has anyone else ever had this happen?

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2 time survivor
New Member


Date Joined Oct 2010
Total Posts : 10
   Posted 10/25/2010 1:01 PM (GMT -6)   
Went to the hospital this morning for a cystogram before having the catheter removed. I've had this thing now for 13 days. Doc says i'm not healed enough yet, got to leave it in for another 8 days. Won't take it out until next tuesday now. argh! I guess I'd rather they err on the side of caution, but this thing is really starting to get on my nerves. I guess they found a small leak when they put in the dye, nothing serious he says, but we want to make sure its healed before we remove the catheter.

profman
Regular Member


Date Joined Jan 2010
Total Posts : 55
   Posted 10/25/2010 1:52 PM (GMT -6)   
Happened to me - went in after 8 days to have the catheter removed and failed the test - they kept it in an additional week, then removed it without a retest.
Diagnosed 9/4/09, age 59
PSA 3.5, up from 1.8 year before
Two biopsies showed 8/20 positive cores, Gleason 3+3, up to 40% involvement, T2a
RRP on 12/15/09, home 12/16
Biopsy all good news, still Gleason 6, margins clear all around
Catheter out on 12/29/10
Continent in six weeks, ED still present
PSAs undetectable (six weeks, six months)

spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 345
   Posted 10/25/2010 2:14 PM (GMT -6)   
yup, happened to me too, had it in for 20 days,
Mike

pipedream
Regular Member


Date Joined Aug 2010
Total Posts : 64
   Posted 10/25/2010 2:37 PM (GMT -6)   
My husband was not tested....just had the catheter removed after 11 days. Only question asked - was he having any blood? He was so irritated about the catheter after 11 days, I would not have wanted to see his reaction if it had to remain in place for 8 more days.

You have my sympathy. So sorry you have to go through this.
Husband DX @ 64; 7.5 year survivor colon cancer; father had PCa @ age 65
04/09 - PSA 3.06
10/09 - PSA 1.55
04/10 - PSA 4.26

Biopsy 7/10 Gleason 7; 3+4 & 4+3 - 6 of 10 cores

RRP - 10/1/10; Gleason 3+4; 20%; pT2c; contained, clear margins

Steve n Dallas
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Date Joined Mar 2008
Total Posts : 4834
   Posted 10/25/2010 3:20 PM (GMT -6)   
Five weeks for me - thank you very much.
 
Apparently getting a cystogram done is rare around these parts...As much fun as they AREN'T, I would have rather done the cystogram then the trip to the ER to get the cath put back in.

pipedream
Regular Member


Date Joined Aug 2010
Total Posts : 64
   Posted 10/25/2010 3:33 PM (GMT -6)   
Since I didn't know what the cystogram test involved, I googled and found this study - Is a cystogram necessary after robot-assisted radical prostatectomy?

www.ncbi.nlm.nih.gov/pubmed/18047953
Husband DX @ 64; 7.5 year survivor colon cancer; father had PCa @ age 65
04/09 - PSA 3.06
10/09 - PSA 1.55
04/10 - PSA 4.26

Biopsy 7/10 Gleason 7; 3+4 & 4+3 - 6 of 10 cores

RRP - 10/1/10; Gleason 3+4; 20%; pT2c; contained, clear margins

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4834
   Posted 10/25/2010 3:39 PM (GMT -6)   

From the link:

CONCLUSION: Foley catheter removal on postoperative days 8-10 after robot-assisted radical prostatectomy without routine cystography appears safe.

Unless your one of the unlucky guys that have a leak smhair


April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted 10/25/2010 4:40 PM (GMT -6)   
Pipedream,

Thank you for the link that answered my question I have had ever since I read here that some patients with similar treatment (RALP) get the cystogram and some don't.

My Uro (who normally isn't shy about giving me tests) didn't even mention a cystogram as part of my treatment. So far so good.

Dan
Here are some of my stats:
Age:54
Father diagnosed with PC at age 72 - wasn't contained to prostate when found in 1992.
My PSA rose from 3.2 to 5.1 over the course of 1.5 years with Free PSA at 25% for the last two tests.
DRE showed no evidence of tumor but Uro thought my prostate was a little large for someone my age
PCa diagnosed 4/6/10 after biopsy on 4/1/10
1 out of 12 biopsy samples was positive with 5% of biopsy sample cancerous
Gleason 3+4
Da Vinci surgery on 6/1/10
Pathology report shows cancer confined to prostate and all other tissue clean
PSA tested on 7/15/10: Zero Club membership card issued (trial membership with 90 day renewal)

lnwm
Regular Member


Date Joined Oct 2010
Total Posts : 21
   Posted 10/25/2010 5:33 PM (GMT -6)   
My catheter was in for 10 days but I was in the hospital the whole time for other complications. I asked about having a cystogram prior to removal since putting the thing back in was the LAST thing anyone wants to do. Was told they didn't do that. Instead, my surgeon tested for leaks during surgery prior to finishing everything up. Not sure how they do that (thinking of a pressure test like a radiator! lol) but I had little leakage within days of removing the catheter.
 
Sorry to hear about anyone having to wear it more than a week. The do become uncomfortable and can become a real issue if not maintained properly such as routine cleaning around the tip of the penis.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7211
   Posted 10/25/2010 6:28 PM (GMT -6)   
I had an SP cath.
 
They had me turn it off (pee normally) to test it for quite a few hours.
 
Mel

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/25/2010 6:34 PM (GMT -6)   
my original cath was in for 63 days after surgery, and that was before i began all my stricture problems
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Mike H
Regular Member


Date Joined Jan 2010
Total Posts : 72
   Posted 10/25/2010 7:17 PM (GMT -6)   
My Doc's plan was out 2 weeks after surgery.

At my 2 week visit he did a cystogram and said 1 more week should do the trick.

At the end of week 3 he said 1 more week and it will be perfect.

Week 4 finally the cath was removed.

I guess you can't rush progress !!

Mike H

NEIrish
Regular Member


Date Joined Aug 2010
Total Posts : 245
   Posted 10/25/2010 8:09 PM (GMT -6)   

I'd not heard of it before and clicked on the Pubmed link from pipedream (thank you).  Is it only used if you have the robotic RP or do they use it for the procedure my husband had - open RP?  The link just mentioned the use of it for robotic surgery.  His cath came out with no comments on testing for leakage before hand at 8 days post open RP...Nurse did the removal with the briefest of visits by the surgeon afterwards.

 


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 757
   Posted 10/25/2010 11:04 PM (GMT -6)   
I had robotic, and they took the catheter out after a week, with cystogram. Not sure if that would have made a difference, but I had to have it put back in for another week. Like Steve said, would have certainly preferred a cystogram to the trip to the ER, if there was a choice. They did do a cysto before taking the catheter out the second time.

DJ
Diagnosis at 53. PSA 2007 about 2; 2008 4.3
Biopsy Sept 2008: 6 of 12 cores pos; Gleason 4+3 = 7
CT & Bone scan neg
Da Vinci at City of Hope Dec 8, 2008
Rad prostatectomy & lymph node dissection
Cath out on 7th day, in on 8th day, out again 14th day after neg cystogram
Path: pT2c; lymph nodes neg; margins involv; 41 grams,
PSA 1/08, 4/09,7/09, 10/09, 11/09,2/10 <0.01, 10/10 0.1

dogbot
Regular Member


Date Joined Aug 2009
Total Posts : 147
   Posted 10/26/2010 10:00 AM (GMT -6)   
I had a cystogram before surgery, but no mention of one when the tube was pulled (8 days) and no mention of antibiotics. I later suffered quite a severe UTI and had 3 lots of antibiotics to clear it, but all told quite happy with the NHS in Britain.
 
All the best from England.

Ger42
Regular Member


Date Joined Apr 2010
Total Posts : 189
   Posted 10/26/2010 3:35 PM (GMT -6)   
I had a cystogram 10 days after the operation. The radiologist had me positioned so I could watch the whole thing on the screen. They filled my bladder 1/3 full of what I thought he said was iodine. I felt nothing. They used the cath to fill it. He pointed out everything and when done said I see no reason why my urologist would not remove it. When to the urologist's office 2 hours later with a CD. Doc looked at the CD and said it's coming out. Nurse said drop your drawers and lay down. Felt a tug and it was gone.
The cystogram the urologist did before the operation was him inserting a long probe up my penis. That was uncomfortable. The probe had a camera and I watched that on a srceen. Hospital one was an xray not a camera.
Age 68 weight 185 height 6'
Samples taken 4/19/2010 sent to Bostwick
3 out of 12 samples cancer
1) gleason score 3+3 involving 65%
2) gleason score 3+3 involving 65%
3) gleason score 3+3 involving 10%
PSA 3.5 Mar 19
PSA 2.5 Apr 4
Bone scan clean CT scan clean
Da Vinci 8/24/2010, rescheduled to 8/26, now Oct 12th
God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 10/26/2010 4:32 PM (GMT -6)   
Technically , the procedure before surgery was a cystoscopy, involving a cystoscope. The cystogram is indeed a pressure test to check for leaks. Whether we had an RP or and open, they still cut the urethra, and sew it back to gether.

It seems to me to be a prudent measure. Leaking pee into the freshly disturbed prostate area can't be good. With my 1 in 6 chance of getting prostate cancer, I didn't want to test my lucky streak by having a leaky repair job.

It was 2 weeks for me as well.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01
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