Treated with HIFU four years ago

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principal96
New Member


Date Joined Oct 2010
Total Posts : 2
   Posted 10/29/2010 6:43 PM (GMT -6)   
I was treated with HIFU in Toronto about four years ago. PSA tests have all been good until a month ago 0.2, a month ago it came back 1.5, did another PSA test Tuesday and came back 1.7. Just wondering what is up, taking another test in a month. My initial gleason was a 9 all my bones came back clean during the intitial treatment. ???

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/29/2010 7:13 PM (GMT -6)   
So little is known about the long term data regarding HIFU especially with the newer techniques. I am only a passive observer of HIFU, so maybe others may help. I am far more in tune with high Gleason's and relapses. And you are both apparently. From what I understand about HIFU you should have virtually all of the options for localized therapy still available to you including another shot at HIFU.

I have however been observing recent studies on HIFU that indicate that a G9 patient is not a good candidate for that therapy. If that is true, then have you explored other means of controlling this?

BTW ~ Welcome to HealingWell.

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/29/2010 7:14 PM (GMT -6)   
During the 4 previous years, what was your PSA typically after the HIFU procedure? Also, surprised they did HIFU with you being a Gleason 9, I don't know much about it, but the criteria I have read typically shows it not being done for any Gleason over 8. Not many here ever had HIFU done, but many curious about it since it will at some point get FDA approval here in the US.

Welcome here.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4269
   Posted 10/29/2010 7:53 PM (GMT -6)   
Recent studies on HIFU release from Japan and France indicate reoccurrance rates higher than conventional therapies. More alarming is that the 5 year reoccurance rates remain steady and don't drop as they do with conventional therapies. It is also very unusual for a G9 cancer to be treated with HIFU. I think your best bet would be to see an oncologist as secondary local treatments for G9's are usually not very successful.
JohnT
65 years old, rising psa for 10 years from 4 to 40; 12 biopsies and MRIS all negative. Oct 2009 DXed with G6 <5%. Color Doppler biopsy found 2.5 cm G4+3. Combidex clear. Seeds and IMRT, no side affects and psa .1 at 1.5 years.

principal96
New Member


Date Joined Oct 2010
Total Posts : 2
   Posted 10/29/2010 10:42 PM (GMT -6)   
They don't, I was 46 at the time didn't want radical for obvious reasons, told doctor *** else can I do, had HIFU, all readings .02 for four years until now.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/30/2010 7:31 AM (GMT -6)   
that helps us understand a bit more, being that you are a gleason 9, i think you were fortunate to have gotten 4 years in pulling such low psa numbers all that time

what options do you have for a secondary treatment? with HIFU, i wouldn't have a clue what is availabe in your case

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 10/30/2010 10:20 PM (GMT -6)   
I believe surgery, IGRT, proton , or hifu would all be on the table.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/31/2010 7:35 PM (GMT -6)   
goodlife, you're right about surgery being on the table; at least as a possibility.

I talked with a da Vinci surgeon in Cincinnati who had removed a prostate that had been HIFUed twice. He said it wasn't a pretty sight, and not an easy surgery, but it had gone well with a good outcome.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  
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