By-passing my November PSA test

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/27/2010 3:05 PM (GMT -6)   
While meeting with my uro Monday, he brought up the fact that my 4th post SRT PSA test was due in a couple of weeks.
I told him, I had thought long and hard about it, and talked it over with my wife.  I am skipping this one and will take the
next one in February, 2011.
 
I had a small uptick on my last one, may or may not be a fluke, or may be the start of evidence of SRT failure.  With my PSA
velocity history, that is what my uro is concerned about it.
 
My reasoning, and no denialism going on here.  I am in the middle of a long and difficult surgerical recovery period.  I am adjusting
to being an ostomy lifestyle, and all the holidays are before me.  The last two holiday seasons were wrapped either around my prostate surgey or radiation treatments.
 
If my PSA has risen, I simply don't want the knowledge of that to dampen my recovery or spoil my holidays.  And I told my good doctor,
that besides, I have used up my curative cards, so knowing now, if there is a rise, or waiting till then, doesn't really make any
difference in the big picture.  Perhaps I will be surprised with good news in February. 
 
It will simply have to wait till then.
 
I have enough on my plate right now, I feel.
 
David in SC

tatt2man
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Date Joined Jan 2010
Total Posts : 2845
   Posted 10/27/2010 3:33 PM (GMT -6)   
David:
Hugs - you have my support -
BRONSON

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 10/27/2010 3:35 PM (GMT -6)   
At this point we can only express our encouragement and hold you and your family in our prayers. Enjoy the holiday season.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6980
   Posted 10/27/2010 3:47 PM (GMT -6)   
David,
 
The logic works for me - concentrate on what you can make progress on.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/27/2010 3:47 PM (GMT -6)   
thanks
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 10/27/2010 3:48 PM (GMT -6)   
Hi David,
 
I can fully appreciate your situation and understand your decision to wait
until next year to get your next PSA test. I hope that you'll have a wonderful
holiday season and a great PSA test result next year.
All the best to you.
 
Your friend,
Mag

Born 1936
PSA 7.9, Gleason Score 3+4=7, 2 of 8 positive
open RP Nov 06, T3a, Gleasons 3+4=7, Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; at SRT Start=0.1, Salvage RT completed (33 days-66Gy) 19 Dec 08
PSA: in Jan 09 =.05, all tests to date (Jul 10) <.04

F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3835
   Posted 10/27/2010 3:50 PM (GMT -6)   

as long as you can handle not knowing that sounds like a plan. good luck and get well ASAP!

ed


age: 55
PSA on 12/09: 6.8
no symptoms, no prostate enlargement
12/12 cores positive....gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10

bsjoplin
Regular Member


Date Joined Feb 2010
Total Posts : 308
   Posted 10/27/2010 4:11 PM (GMT -6)   
it's not denial, it's living through what you can deal with RIGHT NOW, and leaving to tomorrow what needs to be handled tomorrow...i applaud the self control...wishing you all the best: you certainly deserve a break, but PCa [and other aspects of life], don't really pay attention to that.  have a great holiday season, and we'll catch you on the other side..
bob
 

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/27/2010 4:14 PM (GMT -6)   
thanks guy
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Jazzman1
Veteran Member


Date Joined Sep 2010
Total Posts : 1160
   Posted 10/27/2010 4:23 PM (GMT -6)   
Who can blame you, David?

Hang in there, do what you can do, and take care of yourself the best you can. There are a lot of people here who are hoping everything works out for you.

Jonathan

stxdave
Regular Member


Date Joined Nov 2008
Total Posts : 65
   Posted 10/27/2010 4:37 PM (GMT -6)   
Life is to lived abundantly so any nudge you can give it is not only acceptable, but preferred.

Were it me, I might even lie to myself and say the uptick was a laboratory anomaly, which is indeed possible.

Enjoy your Holidays,

Dave

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4110
   Posted 10/27/2010 5:56 PM (GMT -6)   
David Pat and I are holding your hand in support. I so hope you have a joyful Holliday season. Can hardly wait for the chance to hear your voice again.

Cajun Jeff

Post Edited (corvetteman3) : 10/27/2010 5:00:00 PM (GMT-6)


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 286
   Posted 10/27/2010 6:02 PM (GMT -6)   
Good plan, heard to believe a few months wait will be of any consequence except to bolster your energy.... at any rate it'll be good news in Feb.

Our best,
Jake
Dx 8/08 Pre-op psa 4.2, Age 60, 7 of 12 biopsies positive 3+3
DaVinci LRP 11/08, clear margins, - EPE, vascular or perineural. Gleason 3+4=7, 5-10% of 4.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
01/05/10 psa .3, SRT 01/19/10 start 39 sessions 70.2gy, psa @ 6 weeks into IMRT .4
Post SRT psa @ 10 weeks (5/31/2010) .2, @20 weeks (8/20/10) .1 (getting close)

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/27/2010 6:15 PM (GMT -6)   
thats the game plan, whatever the number is now, is what it is. and whatever it will be in february, isnt going to change by knowing the november reading i am passing on.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

BobCape
Regular Member


Date Joined Jun 2010
Total Posts : 416
   Posted 10/27/2010 6:16 PM (GMT -6)   
I think that is an AWESOME move!. I dont say that lightly. I think that HAS to be a great move in the scope of your entire health, mental AND physical.

What could you POSSIBLY gain by stressing during - what could be - the most enjoyable time of your life? Really.

Before I was DXd, I use to tell folks "i'm going to live life while i'm alive".

Now I know what the hell I was talking about.

I hope you have an awsome holidays, and when it's over I hope you get even better news!

My specific prayers go to you tonight.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/27/2010 6:53 PM (GMT -6)   
bob, i think you got exactly the spirit of this decision right on target. my family has had plenty of bad medical news with me for 2 years plus now, i want to give them a break, and let them see a recovered husband, dad, and grandfather for a change
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 10/27/2010 7:07 PM (GMT -6)   
In my opinion ( for what it's worth) it's a pretty sensible approach David. One thing at a time. A bit of a delay is not really going to make much difference, so it's time to smell a few roses. A break over the holidays from all things medical would do wonders for your emotional well being as well as the family getting the ol' man back. Can't be anything other than good for all.
Bill

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/27/2010 7:37 PM (GMT -6)   
exactly. billy. i have had no break in 2 full years, enough is enough, seems like i am always recovering from something.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 10/27/2010 9:18 PM (GMT -6)   
David,
I like your logic. If RT didn't cure you then why rush into HT.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18 months) undetectable
Latest PSA test (21 months) .005

Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 10/27/2010 10:07 PM (GMT -6)   
Hi David,
What you stated makes sense to me. Wishing you a fast recovery, you're a trooper.

DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 757
   Posted 10/27/2010 11:25 PM (GMT -6)   
I'm with you, Dave. You handle what you can handle.

DJ
Diagnosis at 53. PSA 2007 about 2; 2008 4.3
Biopsy Sept 2008: 6 of 12 cores pos; Gleason 4+3 = 7
CT & Bone scan neg
Da Vinci at City of Hope Dec 8, 2008
Rad prostatectomy & lymph node dissection
Cath out on 7th day, in on 8th day, out again 14th day after neg cystogram
Path: pT2c; lymph nodes neg; margins involv; 41 grams,
PSA 1/08, 4/09,7/09, 10/09, 11/09,2/10 <0.01, 10/10 0.1

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2216
   Posted 10/28/2010 5:49 AM (GMT -6)   
A Wise Decision David

When I think how much trouble I have had concentrating on things in my simple life the last year or so, (when I have had nothing like your trials and tribulations) I cannot imagine what it must have been like to have had so little control: your messed up bladder dictated the pace. Now you can start to regain a bit of control I guess.

So I guess the first greeting is Happy Halloween


Alf

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/28/2010 8:38 AM (GMT -6)   
thanks guys

edc - i have no plans to pursue HT if the SRT fails, the more I read, the more I don't like it, I dont think I would deal well with it,
and it would still be a stalling plan, not a cure, and more concerned ultimately about QOL issues.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3734
   Posted 10/28/2010 1:03 PM (GMT -6)   
David,
(It's nice to see you around occasionally.)
I like your plan. No matter what your PSA would have been in Nov you would have waited until a Feb test to do something about it. So why bother?
Enjoy the break.
Jeff

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/28/2010 2:37 PM (GMT -6)   
exactly, jeff
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10
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