro why I was continent after the catheter was removed and then went to incontinent. He said that your splinkter is swollen from all the surgery so that helps to keep the urine in your bladder and it gives you a false sense of being continent, but after the swelling goes down your bladder then goes to its normal state and you start leaking.  In my case, thankfully, by the third month, I had healed enough that I could stop using pads.  Today after three years, I still have occasional stress leaks, but nothing bad enough to use a pad anymore. 
 
Age 56, Biopsy 6/2007 - PSA 4.5, 2 of 12 with  <5% cancer Gleason 6
Surgery 9/2007 Strong Memorial,  Rochester  NY with Dr. Jean Joseph (1300 plus surgeries)
 Path - Negative margins, cancer in 20% examined tissue, Gleason 6
 Post Op - No ED issues, full erections without drugs,  used 5-7 pads a day for 3 months. Now dry except for stress leaks now and then.
 All post op psa's <.04

Ger42
Regular Member


Date Joined Apr 2010
Total Posts : 189
   Posted 10/22/2010 9:56 AM (GMT -6)   
Now that I'm up and around I am having some leakage but not much. Tomorrow I'll try a pad during the day and the diaper during the night. Here in Florida it is so warm that I sweat with the diaper on.
Age 68 weight 185 height 6'
Samples taken 4/19/2010 sent to Bostwick
3 out of 12 samples cancer
1) gleason score 3+3 involving 65%
2) gleason score 3+3 involving 65%
3) gleason score 3+3 involving 10%
PSA 3.5 Mar 19
PSA 2.5 Apr 4
Bone scan clean CT scan clean
Da Vinci 8/24/2010, rescheduled to 8/26, now Oct 12th
God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2680
   Posted 10/22/2010 10:31 AM (GMT -6)   
I' ve been completely dry overnight from day one, and at two months I'm seriously considering discontinuing pads entirely. As mentioned above, my surgeon acted as if he expected a good outcome and would have been surprised if I had developed a problem in this area.

I think this is a great thread for newcomers. I have a friend who has surgery scheduled in a couple of months, and I'm sure it's encouraging to see all of these good reports. We all know too well that some guys struggle in this area, but for some it never becomes an issue. This is a major worry for all of us when we're first diagnosed.

Now if we could just offer as much positive news in the ED area, wouldn't that be great!
Age 65
Dx in June 2010.
PSA gradually rising for 3 years to 6.2
Biopsy confirmed cancer in 6 of 12 cores, all on left side
Gleason 7 (3 + 4)
Bone scan, CT scan, rib x-rays all negative.
DaVinci surgery late August at Advocate Condell, Libertyville IL
Negative margins; negative seminal vesicles
Smooth recovery; 18 holes of golf at 4 weeks.
Continence OK after 7 weeks. ED continues

Trevor T.
New Member


Date Joined Aug 2010
Total Posts : 9
   Posted 10/22/2010 10:56 AM (GMT -6)   
NY-Sooner said...
I was continent right after my catheter was out and I thought, Wow!!! I beat the odds and I am not going to have top wear pads. Well,,,three days later, I started to leak to the tune of 5-7 pads a day for about 3 months.


Oh oh. Maybe I spoke too soon.

I need to stop reading these message boards.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 10/22/2010 11:28 AM (GMT -6)   
Trevor:
 
Keep reading. Whatever outcome you want, you'll find it here...somewhere
 
 
Mel

April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted 10/22/2010 12:31 PM (GMT -6)   
I was (99%) continent as soon as the catheter was removed but for a few weeks I would give a little squirt if I farted. That went away after 3-4 weeks too. Also, for the first several days after the catheter was removed I had to get up at night 4-5 times to urinate, but that scaled back to once a night and thats were I am now.

Dan
Here are some of my stats:
Age:54
Father diagnosed with PC at age 72 - wasn't contained to prostate when found in 1992.
My PSA rose from 3.2 to 5.1 over the course of 1.5 years with Free PSA at 25% for the last two tests.
DRE showed no evidence of tumor but Uro thought my prostate was a little large for someone my age
PCa diagnosed 4/6/10 after biopsy on 4/1/10
1 out of 12 biopsy samples was positive with 5% of biopsy sample cancerous
Gleason 3+4
Da Vinci surgery on 6/1/10
Pathology report shows cancer confined to prostate and all other tissue clean
PSA tested on 7/15/10: Zero Club membership card issued (trial membership with 90 day renewal)

NEIrish
Regular Member


Date Joined Aug 2010
Total Posts : 245
   Posted 10/22/2010 3:04 PM (GMT -6)   
After 8 days with a cath my husband THOUGHT he was 100% continent as soon as it was removed. Two days later he was struggling to get out of bed and had a very small squirt - really upset him. The next night he had a dream he was standing at a urinal, and lost control enough that he had to change his pjs, but made it to the bathroom okay. For the next month, an unexpected sneeze would cause a very small loss. If he knew a sneeze was coming, he'd have control. It took a total of 2 months before all those little surprises disappeared. He considers himself very lucky in that dept., but we're working on the ED issues still...
Husband 60yrs., no symptms: PSA 10/04 2.73, 12/06 3.64, 5/09 3.9, 10/09 4.6, 1/10 5.0w/ free PSA 24
6 core biop 4/1/10 path rept: rt mid: adnocarc. G=3+3, 5% of core; R apx v. susp. minute ca, R base bnign w/ mod. atrophy, L side atrphy only; 2nd opnion JH confrmd
MRI - 15mm nodule
BiLatRP surg 7/6/10, path: T2c, nodes, sem.ves, extra caps. neg., adenoc both sides G=3+3 cntinent, Viagr-8/27 ED
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