SRT and incontinence

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compiler
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Date Joined Nov 2009
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   Posted 10/22/2010 10:24 AM (GMT -6)   
I've now read some posts where your incontinence worsened after SRT.
 
My understanding had been that whatever degree of incontinence you have, it gets frozen in place permanently after radiation. I now question that, especially since we know nothing is certain with this disease.
 
So, my question to all of you who have done SRT:
 
1) What was your continence level before SRT
 
2) What was it after?
 
3) Did it improve at all after SRT over time
 
Mel

howard l
Regular Member


Date Joined Aug 2010
Total Posts : 152
   Posted 10/22/2010 10:35 AM (GMT -6)   
 
I finished SRT the first week of August. My incontinence was well under control no pads. During the third week of radiation i had increased frequency and started getting up at night to urinate. I am now back to no pads but still getting up at night although not as frequently. So for me incontinence has improved with time after SRT.
DX age 58
PSA 5.4
Gleason 5+4 = 9
City of Hope Clinical Trial (punch protocol). 6 sessions textore every 3 weeks + lupron
PSA .1
RP Oct 2009. Seminal Invasion positive margins. Lymphnods clear.
1 month PSA post op undetectable.
4 month PSA undetectable.
7 month PSA .5
Bone scan and CT scan negative. Prosticint scan mild activity in prostate bed.
EBRT May 2010. 39 sessions 70gy. On number 37.

Magaboo
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Date Joined Oct 2006
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   Posted 10/22/2010 11:39 AM (GMT -6)   
I had SRT about 2 years ago and was fully continent at the start. I have not noticed any change in continence or frequency during or after my SRT. I do, however, have to visit the little boys room at least once during the night.
 
Mag

Born 1936
PSA 7.9, Gleason Score 3+4=7, 2 of 8 positive
open RP Nov 06, T3a, Gleasons 3+4=7, Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; at SRT Start=0.1, Salvage RT completed (33 days-66Gy) 19 Dec 08
PSA: in Jan 09 =.05, all tests to date (Jul 10) <.04

142
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Date Joined Jan 2010
Total Posts : 7082
   Posted 10/22/2010 11:42 AM (GMT -6)   
Mel,
 
As I noted in the IGRT thread, we waited as long as the doctor thought was safe before starting radiation. He was hoping that I would get to "no pads". I did not. At the start of IGRT I normally used one pad per 24 hours (I sometimes used 2, but generally because the one was damp with sweat and I changed it out for comfort). There were some bad days if I thought I could drink a beer, coffee, or orange juice, but quit doing that.
 
I had a general setback about midway through RT, and went back to 2-3 per 24 hours.
 
At 4 months out from the last RT session, there is no improvement.
 
I did not understand "frozen in place". I understood "it will not get any better" after radiation. The fine print in all the papers I signed explained that it might get worse during RT. It did.

Galileo
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Date Joined Nov 2008
Total Posts : 697
   Posted 10/22/2010 12:22 PM (GMT -6)   
SRT didn't affect me as far as continence. Dry before, dry after. Same with ED--didn't really notice any change, except that now, 3 years out from the end of SRT, ED situation is improving. It's easier to get by now without meds if I want. My main bother was bowel irritation, now a thing of the past.

SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 10/22/2010 12:23 PM (GMT -6)   
I completed SRT in July.  At the time it started I was down to just one pad a day for the occaisonal dribble.  I am now pad free.  The only thing that changed with the radiation is urgency.  When I have to go I have to go!! Also, I am still getting up 2-3 times a night to go.  Doctor started me on Detrol two weeks ago, but so far no improvement on the night time trips to the bathroom.  Squid.

Sephie
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Date Joined Jun 2008
Total Posts : 1804
   Posted 10/22/2010 3:01 PM (GMT -6)   
Mel, when John was facing possible SRT last year, the radiologist and urologist both told him that his progress with incontinence would probably take a step or two backwards but that it would improve once treatment was completed.

English Alf
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Date Joined Oct 2009
Total Posts : 2218
   Posted 10/23/2010 6:03 AM (GMT -6)   
I measured it.

12 trips to bathroom per 24 hours before RT 18 trips per 24 hours after RT.
Lots of urgency as well. I can extend time between bathroom visits, but it just feels so unpleasant having the urge to go that I usually just go.

Did not measure BMs but approximately 10BMs per week before and 25 per week afterwards.

Alf

60Michael
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Date Joined Jan 2009
Total Posts : 2243
   Posted 10/23/2010 8:31 AM (GMT -6)   
Mel
I was told by my oncologist that both ED and incontinence would be frozen in place. Now my Uroligist sasy that is not always the case. Not sure who is right, but both are frozen in place and frequency has worsened and I am 7 months out of SRT.
Michael
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