All Good, but...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/3/2010 5:57 PM (GMT -6)   
Well I just got home from Dr. Vogelzang's office and I am still in remission. I won't go into all the details but you can read them at my website in my signature. There was an interesting twist in this doctor's visit. I suffer from hypogonadism and it predates my therapies. Dr. V took a T level test in march of 2007. It was just 218. My brother is currently undergoing testosterone therapy as his was as low as 150.

There is a real irony here. When I had my first PSA test, I was at the doctors office for ED. ED is a side symptom of hypogonadism. That doctor asked if I had had a physical since turning 40 and I had not. It was that day that my first PSA test ever was done. Not only was my T levels low, but my PSA was near 20. I go in for something very personal and simple to address and it just may have saved my life?

PSA history:
October 3, 2006 19.8
October 10, 2006 18.9
November 27, 2006 13.9
Surgery February 16, 2007
February 28, 2007 0.9
March 12, 2007 0.1
March 23, 2007 <0.1
May 16, 2007 <0.1
July 18, 2007 <0.1
September 19, 2007 <0.1
January 29, 2008 <0.1
May 9, 2008 <0.1
September 17, 2008 <0.1
January 13, 2009 <0.1
May 11, 2009 <0.1 T=50
October 7, 2009 <0.1 T=21 PAP=0.3
January 4, 2010 <0.1 T=128 PAP=0.4
May 18, 2010 <0.1 T=230 PAP Untested
November 3, 2010 0.02 <Undetectable> T=263

Many blessings to all!

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Post Edited (TC-LasVegas) : 11/3/2010 6:29:33 PM (GMT-6)


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 11/3/2010 9:08 PM (GMT -6)   
Tony,

What great news. I am so pleased to hear of your great PSA.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 11/4/2010 6:04 AM (GMT -6)   
I went to a free Saturday morning health screening for men and they found the nodules on my prostate..Can't help wonder what would have happened had I not been screened then...
Age 55 - 5'11" 215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6
06/25/08 - Da Vinci robotic laparoscopy
05/14/09 - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.
Growing old is mandatory; growing up is optional..

Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 11/4/2010 10:29 AM (GMT -6)   
 
 
Tony,
 
Great news you give me hope.
 
Jerry1

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/4/2010 11:34 AM (GMT -6)   
Thanks guys!
I can't help but wonder if I had normal T levels that my disease would have been further advanced. Just very ironic...indeed!

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 11/4/2010 1:00 PM (GMT -6)   
Another great PSA reading, Tony, am real happy for you :)
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 374
   Posted 11/4/2010 1:22 PM (GMT -6)   

Tony.........you know I'm currently immersed in whether to supplement my "T" levels, so I've been doing a lot of researching/reading. Some of the more recent studies point to insuffucient "T" levels as being less protective against PCa, citing evidence that a large number of guys who are diagnosed (who know their T levels) tend to be below normal or in the low range.  So, I'm wondering if your levels would have been higher, would the reverse have been true? It's a rhetorical question, I realize, and there is no answer-----just postulating based on the latest studies...........but hey, congrats on the PSA level at this point!!

Arnie


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/4/2010 1:44 PM (GMT -6)   
Arnie I'm right there with ya.
My T level was 218 after surgery and 263 yesterday. It makes you wonder how the T levels fluctuate with prostate cancer. Still no need to count the blessings. I am very happy today.

David, thank you, buddy!

Tony

Jerry L.
Veteran Member


Date Joined Feb 2010
Total Posts : 3072
   Posted 11/4/2010 2:31 PM (GMT -6)   
That's great news! Congrats.

creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 11/4/2010 5:52 PM (GMT -6)   
Hi Tony,
Great news to hear of your continued remission. Hope you are keeping busy and well   tongue as usual. Ironically, CJ went for a cholesterol check in Nov 2006 at the age of 48, and a few weeks later walked out unexpectantly with prostate cancer on his 49th birthday. We credit that particular health check with saving his (young!)  life too.  Strangely enough we never think of that now on his birthday.... time has healed due to good recovery over the past 4 years. Take good care of you and yours TC. Remember you are always welcome to visit if "under" or indeed "over"  this way!  Your upside down friends, Lana & CJ.
Creed_three (Lana) - with husband "CJ" now aged 52.5 yrs (49 years at diagnosis).
PSA (2002) 2.1. (2006) 3.5.  1 x 5% core of 12 positive at biopsy. Open Radical Prostatectomy with nerve sparing April 2007 Sydney, Australia. Gleeson 3 + 4 = 7. 2 x small multifocal lesions. Contained. Undetectable <.1 PSA since: June 2007-0.01, Oct 2007-0.02, April 2008-0.02: Oct 2008-0.03, Nov, 2008-0.02, April 2009-0.03, April 2010 - 0.03. 

Liverette
Regular Member


Date Joined Nov 2010
Total Posts : 54
   Posted 11/4/2010 9:55 PM (GMT -6)   
Jerry,
I'm so new on this forum, and I posted a topic "Mystery Diagnosis" in regards to my mom. I just read one of your older posts, and just like my mom, you had drug induced hepatitis from Lipitor. We are so puzzled by this, and her situation got better for a few weeks and her enzymes went back to high levels again. She's been checked for Auto-Immune and the results were negative, but the doctors think she has the symptoms or the pattern for AIH. I wish you can read my post and give me some ideas. Thanks.
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 26, 2018 9:26 AM (GMT -6)
There are a total of 3,006,752 posts in 329,392 threads.
View Active Threads


Who's Online
This forum has 161849 registered members. Please welcome our newest member, Michael007.
196 Guest(s), 12 Registered Member(s) are currently online.  Details
HappyRick, Cigafred, Startech, mattamx, PeterDisAbelard., Calibren, 1000Daisies, Garion, Lymie24, Stevo68, LJohn23, colja